 |
|
10-16-2009, 06:39 AM
|
#1
|
|
Senior Member
Join Date: Jul 2006
Posts: 869
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie, My heartfelt sympathy to you and your family. You are a shining example of what a true caregiver is...as well as a true soulmate. Your Mighty Oak is at peace now and as the seasons change, he will be with you always. May God keep you close. Ceesun
|
|
|
|
10-16-2009, 06:40 AM
|
#2
|
|
Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
Despite your unrequested participation, both Ed and you have contributed so much to the lives and fights we all face in this thing called breast cancer.
I am very grateful to have been allowed to witness such love and dedication.
My best to you and your family-
Maria
__________________
--------------
Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
--------------
|
|
|
|
|
10-16-2009, 06:49 AM
|
#3
|
|
Senior Member
Join Date: Aug 2006
Posts: 3,380
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I am so very sorry for your loss. I hope that your memories of Ed will comfort you in this difficult time. You will be in my thoughts.
Hopeful
|
|
|
|
|
10-16-2009, 07:36 AM
|
#4
|
|
Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie:
My heartfelt sympathy goes out to you and your family. The Mighty Oak was a strong and true warrior and I know that will help him on his continuing journey.
Marie, you have been a super caregiver and Ed was so lucky to have you by his side. Please take excellent care of yourself and treat yourself kindly and compassionately. These are difficult times for you but I want you to know you are not alone. You and Ed will always be in our hearts and minds.
Lee
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
|
|
|
|
|
10-16-2009, 07:39 AM
|
#5
|
|
Senior Member
Join Date: Sep 2005
Posts: 161
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I'm so sorry to see the news about Ed. What a strong and loving wife you've been to him.
Sue
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
|
|
|
|
|
10-16-2009, 07:39 AM
|
#6
|
|
Senior Member
Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
The world feels different to me this morning . . . just like it did when I lost my mom and then my dad. Everyone around me is going through their routine at work, school or home. But for me - this will be a day of mourning and a day of reflection. You and your wonderful Ed have touched me in ways you will never know. I have gained strength through your courage & I have gained knowledge through your wisdom.
Do you realize what you have done by sharing his story with us on this board? Your Mighty Oak has planted acorns in all of us. All across the U.S. and indeed the world, we have the seed of his memory planted deep within us and we will not let it go. I thank you for that, you have given us such a great gift.
Take care of yourself as you travel down this road not wanted. Some days will be rough and some will be better. You will see that time will be a gift, but it does take "time". You know we love you, you know I LOVE YOU. The mom in me wants to take away your hurt because I know it runs very deep - because you love Ed so deeply. But I can't. You have been brave for so long, but remember it is okay to not be brave for awhile.
You are in my prayers, as you have been since we spoke this summer. Finally, remember that even though it might feel like it - you are NOT alone.
With deepest sympathy,
Alice Larson Mueller
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
|
|
|
|
|
10-16-2009, 08:15 AM
|
#7
|
|
Senior Member
Join Date: Sep 2005
Posts: 290
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
My Dearest Marie,
I am so, so sorry for your loss, yet relieved for Ed. Although he and I will not be able to exchange birthday cards next month, he has been born again into the Kingdom of our Creator, and will patiently await you in paradise.
Godspeed dear Ed, as you embark on the most magnificent journey there is to experience. I regret having never met you, but feel as though I know you well. God bless you Marie for all you did for Ed and for all of us.
Dear Lord, please welcome our beloved Ed into Your waiting arms, and present him his just reward for fighting so long to keep the life that You gave him. Bless him and keep him until we shall all meet again on Your immortal shore.
|
|
|
|
|
10-16-2009, 08:44 AM
|
#8
|
|
Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
I'm breathing a breath of relief for Ed as his spirit soars freely today. I have to tell you, my husband, son and I did our local Soroptimist Walk for Life last weekend, and I got a pink balloon with Ed's name on it to honor his journey (I'll send a picture soon, the balloon is still on my special alter at home). My six year old son and I talked about Ed. I told him that Ed fought cancer for a long time, and now the cancer is too big and he is going to be an angel now. At first my son's response was of course, he'll be o.k. won't he? I told him, well, he's going to be an angel, soon. Then, he accepted that and said, "maybe we can ask his wife where his grave is and we can go there and wish him good luck being an angel!" Wow, my heart fluttered and I said that was a great idea, and that we could wish him luck from right here with our hearts. He held on tight to that pink balloon and guarded it loyally until it was safe at home in its special place.
My family and I are there in spirit, and wish we could be there to hug you. Thank you for staying in touch with us.
Love, Celeste
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
|
|
|
|
|
10-16-2009, 09:52 AM
|
#9
|
|
Senior Member
Join Date: Jul 2006
Location: ontario, canada
Posts: 48
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
My deepest and most heartfelt sympathies are extended to you and yours. Praying you will find peace, strength and comfort in your faith and in the love of family and friends in the days ahead.
