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09-25-2010, 07:34 PM
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#21
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: More Brain Mets - New Plan Thoughts?
This disease makes me so frustrated. The plan sounds like a great one. Of course, I have never had to deal with mets to the brain myself. However my mother did and it sounds like the route you are taking will be the best one. Sending out big hugs and prayers to you. You are a strong, beautiful individual and I know you will glide through this with grace.
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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09-28-2010, 08:00 PM
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#22
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Senior Member
Join Date: Aug 2010
Location: connecticut
Posts: 41
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Re: More Brain Mets - New Plan Thoughts?
Cortney,
I just want to say you are an amazing, inspiring beatiful women..inside and out!
I am praying for you and your in my daily thoughts. i believe the gamma knive is goin work for you as it did in the past and you will continue on your vaccine trial and continue with NED.
Many cyber hugs sent your way.
Joletta
__________________
dx- march 2010 age 35 stage 3a 4 of 9 pos. nodes
idc 2.2 ininvasive 7cm of dcis er/pr- her2+
april 15 2010 bilateral masectomy w/ tissue expanders
may 4 2010 port import
may 6 2010 clean ct scan & bone scan
may 11 2010 start 4 A/C (finish aug 3 2010)
aug 17 2010 start weekly herceptine & taxol 12xs (end date of oct 19 2010)
nov-dec 2010 30 radation
(plan permanent implants for feb or mar 2011)
continue on herceptine till aug 2011
Love & prayers to everyone
Joletta
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10-02-2010, 06:14 AM
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#23
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Senior Member
Join Date: Jul 2008
Posts: 96
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Re: More Brain Mets - New Plan Thoughts?
praying for you dearest Cortney, you will be fine, dont worry, God will open the right doors for you and you will receive the best treatment
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10-04-2010, 12:49 PM
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#24
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: More Brain Mets - New Plan Thoughts?
Courtney,
Wondering how you have been? The UW will be reviewing my medical records to see if I may be eligible for the T cells.
Please let us know how things are going.
Amelia
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10-05-2010, 12:04 PM
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#25
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Member
Join Date: May 2010
Location: Suburb of Baltimore, MD
Posts: 23
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Re: More Brain Mets - New Plan Thoughts?
Courtney,
I have been thinking about you and praying for you. I know your gamma knife procedure starts in a few days, and I am praying for complete success in zapping the brain mets. I have changed my Avatar in support of you - go kick cancer's a_ _!
Love,
Carolyn
__________________
1/10 Diagnosed with IDC; 3.7 cm tumor
3/10 Left Radical Masectomy; 2 /16 nodes positive - Grade 3 ER+/PR-/HER2+++
4/10 BRCA1 and BRCA2 both negative
4/10 Pet Scan showed another node .07mm positive on the internal mammary area
4/10 ALLTO Trial - randomized for Arm 4 - Taxotere/Carboplatin and Herceptin only (no Tykerb) Began 6 cycles Taxotere/Carboplatin (every three weeks) and Herceptin weekly for eighteen weeks and then every three weeks until the end of April 2011
Radiation to begin 9/2010
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10-05-2010, 01:29 PM
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#26
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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Re: More Brain Mets - New Plan Thoughts?
Just returned from ASCO Breast conference--two pertinent articles/posters, one closer to available treatment (as drug already approved for other cancers) than the other-- on drugs which might prevent and/or treat already existing her2+ brain mets
Author on both (among others) was Patricia Steeg and she made a presentation as well--unfortunately she did not man the poster on pazopanib or I could have asked questions...
Also unfortunately, I do not seem to be able to find a USB card reader that could help me post the poster abstracts from the meeting. So here is a poor attempt
263 Brain mets occur in ~35% of metastatic breast cancer patients whhoose tumors overexpress HER2 and contribute significantly to patient morbidity and mortality. The contribution of angiogenesis to tumor growth and progression has been debated. We tested the newly approved anti-angiogenic drug pazopanib for prevention of brain metastatic colonization of breast cancer.
In this study they seeded her2+ brain mets, but they did not grow out into macro-mets or grew very feebly (in rodents)
They concluded: These experiments support a clinical trial for the treatment or prevention of her2+ brain metastases.
255 Effect of an LPA1 antagonist on metastasis in preclinical models of breast cancer progression.
Drug made by Debiopharm SA Lausanne Switzerland
Debio 0719 acts as a metastasis suppressor and induces dormancy in the metastatic site. As such, it represents a new class of potential therapeutics. Phase I trials are expected in 2011.
I know these signs of progress seem very distant, but trying to keep your armamentarium of info Up TO DATE up to the moment!
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10-05-2010, 03:12 PM
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#27
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Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
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Re: More Brain Mets - New Plan Thoughts?
