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Old 10-07-2006, 05:30 AM   #1
John21
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Herceptin Covered By insurance

Has anyone had problems with insurance coverage for Heceptin?


Thanks
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Old 10-07-2006, 05:39 PM   #2
chrisy
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My insurance requires a pre-certification for medical necessity (which can be done retroactively!) but hasn't refused to pay. My precert runs out this November - hope I haven't jinxed myself!
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 10-07-2006, 08:01 PM   #3
Bev
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Hi John, Over a year ago Care First wouldn't commit to coverage until after treatment. We said at that price we wouldn't do treatment until we had a commitment. It took them about a month of thinking and a letter to our state insurance board before they committed to payment. I would think it's getting easier now. BB
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Old 10-08-2006, 08:12 AM   #4
tousled1
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I haven't had a problem with my insurance (United Health Care) paying for any of my treatments or tests, so far.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 10-08-2006, 10:21 AM   #5
Lori S
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In 4/04, I was originally denied by CareFirst BC BS of MD but this was before the release of the study for early stage bc. My oncologist even wrote a letter on my behalf and I was still denied. I then filed an appeal with the State Insurance Commission of MD and then my herceptin treatment was approved.

Hopefully, you won't have to go through the red tape for approval. Good Luck!
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Old 10-08-2006, 10:49 AM   #6
Ginagce
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Covered or Not?

There's a great book here in PA called "Breast Cancer: Covered or Not?".

It was written by Dr. Linda Rhodes and Pat Halpin-Murphy, President of the PA Breast Cancer Coalition, a political action group here in PA. The book won the 2006 Non-Profit Innovation Award.

Although it's geared in some cases to PA residents, there's a lot of very good information in it about insurance in general, clinical trials, appeals and lots more. I think it is an excellent resource for all breast cancer patients.

You can order the book throught the Coalition at www.pabreastcancer.org or by calling them at 1-800-377-8828.

I have not yet had a problem getting coverage for herceptin but just had to change my insurance and I'm in my second year of herceptin so we'll see over the next few weeks where I stand.

All the best to you.

Ginagce
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Old 10-08-2006, 01:20 PM   #7
jener8er
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No problems from my insurer either - HealthNet Individual PPO, and I'm just finshing up my second year. They also just agreed to pay for my genetic testing after 3 appeals and taking it to the State also. If they deny you, just keep trying until they give in. They are hoping that you'll give up first.
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DX 10/04 IDC Grade 3
ER/PR-, Her2+++
4/20+ Lymph nodes
Stage 3a
Age 38, CA
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Old 10-08-2006, 05:57 PM   #8
Colleen007
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I have been on Herceptin from the start of treatment...and have never had any issues with insurance. I'm covered by Tufts Health Plan here in Massachusetts.
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Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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Old 10-08-2006, 06:47 PM   #9
Andi
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My insurance (BCBS of Iowa) has paid for my year of herceptin, no questions asked.
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-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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Old 10-08-2006, 07:06 PM   #10
Becky
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Cigna gave me an open prescription for Herceptin and I did/do not have to reapply if I had wanted 2 yrs of adjuvant Herceptin versus one yr.


If I ever should need it and still have Cigna, I can just restart.

Kind regards


Becky
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Old 10-09-2006, 08:52 AM   #11
John21
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Thanks for the replies. There has never been a problem with insurance coverage before. They sent us a letter saying that the current chemo she took was experimental and not covered. Kinda crazy as they covered everything else before. Could be a new case worker deciding are benefits are out of control. I am sure we are all flagged in the system. We have good insurance PPO. We are currently working with her employer.


Thanks

John
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Old 10-09-2006, 09:15 AM   #12
Mary Anne in TX
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My insurance company stopped paying for herceptin until I went for a Muga and passed the test! I believe they are paying now, but haven't seen a receipt that shows so yet! That would really be the pits!!!! But I do think they will. My clinic is affiliated with the NCI and the business office is amazing at solving any problems. I know that is lucky for me!
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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