***What was your date of dx, stage, treatment and current status...???***

[mamacze]

I haven't posted for awhile, and here is Rhonda with another good way for us to get to know each other;

2001 Stage 0 Radation and tamoxifen Age 44 (and mama of 4)


2004 Stage 4 Her 2 +++ er/pr -, metastasis to all 4 lobes of lungs, Navelbine, Herceptin and Seattle clinical vaccine trial. Prognosis of 21 months

2006 CAT scan this week continues to show no evidence of disease..now on Herceptin alone every 3 weeks, and feeling fine!

Love, Kim From CT

[Mary H2]

Diagnosed 7/01

42 yrs.
Found lump while breastfeeding
ER-/PR-, Her2+ (Fish)
2 cm. & additional invasive areas
1 pos. node
Left MRM
No radiation
NSABP clinical trial: randomized to herceptin arm. A/C x 4, taxol & herceptin x 4, herceptin x 48
Currently NED.
Forever grateful for the opportunity to get herceptin.

Name is Sheryl.

Dx 11/19/05 (age 50+), Modifed radical 12/05/05
Stage 4, mets to T12 and liver
Node positive (all nodes removed)
ER/PR-
HER2positive (FISH 7.5)
Finished 3 rounds of ATZC (Adria,Taxotere,Zometa,Cytoxan) on 2/23/06
Will begin Herceptin/Taxotere/Zometa on 5/03/06 (will be done July 06) 3 weeks on, 1 or 2 weeks off
Met on liver has shrunk 50% (<1" in size now) - Met on T12 spine is stable. Recent bone scan show no new mets...yippee!

Still on the planet! Blessings from Minnesota!

[Sherry in WV]

Sherry
Stage IV Lumpectomy Sept 25, 2002
Dx. Sept 11, 2002 confirmede Friday 13th 2002
Her + ER neg.
Many chemos
Unable to finish any schedule of chemo due to low cts and neuropathy caused by chemo.
Herceptin first weekly, now q weeks since first chemo Oct 4, 2002Last month had cerebral bleed, renal failure and chf. Doc called family in,.
Comma 4 days. Pulled out of it, by Grace of God and many prayers.
Plt ct 40000, no longer able to produce plts.
have decided no more chemo.

[John21]

Kathy

Diagnosed 2001-2002 Stage IV
Left Breast 3cm
Nodes Positive
Metastisis to Bones (mostly spine, pelvis)
ER/PR +
Her2+
Left Masectomy and recontruction
6 mos ACT
Almost 4 years on Aridia and Arimidex - NED!!!
Stopped working so well in early 2005( New liver mets as well as lungs)
Tried some stupid trial in 2005
Started Nov 2005 ( Taxol, Herceptin and carboplatin) - 6 mos
Most lesions in liver and lungs went away or reduced to almost unmeasurable as they describe it.
Last scans a month ago show NED!!!! All stable.

[LOPSIDED]

HERE'S MY TREATMENT HISTORY.......SO FAR NO COMPLICATIONS.

[koolbreeze]

I was diagnosed Invasive DCIS end of Mar 05. Lump found while showering. Had been on estrogen replacement therapy for 2 years prior.

Left Mastectomy Apr 05 with sentinal node biopsy which was positive. Expander inserted. 3 cm tumor - Dx Stage IIb. Her2+ and ER+.

9 lymph nodes removed May 05.

Rejection of expander caused another surgery in Jun 05. Incision would not heal and was infected. Expander removed.

Jul 05 Partial Thyroidectomy - no malignancy of nodules.

Began A/C chemo Jul 05 12 weeks.

Began Taxol and Herceptin Oct 05 for 8 weeks.

Jan 06 Right breast removal - no node involvement.

Jan 06 - Continuing Herceptin until Oct 06. Started Arimidex.

