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08-12-2010, 05:51 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I am Fine - but bad new for my sister
I probably should have said something before but as you know, I tend to keep things in (and I am a last minute person too). On August 9 my sister had a stereotactic biopsy due to a small (8mm) area of clustered calcifications. Unfortunately, she was diagnosed with DCIS. She couldn't wait until next week to find out and kept calling until she heard. She will find out the prognostics next week (ie: ER, PR etc) and needs to at least get a lumpectomy and radiation (I did not want to get into anything more such as not getting clean margins or if the lumpectomy shows a small invasive component). Baby steps. Although I tested negative for the BRCA genes, there is something going on in my family as my mom was diagnosed 4 months after me. So... I am very worried as I still have my breasts. Baby steps for me too. Please pray that there is no invasive component for my baby sister and it stays dcis. I have another sister and pray for her too.
Thank you in advance.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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08-12-2010, 07:30 PM
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#2
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Re: I am Fine - but bad new for my sister
Oh Becky, I'm so sorry. Your sister, you and your family are at the top of my prayer list.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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08-12-2010, 07:33 PM
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#3
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Re: I am Fine - but bad new for my sister
Sweet Becky,
I'm so sorry to hear about your sister. It does sound like there is some sort of familial connection. I can tell from your post how worried you are about her. I'm sure she feels great comfort in knowing that you are there to help her through. She is so lucky to have you as her sister.
Keeping you in my thoughts and prayers.
Love and hugs to you,
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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08-12-2010, 07:49 PM
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#4
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: I am Fine - but bad new for my sister
Sorry to hear about your sister Becky. This disease sure sucks.
Praying for the best possible news for her.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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08-13-2010, 01:10 PM
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#5
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: I am Fine - but bad new for my sister
I know how difficult it is to see one's sister through this crummy disease. Wishing her the very best news possible as she does the "baby steps", and you the strength you need to support her.
Barb A.
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08-13-2010, 01:29 PM
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#6
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: I am Fine - but bad new for my sister
Becky, I'm so sorry your sister is dealing with this disease too but really hope for "Just" DCIS and minimal treatment.
Please keep us posted!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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08-13-2010, 01:59 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: I am Fine - but bad new for my sister
Becky ~
I will keep you and your family in my thoughts and prayers. I can only imagine how many hard decisions you feel you need to make and I'm so sorry you are faced with this now.
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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08-13-2010, 02:04 PM
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#8
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Senior Member
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
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Re: I am Fine - but bad new for my sister
Becky,
I think there is just an epidemic of this disease. I have no family history, yet I have it. To date my sister is OK. But, a lifelong friend who was born the same day as me and went all through school with me found a lump about six weeks ago. It is estrogen fed breast cancer that has already spread to her vertabra and one rib. As others have said, "This disease sucks!"
Your sister is in my prayers for only DCIS that will require very little treatment.
Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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08-13-2010, 03:06 PM
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#9
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Senior Member
Join Date: Sep 2005
Posts: 556
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Re: I am Fine - but bad new for my sister
Becky,
You and your family are my prayers. Hope everything turns out to be OK.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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08-13-2010, 04:23 PM
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#10
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: I am Fine - but bad new for my sister
Becky,
Saying prayers and sending hugs for you and your family.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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08-13-2010, 06:09 PM
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#11
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: I am Fine - but bad new for my sister
Hi Becky,
I was sorry to read the news of your baby sister. Yes, most defintely, I will pray for her and the the rest of you. May His peace hold you all close as you take your "baby steps!"
Love you sister,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-13-2010, 07:27 PM
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#12
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Senior Member
Join Date: Oct 2009
Posts: 98
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Re: I am Fine - but bad new for my sister
Sending lots of prayers your way. She's lucky she has a big sis to lean on, who unfortunately learned the ropes and tread a path before her.
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08-13-2010, 10:59 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: I am Fine - but bad new for my sister
Becky,
I will keep your sister and you in my thoughts and prayers. She couldn't have a better hand-holder than you.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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08-14-2010, 12:57 AM
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#14
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Re: I am Fine - but bad new for my sister
Dear Becky. the last thing we want is others to go through this horrible sickness. So when it is your sister I understand how sad and worried you must be. I hope that the small DCIS will be confirmed.Your sister can count on your love and knowledge. Keep us informed of each baby step. Hugs to both. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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08-14-2010, 06:04 AM
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#15
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Re: I am Fine - but bad new for my sister
Hey Becky, So sorry to hear this news. Please know you and your family are in my prayers.
You are a blessing to your family.
Hugs my friend, ~Alice
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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08-14-2010, 08:03 AM
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#16
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: I am Fine - but bad new for my sister
Hi Becky
Just wanted to add my prayers and hopes that all turns out well for your sister (and you of course).As Sandra said it feels like being in the middle of an epidemic, where nobody is safe! Roll on the cure, we MUST be near by now.
Ellie
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08-14-2010, 08:51 AM
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#17
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: I am Fine - but bad new for my sister
Healing thoughts for your sister and the treatment
she will have.
She has the best to guide her through this and my
prayers for both of you.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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08-14-2010, 09:13 AM
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#18
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: I am Fine - but bad new for my sister
Becky,
very upsetting for you. Let's hope the DCIS is only in the breast and that she isn't HER2 like us. She has an expert in you to turn to for information and support so she's lucky in that.
hugs and love
sarah
__________________
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08-14-2010, 09:43 AM
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#19
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Senior Member
Join Date: Jan 2010
Posts: 170
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Re: I am Fine - but bad new for my sister
Becky,
I am so sorry you have to watch another member of your family go thru the worry, wait and watch of cancer.
I am praying for you and your family that it remains DCIS and nothing more.
Best regards,
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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08-14-2010, 10:41 AM
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#20
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: I am Fine - but bad new for my sister
Becky,
I am sorry that your little sister has been diagnosed w/ DCIS. Prayers that it was caught early and for her comfort as she waits on all the test results.
You will be such an awesome support for her. She is blessed to have you on her side.
Hugs and Prayers,
Lexi
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