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Old 03-16-2012, 09:41 AM   #1
Elizabethtx
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Join Date: Oct 2010
Posts: 229
Vaccine trial

Hello everyone!
A new update from the Her 2 vaccine trial in San Antonio. I have just finished the 6th vaccine series. I have had an easy time of it. Every time the injection site would get slightly more irritated and red, but never severe. No long lasting side effects at all. Of course it is a blind study, everyone gets GSM, but the other peptides are randomized. Each time I became slightly sore, flu like the first day, but by the next morning i woke up feeling great. We are followed for 3 years and I will have the reactive skin test next month, then boosters at 12, 18, 24, and 30 months.
All I can hope is it will give me some extra protection from the Her 2 beast! AND hopefully see a true vaccine in the future!
Hugs to yu all,
Elizabeth
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Diagnosed: Feb 2010 @ 46 yrs old
Invasive Ductual Carcinoma, left
2/28/10 Bilateral Mastectomy (tissue saving for future reconstruction)
3.2 cm 2/18 +lymph nodes
Stage 2b; E+/P+/Her2 +++
Nottingham score grade 2
Ki67 30%
3/2010 A/C 4 DD/2wks
5/2010 Herceptin/Taxotere 4D/3wks
8/2010 Herceptin until May 2011
Tamoxifin 20mg
9/2010 RAD 34 treatments
Pet scan Aug 2010 clear
Port removed July 2011
Bone scan, chest MRI 12/11 clear
Vaccine trial began Oct 2011








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Old 03-17-2012, 02:45 PM   #2
StephN
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Location: Misty woods of WA State
Posts: 4,078
Wink Re: Vaccine trial

Hi Elizabeth - And thanks for the news.

The vaccine club here is expanding. Keep us posted on how the rest of the follow ups go. I know I got the vaccine and the immune booster, and hope you did too.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 05-27-2012, 09:57 AM   #3
TAMallick
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Join Date: Apr 2012
Location: Dhaka, Bangladesh.
Posts: 5
Re: Vaccine trial

Yes a Harvard study report told us that vaccine more effective than chemo and side effect of it low. Yet it is study label, so it has need more study.
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