[rinaina]

Dx: March 2006

Stage I
Grade 3
her2+++
er/pr-
node negative
4 rounds chemo-Ac completed July 20, 2006
started herceptin 3 weeks ago

[Mary Jo]

Hello All,

I was dx June 24, 2005 with invasive ductal carcinoma. Had a pet/ct scan July 7, 2005 which thankfully found no cancer anywhere in body other than right breast. I had a right breast mastectomy July 28, 2005. Pathology report said I was staged at a 2A, 4.5 cm tumor, margins clear, two sent. nodes removed (checked during surgery to determine whether more would be removed but told NO cancer) - however, when final report was done and breast and nodes were gone through MUCH more thoroughly, they did find evidence of one microcscopic cell in the first node. Second node was clean. I opted out of removal of more nodes. My oncologist and surgeon did NOT recommend going back in to remove more nodes (if that microscopic cell would have been found during the surgery they would have removed lots more nodes) and I agreed with them. I felt confident that with only 1 microscopic cell in the first node and the second node being clean that the other nodes would not be affected. HOWEVER, the radiation oncologist I met with later to discuss whether radiation would be something she recommended I do, DID recommend radiation. She said that having just one node only microscopically affected and second node being clean did not guarantee to her that other nodes were not affected. So.........I listened to her!!!! I was er/pr neg. but her2/neu positive - grade 3.

August 24, 2005 I started a dose dense regimin of chemo. I started with A/C bi weekly - then moved on to Taxol/Herceptin bi-weekly. (however herceptin was every 3 weeks) That all ended on Aug. 30, 2005. Herceptin continues every 3 weeks til Oct. 11, 2006. I began radiation right after Christmas 2005 and that ended beginning of Feb. 2006. I had a mammogram of left breast at that time and a calcification area they had been watching in the left breast concerned my docs so they wanted me to have that area biopsied. Thankfully it was all benign but I decided at that time I wanted that breast removed. So..............on March 7th I had my left breast removed also. Pathology said all was clean in that breast - thank God!

So........life goes on.

God Bless - marejo

[SusanV]

Just beginning the journey....The Once upon a time starts like this:

[deb-steph]

i was 44 at diagnosis. found lump while taking a shower. have had a mammogram every year or every other year since i was 35. lumpectomy on 12/16/05. a/c started 1/19/06 for 4 tx's, taxol/hercpetin started 4/19/06 with 9 of 12 tx's (stopped due to neuropathy in feet), 33 rad tx last one 8/25 and now on her2 thru april 06.

her2 +++
er-/pr-
2.1cm
one sentinel node microscopically positive
ned as of 9/28 with mammo negative

[pel50]

pel50

DX 3/5/2006, age 56
Male Breast Cancer
Mastectomy, left breast
Stage 1, 1.5 cm tumor
Node negative, 7 nodes removed
ER+, PR+, HER2+, FISH = 2.5
4 rounds of A/C, completed 8/2006
12 rounds of Taxol + Herceptin, completed 11/2006
9 months of Herceptin to follow

[Vanessa]

I was first diagnosed in April, 2006, had a partial masectomy on April 21, 2006. Before surgery I had a catscan that was considered good. After surgery had a petscan that showed metastasis to the liver, chest wall and lining of the stomach. I began weekly taxotere, carboplatin and herceptin on June 15, 2006. In August, I had an anaphalactic(sp?) reaction to the carboplatin and had to hospitalized overnight. The carboplatin was discontinued and I am now the proud owner of an epi-pen. Around September 14, 2006 I had a repeat petscan which was clear. My onc. was very excited, but wanted me to continue chemo for 2 more months and then have another scan. I had a repeat petscan and an MRI of the brain on around November 14, 2006 and they were both clear. My doctor allowed me to discontinue the taxotere. I will continue herceptin for at least the full 52 weeks, so until June or possibly longer. The doctor is excited that I am resonding well to the herceptin, but reminds me that there is no cure.


After the first petscan and I was told I am stage 4, the doctor told me I had about 2-3 years. When I had the 2nd petscan that was clear, she told me that those stats were pre-herceptin.

I am going to be a grandmother 2x in June and I am looking forward to that. This website has definately given me hope and I think having grandchildren in addition to my 2 daughters will also give me hope.

