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Old 08-03-2014, 09:02 AM   #1
Lnmum
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Location: Greenville, NC
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Re: Does your port hurt - have to wear bra 24/7?

My port is uncomfortable, too. I have to sleep with a pillow wrapped in my arms and seat belts hurt. I long for the day I have it removed. My general practitioner said the port may be pressing against a nerve. For now, it is necessary. My veins blow with any and all IVs!
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11/3/13 mammogram age 50
11/27/13 follow up mammogram and right breast ultrasound. Radiologist showed me image of 3mm nodule. He said to wait 6 months for a follow up mammogram. I advocated for myself and requested a biopsy.
12/11/13 core biopsy with clip placed
1/6/14 Duke consult BC Treatment
1/30/14 partial right mastectomy, sentinel node biopsy 2 setinal nodes clear. 1.1 cm IDC, close margins.
3/13/14 met Dr Heather White in Greenville, NC. She is wonderful and my new oncologist.
3/18-19/14 Dr. White ordered pet scans, full body ct, bilateral MRIs and BRCA TEST.
3/20/14 5/15/14 chemo taxol/Herceptin 1x/week
3/25/14 port placement
4/17/14 BRCA2+
5/22/14 Herceptin only 1x every 3 was for a year. incomplete Taxol(neuropathy of hands and feet)
7/2/14 oopherctomy, salpingoopherectomy, hysterectomy at Vidante with Dr. Marie Rowe.
10/3/14 BMX/trams flap with Georgaide and Zenn at Duke.
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Old 08-03-2014, 09:08 AM   #2
linzer
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Re: Does your port hurt - have to wear bra 24/7?

I've had my port for 8 weeks. It's not uncomfortable during the day, but I find it is a bit when trying to sleep on that side (left) or on my stomach. It also itches sometimes lately. Perhaps more healing going on around incision etc. I can totally see that it would possibly hurt if a breast was pulling on it. I'm a 34C so that isn't an issue I can comment on knowledgeably. Sometimes I also get a funny sensation with the tubing leading off of it comes in contact with a nerve. Just a split second little zap and then done. Maybe you could chat with your oncologist about it just to double check that all is well. From what I've read, lots of people have love/hate relationships with the port. I'm glad that I have mine, but also would prefer not to Good luck - I hope you get some relief and figure out something that works for you.
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Old 08-03-2014, 05:17 PM   #3
Nurse4u2day
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Location: California
Posts: 439
Re: Does your port hurt - have to wear bra 24/7?

My port hurt and the tubing at times would protrude like a lot . It took a good 4 months for the pain and irritability to go away. At first I wanted it removed once chemo was done and mastectomy . But now finally I am use to it and don't often think about it anymore . Mind you though once I'm done with my Herceptin I want this thing out. I am glad for it now however, glad my Surgical Oncologist encouraged me to keep it until then. As for expanders Argh lol
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]11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
11/19/21- 8 years today I officially remain NED and in 12 days I will be having a lymphnode transfer to help decrease some mild lymphedema! Still working, living life and soon to see a day I thought never would happen and that’s becoming a grandparent June 22nd.
11/19/2023 - 10 years since diagnosis and I remain NED
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