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Old 12-27-2008, 02:24 PM   #21
StephN
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Location: Misty woods of WA State
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Dear Marie -

How did the Scream Ride go? Feel better now?

Just wondered when the radiation (spine) date is, if it is set yet?? We need to be directing our prayers to that date for you and Mighty Oak to achieve a good result!

Sorry that doc was such a pain in the posterior, but you knew just how to handle him and get your "patient" where he needed to be to settle down and rest. I might not have gotten through it without giving that rude doc a swift kick out of sheer frustration!

There is a universe of love coming your way, so just draw on that strength to keep up the good fight.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 12-27-2008, 03:11 PM   #22
charlotte
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Marie , and to the mighty oak.... you are in my prayers... hope next procedure goes well.. We love you and the mighty oak... please let us know how things go.
Charlotte
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Old 12-27-2008, 03:48 PM   #23
IRENE FROM TAMPA
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Marie you hang in there my friend.....
I am sorry to hear about Ed's mets to the spine now. They have me on Zometa along with the treatment for my spine mets. Hang in there you two, the next regimine will work again. I know all of this is very trying but we have to keep fighting.

And as for you my friend...get on your meds and try to relax. We love you both and are always thinking of you two.

This has been a very bad year for me also. They started me on 10 mg of Lexapro and that seems to calm everything thing down very nicely.

You both take care
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1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 12-28-2008, 02:55 PM   #24
schoolteacher
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Marie and Mighty Oak,

The medicine for the bone mets sounds interesting. This is the first chance I have had to get on the board after school let out for the holidays.

I hope you and the Mighty Oak have had a good Xmas.

Amelia
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Old 12-28-2008, 03:53 PM   #25
belle
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Dearest Marie,

Let me also give you a warm hug and encourage you to take care of yourself. I hope the treatment will go well for your Mighty Oak. Don't go down too deeply into scairy rollercoaster. Everything will be all right. Please do manage to give time for yourself and do something you enjoy doing, that switches your concerns off for a while. Maybe not now, if you think so, but in general. You need it for everything good to keep you and Ed going.

Love,
belle
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