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Old 02-19-2011, 05:52 PM   #1
bejuce
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Lower back soreness for two weeks - should I request a bone scan?

I had my period return unexpectedly on the 1st, and with it I
got a sore lower back (between the spine and the right side of my back above my hips). I took a couple of Motrin and that seemed
to do the trick, but the sore feeling has never really gone away for
good, although it seemed to get better. Last night I felt it a little more, and being the 19th, I'm wondering if it's not the time
to get a bone scan. I'd hate to get a scan every time I feel something, but this has been bugging me, albeit more on the emotional/mental side of things rather than the physical one.

To those of you who've had bone mets, what were the symptoms? From
what i've read online, bone pain seems to be deep and excrutiating, and I'm certainly not feeling that, but on the other hand I don't want to wait for
pain to get worse before checking it out.

So, what to do? How do we know to ignore lower back soreness/pain that may be due to age, Tamoxifen, carrying kids around and to monitor bone pain due to possible mets more closely? Would the pain be any different?

FYI, the soreness/pain I've been feeling is very localized and I'm pain free elsewhere.

Thanks!!!
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 02-20-2011, 03:11 AM   #2
Trish
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Re: Lower back soreness for two weeks - should I request a bone scan?

My bone mets are extensive and I certainly don't have deep and excruciating pain. I have a few occasional pains in different places but have no idea if they have anything to do with the mets. People experience symptoms differently. I think you should discuss your anxieties with your oncologist. Do you have tumour marker blood tests? That may give you a clue as to whether there is metastatic activity.
Good luck with your decision.
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004
6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006
oopherectomy, Arimedex
12/2006
liver mets largest 9cm
1/2007
Herceptin,
3/2007
Taxol + Herc
1/2008
Herc alone
4/2008
Multiple bone mets,Zometa
7/2008
Herc + Gemcitabine
8/2008
Herc+Navelbine/vinoralbine
10/2008
Herc+Carboplatin+Taxol
12/2008
Tykerb+Xeloda
2/2010
Herceptin + trial drug
5/2010
Herceptin+Tykerb
8/2010
Tykerb+Abraxane
9/2010
Abraxane
12/2010
Abraxane+Tyk+Herc
4/2011
Tyk+Herc+Femara
6/2011
Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011
Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011
Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 02-22-2011, 05:24 PM   #3
Barbara2
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Re: Lower back soreness for two weeks - should I request a bone scan?

Recently I wanted to see my family physician to get answers to several questions. He was not there, so I saw his P.A. instead, and asked her if there was a difference between muscle/bone pain. Answer: Bone pain is more constant; it doesn't hurt as much when pressing on the area. Muscle pain hurts when pressing on it; it can last quite a while. Weeks? Yes, weeks.

That brought some peace of mind and my aches eventually got better. One suggestion I would have for you is to use a heating pad to see if that makes a difference. I leave a heating pad beside the bed 12 months of the year. When there is an ache somewhere, I get it out when going to bed, and put the temp on low. The pad autimatically shuts off in about 30 (?) minutes. I find that the heat often helps. I usually will take Motrin or something similar, too, sometime during the day, and as you said, it makes the ache feel better.
__________________
Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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Old 02-24-2011, 08:43 PM   #4
Barbara2
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Posts: 621
Re: Lower back soreness for two weeks - should I request a bone scan?

How is your lower back soreness?
__________________
Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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Old 02-25-2011, 02:27 PM   #5
bejuce
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Re: Lower back soreness for two weeks - should I request a bone scan?

Thank you so much for checking on me, Barbara! I tried the heat pad and my pain is much better. I felt a little bit this morning, but I'm starting to think that it's either due to positioning in bed during sleep or strenuous play with the kids and the dog... At least I sure hope so!
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 02-25-2011, 04:12 PM   #6
tricia keegan
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Re: Lower back soreness for two weeks - should I request a bone scan?

Hi Bejuice,

I gave myself a lot of unnecessary scans and two months of stress to finally discover I had Sciatica!! I'm glad your pain is easing but my experience taught me not to demand a scan quite so quickly while still remaining vigilant of course.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-25-2011, 10:47 PM   #7
Barbara2
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Re: Lower back soreness for two weeks - should I request a bone scan?

I've done the same thing, Tricia, with requesting tests; often probably sooner than necessary, but I wanted peace of mind or to find out what was going on. It's so hard to wait and worry, wait and worry. All of us know all about that.

I'm glad you got some relief, bejuce. The ache is probably more worrysome than painful and the worrying likely makes the pain even more noticable. I often have an ache similar to what you are describing, and I've finally concluded that it must be muscular. I do have sciatica flairups too, but that is different than this.

The ache can be on both sides (towards top of buttocks) or on one side. Because I now realize that this ache continues to show up now and then, I don't fret about it like I used to. Today when using the tredmill, the ache started up on the right side, but went away before I was finished walking. Whenever it sticks around for a longer time, I've learned to take Motrin (or whatever) and faithfully use the heating pad at night.