[Patty H]

That is great news.
This is PattyHs husband. Patty is in mine and hospice care now.
Her fight was 6and a half years long. She got a lot of good information off this sight and made some long distance friends along the way.
Goog luck to all of the girls on the sight and God be with you all
BudH

[gin-tx]

Dear Bud,

So sorry you are having to deal with all of this at holiday time. BC is not nice, my surgeon who is a breast surgeon only, said it is rampant. I guess you saw my post and know I had this 10 yrs ago. I'm definitely not cured but am still working part time, take treatment every 3 weeks and try to have a positive outlook and get up with a smile on my face thankful to be here. I too don't know what lies ahead, things could change rapidly as I think I had the cancer a yr ago when I had a bone scan done and something showed up, radiologist said it was arthritis. After I was diagnosed in April of this yr it was quickly discovered it was in my spine. I don't expect to ever be totally well but try to be thankful for whatever time I am here, no one knows. My thought to you and your family, you are in my prayers.

ginkott1@aol.com

[vickie h]

Diagnosed with IBC stage IIIB 2/04, 5 of 19 nodes positive, her2 +++, er/pr-, 13cm tumor left breast (diffused), 4 rounds of Taxotere/Carbo/Herceptin, Mastectomy 7/04, new tumor at incision site 6 weeks later, 33 rads finished Oct 04, skin mets 11/04, 33x more rads 12/04, Taxol/Herceptin weekly until 10/05, new lymph involvement 10/05, start Avastin/Herceptin for one year weekly, more node involvement, switched Oncs 9/06 and started Navelbine/Herceptin. Over a six month period 2 PET/CAT scans clear. Will start Tykerb/Xeloda next week.
I am in my 4th year, and unbelievably doing great after a poor prognosis. I will probably be in some form of treatment for the rest of my life. I also exercise, eat well, and pray, and have the love of my husband. There is so much hope for all of us. Love, Vickie

[Melinda]

DX in signature........

[Catherine]

Age 58 at DX April 06
11 months prior no tumor shown on mamogram, I found in shower by accident
Stage II, ER- PR- HER2+++
Invasive/high proliferation rate
Multifocal tumors (2-3) largest 3.2cm per ultrasound
3 lymph nodes positive, 14 removed
Chemo first: AC/Taxol over 16 weeks
Bilateral Mast Sep 06,33rads over Dec 06
Started Herceptin Dec 06, every 3weeks for 1yr
Feel very good and I am active

[gin-tx]

Dear Catherine,

I too was diagnosed in April 2006, first bout of BC in 1995. Had been free for 10 yrs. This time it's more aggressive, had biopsy which surgeon thought looked fine. Three days later he called it was malignant, had wider margins done, also bone scan which revealed something on spine. Had MRI, was diagnosed with Stage IV metastatic cancer. Had 18 radiation treatments to spine and lungs. Then began Herceptin with Aredia. Still getting every 3 weeks, last CT was no change but nothing new, due for another next month. This has not been a good week, have not felt so hot. Keeping in contact with onc, trying various meds. Keep me informed of how you are doing. We all need to support each other.

ginkott1@aol.com

[elcalabrese]

I joined this group years ago but life takes over and when the format changed I kind of dropped off the radar. I periodically check in and saw this thread. Without too much detail, I was dx in Jan 2000. Left mas, 5/10 pos nodes. E/P -/her2+++. Back then herceptin was not an option. After chemo/rads I was dx with bone mets in April 2002. Lots of chemo/rad and herceptin put me into a chemical remission. After 8 mos of chemo I was put on herceptin with Zometa eventually (after 5 yrs) discontinuing the Zometa.
Since Sept 2003 I have been on herceptin without any other agent and so far I have remained stable. I hate to use the term NED but I have had no progression of disease.
When I was first dx my youngest child was 8. I was told I would probably not see my children graduate from high school. Well. I have seen 3 walk across the stage and my youngest is entering his senior year. My oldest just graduated from college and one daughter has gotten married. Both of my daughters are in college and at this point there is no reason to believe I will not be there to see them graduate as well.
I have been so blessed.
El