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Old 02-24-2009, 07:55 PM   #21
Jackie07
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On the mental side: I always go back to school after a major surgery - three times so far - partially because I always lose the job I had a year after the medical procedure. Because of my previous brain surgeries, my cognitive function declines fast whenever I am not in a structured setting.

These trainings also help me to get new jobs. A couple of my employers hired me knowing about my brain surgery, yet was convinced I could do the job because I scored high on the tests. (And then I'd disappoint them by having another surgery...

So, yes, we need to keep busy. Our brain is dead set in the "use it or lose it" condition.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-26-2009 at 11:57 PM.. Reason: Add heading ...the mental side
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Old 02-25-2009, 02:59 PM   #22
Sherryg683
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I am a big tennis fanatic and I tried to play tennis as much as I could during treatment, it was a good way to exercise and hang out with my friends. We play and then go eat. I couldn't do it as much as I would have liked. I am now back to playing about 5 times a week and I feel like things are going back to normal. Spritually, I pray and find myself just talking to God during the day. I like to read about near death experience and life after death, just to reassure myself that it doesn't end here...at least I hope it doesn't. I also find peace in just going outside, laying on my hammock and looking up at the sky, especially at night. It brings me peace and reminds me that there's so much more out there than we know. ..sherryg683
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Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 02-25-2009, 04:31 PM   #23
schoolteacher
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Sherry,

Your response so was beautiful. It is amazing how our perception of things change once we have BC.

Amelia
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Old 02-25-2009, 04:33 PM   #24
karen z
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Sherry,
Tennis sounds like it is just great for you. I am glad that prayer and being outside (the hammock sounds great) help with peace. You have a good plan.
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Old 02-25-2009, 06:47 PM   #25
karen z
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Jackie,
Very brave of you to go back to school after surgeries! And you are right about "use it or lose it"- how true. So many of us have tried to stay busy and get back to our lives but have also tried to make sure we have balance in our lives now.
Karen
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Old 02-25-2009, 11:32 PM   #26
harrie
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Sherry, I like to do that also. Although I have only done it a few times, I loved going outside at night, lying on my back on the picnic table and feeling the vastness of the dark sky with all the stars. It really gives me good feelings to feel the power of the universe that way.
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 02-26-2009, 04:24 PM   #27
karen z
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Harrie,
A picnic table under the stars!! What a great idea.
kz
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Old 02-26-2009, 05:57 PM   #28
RobinP
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Going outside and enjoying the flowers, trees and everything alive, makes me feel relaxed and alive, calmer and what I was meant to be, at one with the earth/God. Beyond that I enjoy a little hot antioxidant tea, prayer, scripture reading, and cuddling with my little son.
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2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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Old 02-26-2009, 10:44 PM   #29
Sherryg683
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The other night at about 2 in the morning I was wondering around like I sometimes do. I walked outside and saw the most amazing sight. The moon had this HUGE halo of light around it. It was perfectly round, all around the moon. I was so captivated, I just layed on the ground and watched it for about 15 minutes. The halo kept getting bigger but stayed in perfect round dimensions. It got so big that it look like it was coming down to engulf me or something. I had what felt like a spiritual moment there. I ran in to wake my husband up and tell him of this heavenly thing I saw and he told me..."that's just ice crystals around the moon, that's what makes this effect".. Bummer there. I still say it was heavenly.. sherryg683
__________________
Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 02-27-2009, 12:10 AM   #30
Jackie07
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Sherry,

You've got a knowlegeable hubby with a typical male rational brain. Ask him who he thinks had put the ice crystals around the moon...at exact the time when you walked outside... It is definitely 'Heavenly'. (There's a reason why there are both males and females on this Earth...

By the way, did it rain the next day? An old Chinese saying states: "Whenever there's halo around the moon, it will rain afterwards."
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-27-2009 at 12:28 AM..
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Old 02-27-2009, 07:06 PM   #31
karen z
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Sherry,
I agree with Jackie- I think it was heavenly!!
k
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Old 02-28-2009, 12:23 PM   #32
StephN
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Wink

We often have a good view of the rising moon from our house. Some times it DOES seem just huge! I think it is good for us to have occasion to feel the power of the universe and open ourselves to that.

Anyone see this "Eye of God" nebula? It really looks like a giant eye in space.

http://news.aol.com/article/space-photo-gallery/327819




__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 02-28-2009, 01:31 PM   #33
Becky
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I have done different things during the different stages. During chemo I made sure I ate right. It was like a religion - much more then even though I eat right now. Religiously meant - no sugar, sweets, white food, junk food. I also would not stuff myself. I totally gave up soda, cheese (for the most part) and watched. I even ate my fruit with my meal in order to control my blood glucose. Now, I will eat fruit as a snack and will eat my peanut M&Ms.

Also, I would do my bc research and found this board and it helped me to share my knowledge.

After rads, I found walking and running to be the core of coping. I love being outdoors - exercising, gardening etc.

trying to maintain good health has grounded me and trying to help others uplifts me.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 02-28-2009, 08:36 PM   #34
Jackie07
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Becky,

How did you know that?

Students in Taiwan (possibly in mainland China also) study the 12 principles (virtues) summarized by Dr. Sun Yet-sen, the founding 'Father' of modern China.

Piety, grace, trust (just), honesty, peace, serving others, diligence, perseverance, ...are all included. And the tenth one states: "Happiness is rooted from helping others." He had received his medical training in Honolulu (and was a practicing physician all his life.) The concept must be a universal one.

Young students (4th graders?) often use that quote whenever they are complimented on their good deeds. The culture - Confusius' teaching - is to be quiet about one's good deeds - very much like what's being taught in the Bible. The common response is "Don't mention it". But because kids are required to study the 12 principles, they often use the quote to brush off the 'thank you' to avoid feeling embarrassed.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-28-2009 at 08:47 PM..
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Old 03-01-2009, 01:09 PM   #35
fauxgypsy
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I tried to maintain some semblance of normality. We spent time with our grandchildren and nieces and nephews. We continued with our gardening and I worked as much as I could for as long as I could. I also tried to make sure that I listened to my body and rested when I needed to. I am still having to learn, sometimes over and over again, that there is a new normal now. (Thank you, Andi.) Still, I think gardening, flowers, veggies, herbs, helped keep me centered through this. I planted things even when I wasn't sure I would be there to see them flourish. Gardening is a wonderful reminder of the bounty of this world. I sit here right now with my freezer full of veggies and meat and feel really blessed. I already have some of my seeds started for this spring. It is also a reminder to me that life is what you make of it.
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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Old 03-02-2009, 06:39 PM   #36
karen z
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StephN,
You are right- we must open ourselves to feeling the power of the universe and all that is connected. Thanks for posting the link.
kz
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Old 03-02-2009, 07:10 PM   #37
karen z
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Thanks Becky,
Your message that "trying to maintain good health has grounded me and trying to help others uplifts me" is inspiring.
Best,
KZ
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Old 03-02-2009, 07:11 PM   #38
karen z
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Jackie07,
Very interesting!!
karen
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Old 03-04-2009, 06:24 PM   #39
karen z
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Fauxgypsy,
Thanks for your post. Now can you tell us what we should be planting and when?? I need gardening help.
kz
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