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Old 03-29-2015, 08:01 AM   #1
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Join Date: Jul 2006
Posts: 869
Question @ lymph node

Hi all, Just had a recent pet scan which is rather confusing. It showed activity in the cyberknife area in lung. My onc said he is not sure if its residual disease or radiation changes. I do remember several monhs ago the radiologist said you may have tumor flare which is not cancer. Also there was some activity in lymph nodes between lungs....so my oncologist wants to wait a month and then do a ct of the chest. Any thoughts? Anyone with active lymph nodes, does that mean chemo? Radiation? Thanks, Cathy
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Old 03-29-2015, 09:00 PM   #2
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Join Date: Jan 2010
Location: Edmonds, WA
Posts: 202
Re: Question @ lymph node

I had a local recurrence in my chest wall 3 1/2 yrs from original diagnosis. Had surgery, radiation and ave been on Herceptin for the last 5+ years and am still NED. If your original breast cancer was HER2+ your treatment might be similar.
Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.

Debbie K
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