Bad news for Madubois63

madubois63 · 05-24-2006, 07:10 AM

I've been dealing with low counts lately and picking up every infection that seems to breeze on by. I had the seven and a half hour nose bleed that started me down the road to transfusion queen. My onc ordered a bone marrow biopsy and we did that on Monday. I got a phone call yesterday morning from my onc. They asked me to come to the Smithtown Office. I NEVER go there and in six years I have NEVER gotten a call to come in to see the onc. I tried to convince myself they just wanted to check the biopsy site as I grabbed my Ativan bottle. They put me right in a room and I knew things were about to get bad. I have AML (Acute Myeloid Leukemia) which is most likely chemo induced (too much chemo). CRAP. Did any of you know too much chemo can cause leukemia??? I did, but certainly did not think this would happen to me. I know someone else on the boards has dealt with this, but can't remember who. If anyone can direct me, I'd appreciate it. My head is spinning right now. I am waiting for an appointment with a new doctor specializing in leukemia and for the final reports (genetic testing). More than likely I will get chemo given over a weeks time (yup - hospital again) and spend up to a month recouping in the hospital. I will have no bone marrow or immune system and infection will become the enemy. I had the worst day - telling my daughter, son, mom, sister and a few friends. I almost wasn't going to post, but I REALLY need all the prayers I can get right now...I love you guys.

..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´

saleboat · 05-24-2006, 07:22 AM

I am just so sorry to hear your news. I don't have any words of wisdom, but did want to let you know that I read your message, and my heart goes out to you. I can only imagine how trying this is, and wish there were more I could do to help.

Jen

Tracy · 05-24-2006, 07:49 AM

Just wanted to let you know you are in my thoughts and prayers.

Tracy

kimber · 05-24-2006, 08:01 AM

We live on faith. However, I have to ask, how much does one woman have to take for God's sake. I will pray for you. I really will. God bless you. - kim

Ann · 05-24-2006, 08:24 AM

Maryann,
I do not have any advice but you are in my thoughts and prayers. I am so sorry to hear of your new battle with leukemia.

jjfromcanada · 05-24-2006, 08:28 AM

I was so saddened to read your note. I too knew this could be a result of chemo, but have no persoanl experience with it.

Thinking of you.

janet/FL · 05-24-2006, 08:29 AM

MaryAnn,
I am so sorry to read your news. You are in my prayers.
I am not sure but I think the information you want is on Lola.
I can't find out how to post the link, but if you search for-- Lola, bone morrow--there is one by Steph that tells it all. It was posted 1-11-06
Hugs,
Janet

AlaskaAngel · 05-24-2006, 08:47 AM

Dear Maryann,

I wish Steph were here to help with this but she is traveling. She would know what therapies Lola and her husband considered, and what some of the plusses and minuses might be about them -- and might know of some good places online for support and good information about it. Please remember that you are not Lola and each person has different circumstances that help or hinder their progress. Please could you have someone stay in touch with us so you and we can talk while you are on this path and likely under restrictions to protect you from infections? You are awfully precious, you know.

As ever,

AlaskaAngel

lexigirl · 05-24-2006, 08:48 AM

Oh Maryanne, you are in my prayers. I don't understand why these things happen... Please be strong and keep us posted on your upcoming tx. I am glad that you posted this news.

Love and Prayers,
Lexi

sarah · 05-24-2006, 09:05 AM

you're a brave, strong person so stay strong. hope you hear some really good news soon. keep fighting.
sarah

Tessa · 05-24-2006, 09:06 AM

I have always admired your spunky and indomitable and humorous posts. Although I can offer no wisdom, just admiration and heaps of good wishes, i know there has been discussion about leukemia on this board, and you will soon,m no doubt, get the best possible advice.

Keep us informed and I am sure you will conquer this too,

Tessa

Sherryg683 · 05-24-2006, 10:39 AM

Damn MaryAnn, you have been my inspiration here, you have gone through so much. I was wondering how you were doing having to stay on chemo for so long. I will pray for you that they get this under control...please keep us updated..sherryg683

Liz J. · 05-24-2006, 04:21 PM

Dear MaryAnn,

I will be praying for you and your family. Please stay strong and try to keep your sense of humor. That may seem impossible right now, but I believe it helps to ward off these beasts. May God Bless you.

Sincerely,

Liz J.

DeborahNC · 05-24-2006, 04:58 PM

(MaryAnne)

Please know you are in my thoughts as well. This news is hard to try to wrap the mind around. Far too much pain here of late. I'm so very sorry.

Kim in CA · 05-24-2006, 07:34 PM

Maryann,

This is just the worst news. I am truly sorry you have this on top of everything else you have been through. Just know I'm thinking of you and will keep you in my prayers. Do try to keep us posted.

Love, Kim in CA

Shell · 05-25-2006, 12:50 PM

Maryann-

I was so sorry to read your initial post, and please know you are in our thoughts and prayers - and I can't wait to hear of some good news for you, so you'll have that signature with the swirls around it, which always brings me a smile when I see your posts...

hang in there...

shell

Becky · 05-25-2006, 02:09 PM

Dear Maryann

My girlfriend (who helped me through the beginning process as she got bc 2.5 yrs before me) got AML just after I was diagnosed. At the time (since I was just having my surgery and really didn't know anything yet) she told me it was that lightning struck twice but later admitted it was because of chemo (and that the cytoxan is the likely culprit). She is 18 months from her last treatment for AML and is doing wonderfully. She is also doing well on the bc front as well (she was only ER/PR+ ).

I am sure she would talk to you and if you would like, privately email me and I will get her your phone number so she can call you. She got treatment from Dr. Fazi Bari at Morristown General (Carol Simon Cancer Center) in Morristown, NJ.

My thoughts and prayers are with you.

Kindest regards,

Becky

cconsolver · 05-29-2006, 10:52 PM

Maryann -

I am so sorry you are having such a hard time. Hang in there and know others are pulling for you.

Cindy

rinaina · 05-30-2006, 12:04 AM

Stay strong Maryanne and thank you for answering my question about medicare. Please never feel you have to answer anything if not up to it, just take care of yourself and concentrate on what you need to at this time and always. All our thoughts and prayers are with you. I told my husband about you and didn't anticipate this happening but I cried. You come to get so attached to forum members even though I truly am still a newbie.

rina

kristen · 05-30-2006, 03:43 AM

MaryAnne,

You are in my thoughts and prayers and I am praying really hard that this goes as easy as it can, no complications. You have been through so much. Your one tough, beautiful woman and you can "DO IT"

God Bless, MaryAnne.