Adding Carboplatin to Perjeta and Herceptin

[Sheila]

Sorry I have been MIA for a couple weeks...I had scans and a cardiologist appt Tuesday...the scans are a staging scan more or less, then we will see how the Carbo does on these nasty mets. I am still struggling a bit, but down to 1 pain pill a day at night, the Lyrica has been a godsend. I also was having a hard time moving my left arm probably due to brachial plexus nerve involvement again. Anyway, it is slightly better...still having a hard time even getting dressed which is a pain! Also, unable to tie my scarfs on my scraggly haired head, and I have learned quickly that this is not a job for my husband....needless to say, my sister who is a whiz at the scarves, lives an hour away, so I have learned to embrace my baldness and run with it! Funny thing, I got a lot more doores opened and smiles than usual with my new bald look.

Wishing the lesions on my left breast would quit draining....they dont hurt but look awful....I am still wondering if by chance they could be shingles, since I had the vaccine right before they appeared. They just dont look like the breast cancer lesions I have had on my neck ind that are on the back of my neck.

Lani, I did actually try the TENS unit...since I own one from a back pain thing I was having...it did not bring me relief...I do remember using a TENs on post surgicals whio could not take pain meds years ago and it worked well. As far as some recommending Neurontin, i was on that before without much relief.

So, in the long run, I have only seen a slight increase in resolution of the areas on my neck and really no change on the left breast...which I am still unsure of it being cancerous...especially since the outbreak and lesions follow the exact pattern on my bra and bra strap...maybe my doc will cave in and biopsy it!

The quick read on the scan showed some shrinkage and some growth...especially in the right axilla which is the opposite side of my mastectomy. I notice that the lump on the right side of my neck has decreased so i am hoping the Carbo/Perjeta/Herceptin will be a WINNER!!!! Hoping the right arm starts moving better as they do not want be driving do to lack of mobility...and that is truly taking the wind out of my sails....so, taking one day at a time and praying for the best

Thank you all for your concern , love and support...you are my rocks!

[Sheila]

Thank you all for all the encouragement, I am feeling stronger each day....hoping my arm will start to co operate....I see the Onc. Next week and hoping to get round 2 of the Carbo with the Perjeta and Herceptin.....you all are MY ROCKS!!!!!!