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Old 01-15-2013, 09:19 PM   #22
A. L. Pendley
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Join Date: Jul 2012
Posts: 14
Re: Starting WBR for brain metz

Good to read about others going thru whole-brain radiation. I haven't included my history yet (need to) ----
DX 1999, went thru usual A/C/T
NED until 2004 - then mets to lungs.
Went in/off of Herceptin, Tykeeb, Xeloda, Zometa, Xeloda. Most recently was in Geron+Herceptin+paclitaxel study in Denver but got kicked out due to new brain met.
I did SRS (cyber knife) 2 times - each time got 2 tumors fairly successfully. But due to concerns of tumors crossing into meninges, we're considering whole-brain radiation next month. I did go back on Tykerb with the Herceptin and Xgeva. I run a small business and work 50 hrs a week, so I'm concerned, but optimistic. I'll look at the others' posts for clues!
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