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09-01-2009, 05:01 AM
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#1
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Facebook???
I saw someone's post just now noting something about Facebook - but I thought - gosh! Would love to see more of us on Facebook --- I'm on and I try to visit it everyday - but would be nice to see if those who are on Facebook - could put their info on the signature line so we could start connecting there too?
I find that the email portion here on this site is okay - but I tend to lose notes as I type them (site times out) and then the space is not big - and I haven't figured out how to delete only portions of the emails - seems you have to delete all....
? Anyway - I'm changing my signature to add Facebook...
thoughts from you all?
Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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09-01-2009, 05:17 AM
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#2
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Re: Facebook???
Hey girl, I broke down and started a Facebook account, I am private and paranoid since identity theft in the early '80's. I do not talk cancer there because I connect with friends and I like them to keep up with 'Marie'. Besides, anyone who is anyone is right her at Her2support! Use my Yahoo e-mail if you want my full name (+yours), I have to empty my full mailbox here.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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09-01-2009, 05:56 AM
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#3
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: Facebook???
Marie - I totally agree - on the Identity stuff - thats why my Facebook and Her2 is Karen Wheel. But also, I didn't answer any of the stuff that Facebook wanted me to post there - I only put my bare basics there as they do really it out there, so to speak. And, working in Information technology and with x-hackers for years in the US (McAfee and Cisco Systems) one should be careful what you post out on line. With Facebook I have a ton of photos and I post personal stuff (same as you said) I don't talk cancer as, well, many of my friends still don't know I have faced this ... and since many of my friends from the US - they just share info on Facebook, so I don't want to send them a note and say - hey! Did you hear I have (had!) breast cancer - and BTW its Her2 and well, I might be f-d!? So, yah, I leave it out! :-) hee hee.
I don't have your email - I did send your mom a note as I wanted to send you some stuff that might help Ed. So send me a note - at karen_mppseattle@hotmail.com.
THANKS! Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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09-01-2009, 07:02 AM
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#4
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: Facebook???
Hej Karen,
I'm on facebook as Hinz DuBose. I don't have cancer details there but do have a family picture. Send me a friend invite or tell me how to find you and I'll send you one.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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09-01-2009, 07:03 AM
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#5
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: Facebook???
Duh, I guess I should have read your signature first :-). Just saw that you have yours in it. Will try tonight when I'm not at work.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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09-01-2009, 07:14 AM
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#6
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: Facebook???
I sent you a friend request - and hey - I'm the same way - I just blame it all on the drugs! :-)
OH! And my email -for you Marie ---
try wheelistic@yahoo.com
As.... my other email - doesn't show up correct - as it underlines the entire email address - and my hotmail has a "underscore" between the karen and the mppseattle... and it doesn't show up when the post on the thread shows...
Okay, I'm losing it!
;-)
Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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09-01-2009, 08:15 AM
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#7
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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Re: Facebook???
Laureen Kessel Hunter. someone started a her2 group on facebook too.
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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09-02-2009, 03:42 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Facebook???
I'm there too, look for me under my name here or on the her2 survivor's group!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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09-05-2009, 08:40 AM
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#9
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Guest
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Re: Facebook???
Can't find the site?
Randi
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09-05-2009, 08:55 AM
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#10
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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Re: Facebook???
I am Dana Mast Timmerman on Facebook. I socialize and relate to Facebook friends on many different levels. It's good balance.
Love,
Dana
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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09-05-2009, 09:27 AM
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#11
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Senior Member
Join Date: Sep 2009
Location: Georgia
Posts: 25
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Re: Facebook???
I just joined the Facebook Group as I just joined this group the other day. I'm on facebook often. Also, I'll be taking my laptop to my chemo/herceptin treatments. My laptop, facebook and your group will be my "comfort item". I had my laptop with me just before surgery and it was great. It seems like WiFi is everywhere!
__________________
Lori, age 45, married mother of 2 boys
age 13 and 9
Diagnosed 7/15/09
Infiltrating Ductal Carcinoma
ER+, PR+, HER2+
2.5 Tumor
Grade 3
Stage 2A
BRC1/BRC2 NEGATIVE
8/18 Lumpectomy
8/18 Sentinal Node Biopsy
clear nodes
clear margins
9/16/09 TCH Treatment
Taxotere, Carboplatin, Herceptin
Every 3 weeks for 18 weeks total
Herceptin every week until 18 weeks
then every 3 weeks until 52 weeks are done
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