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Old 03-21-2013, 06:52 AM   #1
JillaryJill
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Join Date: Aug 2011
Posts: 271
Excited but anxious going to Mayo for Trial

Next Thursday I will be at Mayo Clinic participating in the MC1136 Vaccine trial, which involves a Peptide Vaccine produced by TapImmune out of Seattle and GM-CSF. I am having an emotional response to enrolling in this trial. I keep thinking of the women in the first Herceptin trials...if they would not have participated, alot of us on the board would not be here today. I am so grateful for those women in the trials, Dr. Slamon and Lilly Tartikoff for her fundraising efforts to help make those first trials happen. I feel like I am giving back and maybe there is a reason I got breast cancer in the first place. My onc says there is only 7% participation in clinical trials, so there is a real need for "bodies" to participate. I am not a fan of the pink campaigns, ( although I appreciate the efforts and all the fund raising) to me I think if cancer had a color it would be black or gray...because it sucks!!! My back is bad due to disk problems, so I get a pass from doing the 30 mile walks anyway!! So I feel good about being able to do my part in a trial. They are still recruiting if anyone is interested!
__________________
DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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Old 03-21-2013, 03:32 PM   #2
'lizbeth
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Join Date: Apr 2008
Location: Sunny San Diego
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Re: Excited but anxious going to Mayo for Trial

JillaryJill,

Yeah! So excited you are in a vaccine trial. So sorry about the pain in your back. My hubby had that. Ouch!
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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