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Old 03-06-2007, 04:10 PM   #21
Carol H.
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Join Date: Jan 2007
Posts: 27
Thanks for that imformation. I did buy some aloe vera from the drug store but it had all kinds of other ingredients including alcohol which is really bad to use. I'm going to the health food store right away. I did wash the plant really good. CarolH
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Carol H., Florida
Right Breast 11-28-06
Lumpectomy
Infiltrating Carcinoma
Stage 1
Grade 11
1.5 cm
Sentinel Lymph Node Neg.
ER-
PR-
Her2+
Fish 2.5 Amplied
KI-67 20%
Radiation= 6 weeks
Refused Chemo & Herceptin
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Old 03-06-2007, 04:44 PM   #22
Mary Anne in TX
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Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
Update - I'm just healing away! My back itches a bit where it exited, but it's more irritating than anything cause I can't reach it to scratch!

It's sort of like growing new hair...this growing new skin! Kinda nice! I'm amazed at how quickly it is peeling and growing back. ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 03-06-2007, 09:15 PM   #23
Lolly
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Join Date: Aug 2001
Location: Oregon
Posts: 1,756
Carol H, I didn't mean to sound critical! Sorry if it came across that way. I know what you mean about trying to find pure aloe gel, as most of them contain some type of preservative and then thickening agents, fragrances, etc. I did find a good one called "Lily of the Desert". It's a bit thin, but it worked just fine. Good luck.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 03-07-2007, 05:26 AM   #24
Carol H.
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Join Date: Jan 2007
Posts: 27
Hi Lolly, I didn't talk it as you being critical. You gave me some important information that we all can use. That's what this wonderful site is all about, sharing info with the bravest group of people I have ever known. CarolH
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Carol H., Florida
Right Breast 11-28-06
Lumpectomy
Infiltrating Carcinoma
Stage 1
Grade 11
1.5 cm
Sentinel Lymph Node Neg.
ER-
PR-
Her2+
Fish 2.5 Amplied
KI-67 20%
Radiation= 6 weeks
Refused Chemo & Herceptin
Carol H. is offline   Reply With Quote
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