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Old 09-17-2012, 07:31 PM   #21
Mandamoo
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Location: Melbourne, Australia
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Re: Wanna be part of a group get well card to the founder of this site?

Christine
You insight has resulted in worldwide connections - allowing us in far flung reaches of the world to access wonderful information and support.
thank you,
Amanda (from Australia)
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Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis

June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions

Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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Old 09-17-2012, 09:19 PM   #22
Pray
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Re: Wanna be part of a group get well card to the founder of this site?

Dear Christine,

What an amazing woman you are! What wonderful insite you and your husband must have had to put this site together 10 yrs ago! Awesome! To watch it grow to the site it is today and the amount of people it has reached from every corner of the world and I'm willing to bet all the states here! We have all been so blessed to have it. To think of all the growth in the her2 field you have witnessed in the passed 10 yrs.on this site it is stunning. Thinking of all the people who have benefitted from the vast knowlege here! The future here is never ending, it is simply mind blowing to me! You and Joe have givin the greatest gift in our treatment, mindset, and I think most of all an inspiration to us all to fight as hard as we can and for us to share it. There is so much out there for us. So much to come.

I know for my self the night I stumbled accross this site was the bigging of my fight. It was already a year out from my dx and I had dug myself into a pretty deep hole of depression. All the wonderful people on this site gave me hope when I thought I had none. Thank you so much. I am humbled by your strength, courage and your unstoppable drive to help others. I pray you are doing better. Gods blessings to you wonderful woman.
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dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 09-19-2012, 01:01 PM   #23
Paula O
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Re: Wanna be part of a group get well card to the founder of this site?

Welp. thanks to you guys, I just printed out 6 pages of copied and pasted heart- felt well-wishes for Christine and put them in a Get Well card. I'm sure it'll brighten her day knowing we are thinking of her. Thanks for joining me. Her's and Joe's decision to put together this website sure has been a wonderful resource for all of us with a long-term "ripple effect" of blessings, huh?

The get well card just went in the mail. If you didn't get a chance to add to this but want to send her a message, the address is above in this thread--please don't add any more messages to her here in this thread as the card has already gone out.


Have a great day, everybody,

Paula
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Old 09-19-2012, 05:30 PM   #24
chrisy
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Re: Wanna be part of a group get well card to the founder of this site?

Paula, Let me know if you want me to close this thread, okay?
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 09-20-2012, 02:44 AM   #25
Paula O
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Re: Wanna be part of a group get well card to the founder of this site?

Sounds like a good idea, Chrisy. Thx.
Paula
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