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Old 08-20-2010, 07:45 AM   #1
Mary Jo
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Turmeric

My oncologist asked me yesterday "do you still take turmeric" and when I said I did he said "good!" Geez, when you oncologist says "good" to supplements you know you should be taking that one. Haha!

My question for you all is, how many miligrams of Turmeric do you take a day? My bottle says 900 mg. and I take 2 of those a day - 1 in the a.m. and 1 in the late afternoon.......1800 mgs. per day.

Share with me please.

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

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Old 08-20-2010, 09:47 AM   #2
Mary Jo
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Re: Turmeric

You-whoooooo!!!! Anybody?
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 08-20-2010, 10:00 AM   #3
Rich66
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Re: Turmeric

Nutrivene Longvida Curcumin
http://www.nutrivene.com/view_item.php?ProductID=331&
800-899-3413

Mom's been using this one since it seems to be more absorbable...an issue with most supplements and especially with Curcumin.
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Old 08-20-2010, 10:42 AM   #4
ElaineM
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Wink Re: Turmeric

I take 300 mg of curcumin a day. I also use tumeric in my cooking daily.
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Old 08-20-2010, 05:05 PM   #5
tricia keegan
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Re: Turmeric

I don't take it, but will check out Rich's link and decide
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 08-20-2010, 05:05 PM   #6
Becky
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Re: Turmeric

I take 545mg a day. I did read somewhere that the average portion of curried chicken contains 204 mg of curcumin so i figured my pill is like eating something with curry twice a day. I take it with my evening meal (as I do my vitamin d and others) because it is best absorbed with some fat and there is more fat in the evening meal (at least for me there is).
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Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 08-20-2010, 05:41 PM   #7
1rarebird
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Re: Turmeric

I normally get a little over 1800 mg per day of curcumin from Swanson's Curcumin Complex 95% curcuminoids---spread out over the day at 600 mg per meal. That is the amount in line with the recommended dosing in the Edge-Cam at Nosurrenderbreastcancersurviorforum.org. But I have to temporarily stop all supplements (except for calcium and vitamin D3) in preparation for my thyroid surgery next week. I expect to resume supplements afterward.

bird
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Male Breast Cancer, DX 5/15/09, IDC, STAGE 1, 1.7 cm, HER2+++, ER+(95%)/PR+(75%), Ki67 40%, grade 3, 0/5 nodes, TX: mastectomy, TCH finished 7/19/10, radiation 6 wks., Tamoxifen on going, bisphosphonate 24 mos.

Last edited by 1rarebird; 08-20-2010 at 05:43 PM.. Reason: additional information added
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Old 08-20-2010, 11:33 PM   #8
Sherryg683
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Re: Turmeric

I take 2000 mg turmeric and have been doing so since stopping chemos. I also take 600mg grape seed and 1000mg of green tea. This was what was suggested to me by a nutritionalist when I was first diagnosed. I'm too superstitious to stop it now. I do need to go out and buy my tumeric,I'm out of it...sherry
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Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

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Old 08-21-2010, 07:42 AM   #9
caya
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Re: Turmeric

I take one cucurmin pill - 500 mg./day with my dinner. I guess I could take another one ?

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
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Old 08-21-2010, 08:22 AM   #10
Delaney
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Re: Turmeric

Anyone take it while still on chemotherapy? At stage iv I expect to be on some sort of chemotherapy indefinitely but would like to take it if I can.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 08-21-2010, 11:42 AM   #11
Becky
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Re: Turmeric

I took 3 (each capsule is 545mg) per day when I was on the Taxol portion of my chemo because there were studies saying that taxanes and curcumin are synergistic.

I also took alot more maitake extract capsules while on Herceptin because supposedly the beta glucan in the mushroom also helps Herceptin work. Who knows for sure but I am still here.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 08-21-2010, 01:26 PM   #12
Delaney
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Re: Turmeric

Thanks Becky, and thanks Mary Jo for the information on turmeric. None of the chemos have worked for me so far, maybe I'll get lucky with supplements. This website is great, so helpful!
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 08-21-2010, 03:09 PM   #13
Joan M
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Re: Turmeric

Thanks for this discussion on tumeric. I have both the pills and the spice. About two months ago I asked a nutritionist about the benefit of taking the pills and how much to take, and she said that is was better to add the spice to food and not take the pills. I wonder about whether doing that is actually better or if it was just her perspective of getting nutrients directly from foods and spices rather than supplements. So, she never really answered my questions about how much to take in pill form.

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 08-21-2010, 03:37 PM   #14
Becky
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Re: Turmeric

That's kinda why I only take one pill as it equals 2 servings of chicken curry. But with a taxane, they used much more to get the syngergy.

See ya soon
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 08-21-2010, 04:39 PM   #15
Rich66
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Re: Turmeric

Everything I've seen suggests the main issue is whether a formulation of Curcumin (the "active" part of turmeric) bioavailable enough to have any effect. There are researchers developing high tech versions to do this. The Nutrivene seems to me to be the closest thing to a highly absorbable OTC supplement. I don't suspect a sprinkle on a salad is doing anything beyond taste.
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Old 08-30-2010, 07:47 PM   #16
Laurel
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Re: Turmeric

Anyone ever try curry on eggs? Seriously, it's delicious! An MD who specializes in natural treatment told me to take as much turmeric as I could tolerate. I take several caps/day.
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Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

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Old 08-30-2010, 08:17 PM   #17
ElaineM
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Wink Re: Turmeric

I sprinkle a little tumeric into vegetable omlets. It is good that way.
By the way, don't forget. Some kinds of mustard have tumeric in them. You have to look at the ingredients to make sure it is in there along with mustard seed and other ingredients.
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ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 08-30-2010, 10:15 PM   #18
Jean
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Re: Turmeric

I take pill form and use in my cooking. Also helps with joints (those of us on AI may be happy to know this) and the liver.
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006

Last edited by Jean; 08-30-2010 at 10:34 PM..
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Old 09-02-2010, 01:08 AM   #19
jhandley
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Re: Turmeric

Life Extension Foundation have a formulation with black pepper that is very well absorbed.
Jackie (down under)

Last edited by jhandley; 09-02-2010 at 01:08 AM.. Reason: spelling
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Old 09-02-2010, 02:24 AM   #20
Ellie F
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Re: Turmeric

Hi
I also took a supplement with pepper in to aid absorption and bioavailability.
Due to low platelets I had to stop taking it which is a shame but like Becky I took quite a bit when having taxotere and also increased my beta glucan intake. Who knows if it works but we have to hope!!

Ellie
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