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Old 03-18-2008, 03:01 PM   #1
kareneg
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Red face I found out

What has been causing all of my fevers as of lately. I have a very bad UTI. And I feel horrilble, it seems like one thing after another I don't remember the last time I felt good. But I hope to be back to normal soon I started antibotics today hope they kick in fast. Thanks for listening I love you all and pray everyday for all of us.
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Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 03-18-2008, 04:12 PM   #2
Becca
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Karen, glad it was discovered what has been making you feel so bad. Hope you will soon be feeling better. Right now I feel like I am playing around with a UTI, but my onco ran a test last week and said if I did not hear back from him that there is no problem with a UTI. Seems like I get them every few months now, while I never had any problem before.

I am also on abraxane. I take it every week and it has been hard on me. I feel like I have the flu with body aches, weakness, no appetite, slight fever for about 5-6 days-- then it is time for another treatment. I asked for a week off because of Easter and how rotten I feel. (Also I have been dealing with the head/chest cold that so many people seem to have right now). So I did not have a treatment today and hope I will have some better days this week. Does it make you feel this way? I have had 3 treatments so far, and my hair is just starting to come out. Ug, wish I could have kept it. I hope you are tolerating it better. Thank you for your love and prayers. I also pray for you and others on this site.
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Old 03-18-2008, 05:00 PM   #3
caya
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Karen,

So glad it's "just" a UTI. Funny how practically anything other than cancer is looked upon as good now.

Try some sitz baths with epsom salts, it really helps.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 03-18-2008, 05:56 PM   #4
Mary Jo
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Big HUGS to you Karen............... I'm happy the reason for your fevers and how horribly you have been feeling has been figured out.

Praying, praying, praying that your antibiotics kick in QUICKLY.

May God's loving Arms be felt around you Karen................

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 03-18-2008, 05:58 PM   #5
Becky
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Get well soon Karen. Bladder infections are the worst and are my personal weak spot. However, only 1-2 days on the antibiotic and you feel better (but keep taking all the pills - usually Cipro). Drink cranberry juice (juice not cocktail). It helps too!

Love,
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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 03-18-2008, 06:51 PM   #6
Lolly
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Karen, I'm so glad to hear you've gotten to the bottom (so to speak) of the fevers etc. Like Becky says you'll be feeling better soon, but may I add if you don't take probiotics (like Acidophilus pills, or a mixture of A. plus other good bacteria) it would be a good time to start, while you're on antibiotics as they tend to wipe out ALL bacteria good and bad and can lead to a yeast infection once you've got the UTI cleared up. As we all know, yeast infections are no fun either, and I've found that a twice daily dose of one or two Acidophilus gel caps keeps the bad yeasties away.

You can find a good probiotic at any health food store and some grocery stores in their natural foods section. They're good for intestinal health too.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 03-18-2008, 06:55 PM   #7
Faith in Him
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Karen,

I hope you feel better real soon. Praying for you too.

Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 03-18-2008, 08:40 PM   #8
Bill
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Hey Karen, I'm glad you found out what is causing the fever, but I'm sorry you feel so bad. Like Lolly said, (In case you don't know her, she is the little hottie playing all kissy-face with Dennis Hopper), try to eat some yogurt to help replenish your intestinal bacterium wiped out by the anti-biotics. I love you, Karen
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Old 03-18-2008, 09:44 PM   #9
sassy
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Karen,

Glad you found this answer and that you will be feeling much better soon.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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