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Old 01-12-2012, 08:10 AM   #1
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
News

Hi all,

Wishing you all a lucky New Year!

In a turn of situation it appears that my tumours where not growing as fast as initially thought (wrong measuring in the october scan of the tumours..crazy!) and was able to convinced them that I should have surgery (initially declined).

The right lung was operated on in mid december:
Yes surgeons are pessimist gore and I was told upon waking up that they nearly closed me up when they went in as It had spread to the chest wall and that one of my rib was at breaking up point. I was also told that they pelled off a tumour attached to the 1st to the 3rd rib.. and that they did not think they would bother do the left side of my lung.

However as it turned out the histology report was rather positive and said that the chest wall had not been invaded and that all the margins were clear!

I was called a few days ago to say that if the left side lung tumours are behaving they would be the left side too.

this would mean that cancer would be gone from my vital organs and therefore give me much more extra time for the miracle HER2+ breakthough drug to come through for us all..

Truth I am tired, exhausted in fact, I feel battered and I think I am also quite depressed since the treatments and feeling sh*t as been my lot in the last 2 years. My puppy is doing a good job to get me out of the house every day for a lovely walk which keeps me afloat along with her lovely company. I have become rather sensitive and afraid of pain after being poked inside so many times. Lung surgery was particularly painful I found. I hope that I (and many of us) can have a break from painful and toxic treatment in the near future. I know I should be more grateful at the turn of situation the thing is I have become cynical and I am aware that we have not checked other areas such as my brain (2yrs my last scan)..truth I do not even want to ask for a scans, I know I should be hopeful but instead I have become quite detached to the outcome.

All love
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama

Last edited by fullofbeans; 01-12-2012 at 02:20 PM..
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