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02-06-2013, 12:59 PM
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#21
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Senior Member
Join Date: Apr 2011
Posts: 403
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Re: Hospital stay & Hair Loss...makes for a full week:(
Dear Jessica, I am sending you big hugs...You are an amazing and courageous woman. I hope you will have a smooth ride on the way to NED !!
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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02-06-2013, 02:11 PM
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#22
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Senior Member
Join Date: Jun 2012
Posts: 129
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Re: Hospital stay & Hair Loss...makes for a full week:(
Oh myyyyyyy...i've got nothing witty to say...i'm a nurse and i fix things. What i cant fix makes me angry and i trample it. what i cant trample underfoot makes me sad too. Please feel that i am keeping you in my thoughts and am lifting you in prayer. ((Hugs))
__________________
Age 54, married farm wife/school nurse/mom of 5 adult children...March 2012- found 2.5cm hard, non-painful mass on bse. It was not there, and then it was. Yikes.
Biopsy- DCIS, IDC, er-/pr-/her2+++, grade3. 1 node suspicious on us. Biopsy +.
Plan was for Neoadjuvant TCH x6, Herceptin q3w x a year.
May1- first chemo.
May 5- I could no longer feel the mass. Really. Neither could my oncologist.
July 2- 4th TCH- Oncologist cancels last 2 tx due to "complete response"
August6- lumpectomy with axillary node dissection. No disease present in breast. 1 out of 14 nodes + (4mm)
MUGA #2- 72%
Finished 30 rads Oct '12. Mild lymphedema noticed when I had 2 rads left.
Continue Herceptin q3w until next May
April '13- first mammo since surgery- calcium deposits that are " not concerning." Well, they are concerning to ME! Turned loose from surgeon for 6 months! One more Vit H, will make plans then for port removal.
Oct '13- no change in calcium deposits. "See ya in 6 months!" Keeping port for now.
March '14- oncologist says return in 6 mo.
April '14- mammo unchanged. Surgeon will see me in 6 months but no mammo for a year unless something changes. Its getting easier, but oh, boydo i hate that scanxiety! Keeping port until 2 year anniversary of last Herceptin.
Sept'14- bloodwork good, return to onco in 8 months.
Oct'14- surgeon will see me in April '15. Moving on.
May '15- mammo unchanged, keeping same schedule. Tumor markers soon and if all is well port comes out.
July '15-tumor markers normal. See onco in a year. Appt. for port end of month. First grandchild born July 1st- for today, life is good.
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02-06-2013, 03:37 PM
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#23
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Hospital stay & Hair Loss...makes for a full week:(
Sorry to hear about the staph infection and all the other troubles.
Have you tried tea tree oil toothpaste mixed with a little baking soda or tea tree oil mouthwash? Both are anti bacterial and might help to reduce or prevent mouth sores.
I know things are pretty rough right now, but try to look to a future with less cancer and less troubles. Maybe if the new combo is causing alot of side effects it is also killing alot of cancer.
Take good care of yourself.
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02-06-2013, 04:23 PM
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#24
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: Hospital stay & Hair Loss...makes for a full week:(
Oh Jessica,
I know about those "surprise" hospital admissions and they are the worst. But they are sometimes necessary and I'm glad the infection was able to be brought under control. And especially that you are home again.
I can feel your weariness and frustration.
You have every reason to be tired...maybe when you say that what you mean is just that you are tired. And as you get the awful side effects under control and continue to recover from your surprise vacation you may feel less tired. Remember you are also recovering from radiation and seemingly endless chemo. I was reading the gemzar/carbo side effects and when they talk about fatigue it was like, "no worries, you will fully recover within a year after finishing chemo". Do they not know who they are dealing with? We have to, and do, recover after every treatment! But now I know why it is so hard and it reminds me to be gentle with myself and if I want to lay on the couch all day like a dog it's ok.
The hair thing. I get that - in fact I'm waffling on whether to order some special shampoo because I might not need it in a month or two! And no matter how good you look in your wig (I've seen it and at the risk of making you scream, I didn't even know it was a wig and was SOOOO jealous of your hair) or rockin' something else, every time you look in the mirror - hair, no hair, hat, no hat - it is a reminder that all is not right with the world.
Yet what amazes me is that despite all that, you are still thinking so clearly about what is the best course for your next infusion. You are really something, girl!
My offering on the mouth sores: I had the miracle mouthwash and some kind of gel (like how do you get that to stay in place when it's under your tongue?) and some mouthrinse called Rincinol. But what worked best was having a bottle of water with salt and baking soda in it in EVERY room, and swishing with that every time you passed one. You will get it under control, I know.
Jessica, please know that you are in my constant prayers and thoughts.
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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02-06-2013, 04:56 PM
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#25
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Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
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Re: Hospital stay & Hair Loss...makes for a full week:(
Oh Jessica! My heart goes out to you. Sounds like an awfully rough time you had, but so glad you're doing better now. My hope and prayers for your continued improvement.
Healing Hugs Jo
Dear Lord, Please have mercy and lay your healing hands on our sister Jessica. And I pray for your mercy of all those in sickness, those suffering with mind and body pain, and all those here stricken with cancer. I pray for your healing miracles and peace on earth! I pray in your name Jesus Christ! Amen!
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.
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02-06-2013, 06:29 PM
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#26
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Hospital stay & Hair Loss...makes for a full week:(
Jessica,
All I can do is promise to keep on praying. I hope these dark days are behind you and the sun comes out again! Spring is on the horizon, may you be up and running by the time daffodils bloom!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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02-09-2013, 04:22 PM
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#27
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Member
Join Date: Nov 2012
Posts: 16
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Re: Hospital stay & Hair Loss...makes for a full week:(
Hi Jessica
I'm sorry you ended up in A&E and hospital for five days.
This happened to me too after the first round of FEC. Neutrophils went down to 0.37 and I got febrile neutropenia.
It is very scary having to go to A&E but you did the right thing.
You are doing so well. 10.5 years and beyond is a huge achievement.
Please don't give up. This too shall pass. Brighter days are ahead. Spring is just round the corner.
With best wishes
Catkins
__________________
January 2012 - Grade 3 DCIS (2.8cm) and IDC (3.4cm) HER2+ diagnosed.
February 2012 - Mastectomy. No vascular or lymph node spread.
March-May - 2012 FEC x 4
June-July 2012 - Taxotere x 3
August 2012 - Taxotere x 1+ Herceptin
September 2012+ - Taxotere x 17
October 2012 - radiation x 12 rounds
January 2013 - Started Arimidex.
January 2013 - Finished Arimidex due to a reaction.
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