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Old 06-14-2017, 05:28 PM   #1
phil
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Re: Good and Bad News

SOOOOOO Good to hear from you - lots of good advice here . Fern's drug co. Puma , is giving more compassionate use than most ( all ? ) small co.'s for neratinib , and deserves our Stage IV praise. Perhaps they would like to bring more compassion to Europe ...Cascadian that makes tucatinib doesn't seem as Stage IV friendly , even though they use us for the testing . I believe the times are changing - more compassion is coming . ask for it .
I am sending Blessings your way
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Old 07-19-2017, 02:27 AM   #2
Paula O
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Posts: 954
Re: Good and Bad News

Michka, We are rooting for you. I'm sorry you are going through this. I wish you weren't. If you were my neighbor I would be knocking on your door today with a bouquet from my flower garden, dinner for your family, and an offer to clean your house or to do something you need done. I bet lots of people here wish they were there with you to help you in practical ways during this difficult time. Please know our hearts are with you and we are thinking of you. How is your family doing through all this rough stuff? If you feel like talking we're here for ya. I am lifting you in prayer right now. (((Hugs))),Paula
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Old 11-27-2017, 12:48 PM   #3
StephN
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Location: Misty woods of WA State
Posts: 4,128
Question Re: Good and Bad News

Hello everyone,

I am thinking a lot about Michka. Has anyone heard from her? Maybe I have missed a post somewhere.

Sending strong positive wishes and hugs for healing to you, Michka.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 11-28-2017, 07:12 AM   #4
Hopeful
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Re: Good and Bad News

Steph,

If you go to the Members List portion of the site, you can look up any member and the date they last visited the site (which is not the same as posting, just means the person logged in). Her last visit to this site was August 18th.

Hopeful
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