Blessings,
~Karen
__________________
Karen
"The Good Lord gave us mountains, so we could learn how to climb!"
|
|
|
|
|
10-16-2009, 01:00 PM
|
#10
|
|
Senior Member
Join Date: Mar 2007
Posts: 33
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
May God be with you both. Thank you for all of your help and support. Your posts helped me make it through some of my bad days and I will be forever grateful. My heart goes out to you Marie, as I sit here typing... I do truly believe that one day you and Mighty Oak will be together forever. May God's angels comfort you and may God's love keep you at peace.
Ruth Ann
|
|
|
|
|
10-16-2009, 01:19 PM
|
#11
|
|
Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
My eyes are filled with tears for you Marie. It has been a long and difficult journey. And now it is time to grieve. And then it will be time to celebrate - celebrate the love you shared and celebrate the incredible life that was the Mighty Oak. And then, my dear, it will be time for you to rest. I can only imagine the utter exhaustion you have built up.
Know that you are and will continue to be in all of our hearts and prayers.
Unable are the loved to die. For love is immortality. ~Emily Dickinson
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
|
|
|
|
|
10-16-2009, 01:38 PM
|
#12
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Oh Marie...although I knew the day was fast approaching and I so wanted Ed's suffering to be over my heart aches all the same. I feel as if I have lost a friend.......you have made your Mighty Oak as real to those of us here that I almost felt I could reach out and touch him.
My sincere condolences sweet Marie for your loss. May God's comfort and peace hold you and surround you today and always.
Love......Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
10-16-2009, 04:22 PM
|
#13
|
|
Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Hi Marie,
Thank you so much for sharing your journey together with Ed. Your thoughts and wisdom have meant so much to me. I have felt so sad for both of you over the past few months. Although I have not written much lately, the two of you have been constantly in my thoughts.
Please accept my sincere condolences.
Barbara H.
|
|
|
|
|
10-16-2009, 04:47 PM
|
#14
|
|
Senior Member
Join Date: Sep 2005
Posts: 556
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I am so sorry to hear the news. It is so depressing that still there is no cure. Please take care of yourself in these difficult days.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
|
|
|
|
|
10-17-2009, 12:06 AM
|
#15
|
|
Senior Member
Join Date: May 2006
Location: Mesa, Az
Posts: 219
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie I am sorry for your loss, but I am so Happy your Man walks in heavens and is swaying as happy as could be, watching over you.
All my Love, rest, recover
Darita
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
|
|
|
|
|
10-18-2009, 09:30 AM
|
#16
|
|
Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Oh Marie...my heart breaks for you. Feel all the love coming your way from all over the globe.
Prayers for peace,
Maureen
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
|
|
|
|
|
10-19-2009, 08:13 AM
|
#17
|
|
Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
God bless you Marie. He is at peace now. No more suffering. He is once again free. . . . . . May you find your smile again. You matter Marie. Your new journey is just beginning. Make him proud!
Love - Kim
__________________
dx 5-05 @42 years old
IDC stage IIA
ER+ (100%) ER+ (75%) HER2+
double mastectomy
4DD AC - 16 weekly Taxol
6 months Herceptin - stopped due to MUGA
35 chest wall rads
Tamoxifen
Lat flap with silicone implant reconstruction on left side due to radiation. "Normal" silicone on right. Finished all reconstruction 6-07!!!
|
|
|
|
|
10-19-2009, 08:23 AM
|
#18
|
|
Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
The Lord saw you getting tired
And a cure was not to be,
So He put his arms around you
And whispered, "Come with me."
With tearful eyes, we watched you suffer
And saw you fade away,
Although we loved you dearly,
We could not make you stay.
A golden heart stopped beating,
A beautiful smile at rest,
God broke our hearts to prove
He only takes the best.
It's lonesome here without you
We miss you so each day,
Our lives aren't the same
Since you went away.
When days are sad and lonely,
And everything goes wrong,
We seem to hear you whisper,
"Cheer up and carry on."
Each time we see your picture,
You seem to smile and say,
"Don't cry, I'm in God's keeping,
We'll meet again someday." Marie, We love you dearly.
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
|
|
|
|
|
10-27-2009, 12:04 PM
|
#19
|
|
Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Oh gosh, Marie, I am just reading the post for the first time. I want to offer my most sincere condolances.
And now, no more suffering or pain for Ed, and blessed peace for you, knowing that he is finally at rest. You have a lot of love, support, and prayers coming to you from complete strangers. Bless you.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
|
|
|
|
|
10-31-2009, 10:44 PM
|
#20
|
|
Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
Thinking of you and wishing you love and strength.
Hugs, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:14 AM.
|
Hybrid Mode