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11-12-2010, 10:24 PM
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#1
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Leave of absence :)
As the cranial pressure continues to increase due to the tumor (Central Neurocytomas - unrelated to BC) growth near the Third Ventricle, I will take a 'leave of absence' from this wonderful community.
Not that I thought anybody might notice my 'disappearance'... 
I'm seeing the radiation oncologist on the 23rd, two days before Thanksgiving. The hospital acquired a Novalis Tx (a LINAC) in June and I'm pretty sure that's the new toy I'm going to try out.
So here's my early 'Happy Thanksgiving', 'Merry Christmas and a Happy New Year' (Including 'Chinese New Year' in early Feburary
"I shall return!"
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 11-13-2010 at 06:16 PM..
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11-12-2010, 10:29 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Leave of absence :)
Dear Jackie -
So sorry to hear that you have another (older and recurrent) health condition to deal with in the coming weeks.
Please keep us updated after your rad onc visit on the 23rd. You are a valued member of this site and post some very helpful information.
Wishing you all the best for an excellent outcome of the next treatment. If you should find yourself up in the middle of the night due to being wired from steroids, give us a shout!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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11-12-2010, 10:47 PM
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#3
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: Leave of absence :)
We will be waiting to hear back from you, and I will be praying that you come back soon. My prayers are with you hoping that your health condition will soon improve. Best wishes,
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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11-13-2010, 01:40 AM
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#4
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Re: Leave of absence :)
Dear Jackie. I am so sorry you have to take care of that again on top of BC. I will be thinking of you and waiting for your posts. Sending strength and hugs. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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11-13-2010, 05:36 AM
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#5
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: Leave of absence :)
Hi Jackie,
I hope all turns out well with your "issue" that is NOT cancer. That alone makes it "well," right?
Take care and look forward to your "I'm back" post!
Love and prayers,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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11-13-2010, 05:45 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: Leave of absence :)
Jackie - You are a valued part of this community. Your posts will be missed while you are taking your leave. You will be in all of our thoughts and prayers as you see the radiologist and tackle this treatment to relieve this pressure. May it be a great success in resolving the issues. Hurry back to this site as soon as you can. Pam
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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11-13-2010, 05:49 AM
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#7
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: Leave of absence :)
What do you mean we would not "notice your disappearance"...of course we would. Thanks for letting us know in advance. Good luck with the procedure and update us as soon as you can.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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11-13-2010, 06:28 AM
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#8
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Leave of absence :)
I'll be thinking of you as you do the required treatment---one that gets you back to us as soon as possible. Wishing you the very best...and hope to see you soon!
Barb A.
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11-13-2010, 07:08 AM
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#9
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Senior Member
Join Date: Nov 2010
Posts: 186
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Re: Leave of absence :)
Jackie, I'll miss you! You were one of the first to comment on my posts and private message me, and I was grateful for your kindness and advice. Please try to keep us posted somehow. I will worry about you.
Sending hugs, love, and prayers for healing.
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11-13-2010, 08:15 AM
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#10
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Leave of absence :)
Jackie,
I will miss your posts!!!!
I will also be keeping you in my thoughts and prayers.
Here is my early Thanksgiving, Christmas, New Year
and Chinese New Year love and good wishes back to you.
Return fast...as you are greatly appreciated and loved.
(leave it to you to know about the Chinese New Year)!!!
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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11-13-2010, 08:22 AM
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#11
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Senior Member
Join Date: Oct 2010
Location: Mississauga, Ontario, Canada
Posts: 40
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Re: Leave of absence :)
Jackie,
Your posts and many words of wisdom will surley not go unnoticed. I wish you best of health and hope that all goes well. Look forward to hearing from you again soon. Take care.
__________________
DX April 2010, Age 45
MRM April 2010 right breast
Stage 2b, Her 2 positive, ER-, PR-
Grade 2
1/16 lymph nodes positive
Started TCH June 2010 every 3 wks. x 6
Port installed end of June
Rads x 35
Continue Hercepton for one year.
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11-13-2010, 09:31 AM
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#12
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Senior Member
Join Date: Jan 2010
Posts: 170
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Re: Leave of absence :)
Of course your absence would be noticed by all of us. I know for sure your knowledge and support is valued by us all and we look forward to your return.
I hope everything goes well, and that you are feeling better and you can enjoy the upcoming holidays.
Best regards and well wishes for a terrific outcome,
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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11-13-2010, 09:54 AM
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#13
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Senior Member
Join Date: Mar 2010
Location: Thornhill Ontario
Canada
Posts: 266
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Re: Leave of absence :)
Hi Jackie Will be thinking of you. You seem like a very strong women and will continue to fight these medical problems. I always love reading your posts, you were also one of the first people to welcome me warmly to this site. You take care of yourself and we will hear from you when you are ready to return.
Wishing you are wonderful holiday season and "gung hay fat choy" Love Lois
__________________
August 2008
Lumpectomy left breast
1 tumour 0.9 cm
Her2 negative
lymph nodes negative
venous/lymphatic invasion absent
ER+PR-
Stage I Grade 2
Radiation and Femara
November 2008
Lumpectomy right breast
2 tumours .03 cm and .05 cm and extensive DCIS
.05 tumour Her2+
lymph node negative
venous/lymphatic invasion "indeterminate"
ER+PR low postive
Stage 1 Grade 2
January 2009
bilateral mastectomy
chemotherapy taxotere
Herceptin one year
Femara
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11-13-2010, 10:41 AM
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#14
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Senior Member
Join Date: Nov 2004
Posts: 190
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Re: Leave of absence :)
Good Luck Jackie! Happy Thanksgiving!
Kim
__________________
8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
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11-13-2010, 11:11 AM
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#15
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Leave of absence :)
First let me say that we will miss you during your leave of absence. Is there somebody you can ask to let us know how you are doing during your leave?
I do want to wish you all the best. I hope everything goes well. I will certainly keep my fingers and toes crossed for you as you start on another health care adventure. Take good care of yourself, hang in there and keep putting one foot in front of the other at all times. Every step we take gets us closer to our goals of better health.
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11-13-2010, 11:40 AM
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#16
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: Leave of absence :)
Wishing you the best and will be thinking of you
as you go through treatment.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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11-13-2010, 01:22 PM
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#17
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Senior Member
Join Date: May 2010
Location: Ireland
Posts: 271
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Re: Leave of absence :)
Wishing you all the best as you go through treatment. I value all your posts, you have been incredibly helpful to a lot of us here. Come back soon. Best wishes for Christmas and the New Year.
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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11-13-2010, 03:49 PM
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#18
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: Leave of absence :)
Dear Jackie,
You will be very missed during your leave of absence and we can't wait for your return!! Take care and we will catch you later.
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11-13-2010, 04:34 PM
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#19
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: Leave of absence :)
Jackie, You are a shining example of courage and strength....you will get through this, as you teach us all how to keep going onward. Take the time you need for yourself. In friendship, Ceesun
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11-13-2010, 04:53 PM
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#20
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Senior Member
Join Date: Jul 2010
Posts: 28
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Re: Leave of absence :)
Best Wishes to you for a speedy recovery!!
__________________
IDC 6/2010
ER+PR+HER2+
Lumpectomy & SNB
0/2 nodes
2.7cm
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