You may want to use it for several nights, too, until the ache decides to give you a break for a while. There's something about that gentle heat that seems to make muscles feel better.

Oh! Another favorite that I use on aches, are the sticky patches you can buy that are applied to the sore area. I usually buy them at Wal-Mart; on the box it says for "temporary relief of minor aches and pains of muscles and joints." My husband loves them too; they work fairly quickly and are effective.
__________________
Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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Old 02-25-2011, 11:13 PM   #8
Trish
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Posts: 434
Re: Lower back soreness for two weeks - should I request a bone scan?

I like the sound of the strenuous play with dog and kids. The dog is adorable and I'm sure the kids are too. Glad the back is better.
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004
6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006
oopherectomy, Arimedex
12/2006
liver mets largest 9cm
1/2007
Herceptin,
3/2007
Taxol + Herc
1/2008
Herc alone
4/2008
Multiple bone mets,Zometa
7/2008
Herc + Gemcitabine
8/2008
Herc+Navelbine/vinoralbine
10/2008
Herc+Carboplatin+Taxol
12/2008
Tykerb+Xeloda
2/2010
Herceptin + trial drug
5/2010
Herceptin+Tykerb
8/2010
Tykerb+Abraxane
9/2010
Abraxane
12/2010
Abraxane+Tyk+Herc
4/2011
Tyk+Herc+Femara
6/2011
Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011
Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011
Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 03-11-2011, 11:07 PM   #9
Barbara2
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Posts: 621
Re: Lower back soreness for two weeks - should I request a bone scan?

It's been about 3 weeks since you posted regarding lower back soreness. How does it feel now?
__________________
Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
Barbara2 is offline   Reply With Quote
Old 03-13-2011, 10:51 AM   #10
LoisLane
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Re: Lower back soreness for two weeks - should I request a bone scan?

Hi ladies thought I would just join in the conversation here about bone pain. I also have the heating pad beside my bed. I seem to always have aches and pains. Probably a lot is from the Letrozole. I did have a bone scan a few months ago because of a constant pain in my left leg that was there for probably 6 months. Bone scan was clear. I have also had a US of right shoulder last July because of constant pain. This pain turned out to be calcified tendonitis. I need to get to physio to have that dealt with and get started on some exercises for that. Lately this right shoulder is really painful constantly. I know that I had the bone scan just recently. I hope nothing could pop up in the bones that quickly to cause in the increase and severity of pain. I have been also taking Mortin or advil and it seems to work for a while.
These aches and pains could drive you crazy with worry some times but I keep telling me self relax you just had the bone scan. Any thoughts? Best wishes and continued good health to all! Lois
__________________
August 2008
Lumpectomy left breast
1 tumour 0.9 cm
Her2 negative
lymph nodes negative
venous/lymphatic invasion absent
ER+PR-
Stage I Grade 2
Radiation and Femara

November 2008
Lumpectomy right breast
2 tumours .03 cm and .05 cm and extensive DCIS
.05 tumour Her2+
lymph node negative
venous/lymphatic invasion "indeterminate"
ER+PR low postive
Stage 1 Grade 2

January 2009
bilateral mastectomy
chemotherapy taxotere
Herceptin one year
Femara
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Old 03-13-2011, 12:23 PM   #11
bejuce
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Re: Lower back soreness for two weeks - should I request a bone scan?

Thank you so much for checking up on me, Barbara! The pain is gone and I'm very thankful I can breathe a little easier. Yesterday though I woke up with a very sore spot on the side of my right armpit where my lymph nodes
were taken out. I hope it's a pinched nerve and not
a sign of lymphedema or another node popping up. When it's not something, it's something else, isn't it? Such is the life with cancer...
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 03-13-2011, 05:07 PM   #12
Mom2threegirlz
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Re: Lower back soreness for two weeks - should I request a bone scan?

Hi All

Bejuce- thank you for posting to this message board. I have been terrified for a week now about back pain in my mid-back. Can't tell if it is just pain hanging on from taxotere, muscle strain, or of course the concern about bone mets. I have had many sleepless nights. I am please that you were in the same spot but had it resolve on its own. If it is still there in 3 weeks when I go in for my next Herceptin my doc is going to do a bone scan. I hope it gets better just as you experienced.
__________________
-------------------------
Diagnosed with Stage 1 IDC Sept 2010 (age 40)
1cm tumour and .18cm tumour in extensive bed of DCIS
ER+ PR+ HER+ grade 3
Technically Node Negative but Isolated Tumor Cells in 2 lymph nodes


Left Mastectomy Oct 2010
Chemo (TCH) Nov 2010 to Jan 2011
Currently doing chest wall radiation
Herceptin until fall 2011
Tamoxifen
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Old 03-15-2011, 01:49 PM   #13
tricia keegan
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Re: Lower back soreness for two weeks - should I request a bone scan?

Bejuice, I still get pains now and then where my nodes were removed and think it's common with cut nerves etc so hope yours subsides.

Mom2threegirlz- aches from chemo can hang around for months and as you're still on herceptin I'd guess it's simply your body has'nt fully recovered as yet
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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