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05-24-2008, 03:36 PM
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#1
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Turmeric/Curcumin
I was taking 500 mg a day during my two week chemo break after surgery. My blood work was fantastic during this time. I am afraid to take it now that I am back on chemo but plan on taking it again when I am done. How much are you taking?
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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05-24-2008, 09:53 PM
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#2
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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My doctor has okayed me taking tumeric during chemo. She said the are doing clinical trials on tumeric at M.D. Anderson and getting good results. I take 500 mg -2000mg. I do much better when I take it, however, sometimes I take breaks, just because I run out and forget and to buy more or just plain forget to take it. Sounds like it it working well for you.
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05-25-2008, 02:10 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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I hope you're taking it with food or it could burn the stomach. I take it also and suggest it to friends with cancer.
stay well, stay strong
sarah
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05-25-2008, 02:13 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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a question: how do you take it - all at once, over the day?
thanks
sarah
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05-25-2008, 11:07 AM
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#5
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Senior Member
Join Date: May 2006
Posts: 3,142
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Tumeric/Curcumin
Hi,
I take it too. It is supposed to be anti inflamatory. There was also some research and information regarding its benefits and use with Herceptin. I must have it saved on my computer somewhere. I will post it if I can find it.
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05-25-2008, 02:53 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I take 550mg (one capsule) and take it after breakfast. I wish I had known about it while still on chemo as it has syngergistic effects, especially with taxanes.
With chemo, I got the go ahead with this as well as the fish oil (omega 3) and a multi but that was it. I did Herceptin alone so I really did the gamit with supplements for a variety of reasons then (including CoQ 10).
Go for it!
Remember that a nice curry meal can substitute and equals about 250 mg.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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05-26-2008, 05:42 AM
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#7
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Just a thought....to tag on....
I also cook with tumeric, I put two heaping tablespoons
into my rice.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-26-2008, 11:08 AM
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#8
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Senior Member
Join Date: May 2006
Posts: 3,142
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turmeric/curcumin
Hi,
Turmeric on rice sounds good. Has anyone tried it on Asian style noodles? That's very good. I will try it on rice and veggies. Speaking of CQ10----- it is supposed to help the heart. I have taken it for 9 1/2 years. I have taken Herceptin for over 7 1/2 years, so maybe it is helping prevent the possibility of heart problems from Herceptin.
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05-26-2008, 05:01 PM
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#10
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Senior Member
Join Date: Sep 2005
Posts: 556
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Usage of curcumin during chemo looks controversial. Is it better to avoid during chemo?
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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05-26-2008, 08:47 PM
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#11
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Senior Member
Join Date: May 2006
Posts: 3,142
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turmeric/curcumin
Hi,
My doctor gave me some results of a scientific study about turmeric/curcumin and Herceptin. According to the document it may enhance Herceptin, but I never read anything about its effect on chemo. I guess we have to decide for ourselves whether or not we want to try it. I posted some results and a place to find out where to get more information about tumeric earlier.
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05-30-2008, 08:27 PM
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#12
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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I have been taking 2000 mg curcumin daily since ending chemo 2 years ago. I have been on Herceptin ever since. Since I have been NED since, I am afraid to change anything that I may be doing right..sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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05-31-2008, 05:57 AM
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#13
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Is tumeric and curcumin the same thing or 2 different things? Is it combined in a capsule or you take one tumeric and one curcumin?
Thank you........
MJ
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-31-2008, 09:53 AM
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#14
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Hi Mary Jo,
My bottle is labled Turemic/Curcumin so I am thinking they are the same thing. Does anyone else know for sure?
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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05-31-2008, 10:14 AM
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#15
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Tumeric is the actual herb. Curcumin the the component in the tumeric that gives food the food its yellow color. For example, tumeric (powdered) is one of the ingredients in curry powder. Curry powder is yellow because of the tumeric (which contains the yellow "molecule" curcumin). It is curcumin that is the active.
Another way to look at it is tea is good for you. You drink tea. The actives in tea that make it good for you is the ECG (whatever - I forget the letters but you know what I mean)!!
You eat tumeric but it is the curcumin in tumeric that is the good stuff.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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06-01-2008, 03:38 AM
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#16
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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I add tumeric to my homemade chicken soup stock - gives it a great golden color. I also add it to my red sauce - no one knows it's there except me. When I can remember, I sprinkle just a tad on my salads.
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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06-01-2008, 07:44 AM
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#17
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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My husband adds it to his oatmeal along with garlic, red pepper, honey, and I can't remember what else. Looks and smells awful, but seems to work for his heart!!! I avoid him for about an hour, but surely am glad he's so healthy! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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06-01-2008, 08:37 AM
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#18
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Senior Member
Join Date: Nov 2005
Posts: 943
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I love curry chicken and tumeric spices in cooking and I supplement with tumeric tablets when I lack curry in my diet.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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06-01-2008, 08:53 AM
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#19
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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I would like to take curcumin, but it gives me terrible ( I mean within minutes) bloating and you know what! Any suggestions ?
Kim
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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06-01-2008, 12:02 PM
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#20
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Senior Member
Join Date: May 2006
Posts: 3,142
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tumeric/curcumin
Hi,
I add a little tumeric/curcumin to vegetarian chili and to Asian noodle dishes, especially the ones with soup. Nobody knows. Maybe we can add a little of it to some pasta dishes that are eaten with tomato sauce. I have to try that. I also read that we can add a little blackstrap molasses to chili to add more iron, calcium and potassium, but I never tried that.
I wonder if a couple chewable digestive enzymes available at most health food stores would help the folks who have indigestion after eating things with a little spice! They help me when I have a little indigestion.
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