Thank you all so very much for the knowledge and support. Lani, I will keep an eye out for pazopanib and debio 0719. And thanks for the info on Temodar, Jackie. I was thinking that might be a good next step too.
I'm suppose to have a phone consult today with an onc at UCSF to discuss possible directions after Gamma Knife. I'm wondering if Neratinib might be an option in a clinical trial setting. I'll see what she has to say.
Met with the Gamma Knife team at UCSF this morning and, pending insurance approval (fingers crossed), we are all set for Thursday morning. These pesky little buggers will be gone baby GONE!
Love the Avatar Carolyn!
Good luck with your decision on the t-cells Amelia! Let me know if I can answer any questions.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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10-05-2010, 05:38 PM
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#28
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: More Brain Mets - New Plan Thoughts?
Yes, I will be imagining your brain as clear of mets and 100% healthy on Thursday. Do the Gamma Zap two-step.
One of the trials could be interesting.
Let me know if/when you come back to Seattle.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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10-06-2010, 02:29 PM
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#29
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: More Brain Mets - New Plan Thoughts?
HI Courtney,
I will be thinking of you on Thursday. I also had a 3cm bran met over 6 years ago and needed two more surgeries for possible additional tumors that turned out to be radiation necroses. I too am interested in new developments for brain mets because they always remain a threat.
My thoughts are always with you.
Barbara H.
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10-06-2010, 03:25 PM
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#30
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Re: More Brain Mets - New Plan Thoughts?
Praying that tomorrow will be the end of those pesky brain mets.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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10-07-2010, 12:55 PM
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#31
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: More Brain Mets - New Plan Thoughts?
Courtney,
Saying a special pray for you today.
Amelia
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10-07-2010, 01:51 PM
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#32
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: More Brain Mets - New Plan Thoughts?
Hello Courtney. I know that today is the day for your gamma knife procedure and wanted you to know that I've also said an extra prayer that all goes well and you get spectacular results. Thinking of you.
Barb A.
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10-07-2010, 02:46 PM
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#33
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Senior Member
Join Date: May 2009
Posts: 510
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Re: More Brain Mets - New Plan Thoughts?
Adding my prayers and good wishes to the above. May the pesky burgers be all gone by now.
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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10-07-2010, 03:28 PM
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#34
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: More Brain Mets - New Plan Thoughts?
Hey...have no mercy on the cancer...but leave the burgers alone...or eat 'em  |
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10-07-2010, 03:41 PM
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#35
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Senior Member
Join Date: Jan 2010
Posts: 170
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Re: More Brain Mets - New Plan Thoughts?
Hoping everything went well and you are clear and feeling well.
Please let us know how everything went when you are feeling up to it.
We are all praying things will get better going forward.
Rest up,
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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10-08-2010, 05:27 AM
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#36
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: More Brain Mets - New Plan Thoughts?
Courtney
Just wanted to let you know i am thinking of you and wondering how you made out? What did you decide about the Temodar? I think you have a valid point to discuss before you start it!
Sending a big hug and lots of prayers
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-15-2010, 05:09 PM
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#37
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: More Brain Mets - New Plan Thoughts?
Courtney,
You seem to have a good plan, and I'm sending good vibes your way to wack those lousy brain mets.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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11-01-2010, 10:14 PM
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#38
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: More Brain Mets - New Plan Thoughts?
just wanted to check in and see how you were doing.
I have a friend (young like you and I) who has just been dx with mets to the brain. She has a 5cm tumor and another one. I don't think they will know much until she gets the pathology back which won't be for another week cause she is just having the surgery this Thursday, November 4th. We are all in shock and very frustrated. She is not Her2+, but any advice would be very helpful! Thank you.
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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11-02-2010, 10:29 AM
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#39
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Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
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Re: More Brain Mets - New Plan Thoughts?
Thanks for checking in on me gals - you make me feel so not alone in this journey. I see that I neglected to post my additional good news. My onc took my CA 15-3 tumor markers at my last appointment (3 weeks ago) and they had come down 20% since the previous appointment 3 weeks prior to that. A 20% drop in 3 weeks without being on chemo! I take that as a very good sign that something is working. I'll go in again tomorrow and will have markers drawn again. I hope the drop keeps on dropping! We'll scan the body in 2 weeks up in Seattle and then scan the brain right after the holidays to make sure everything is on the up and up.
Sarah - I am sorry to hear about your friend. My advice would be for her to consider a chemo that crosses the blood brain barrier such as Xeloda or Temodar. Of course a second opinion is always a good idea.
Steph - Hope to see you when I'm in Seattle. I'll be there for scans and a booster vaccine shot on Nov. 16th. Got time for lunch? Would be lovely to see you again.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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11-02-2010, 11:27 AM
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#40
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: More Brain Mets - New Plan Thoughts?
Such good news that your TM has dropped a good bit and that you are feeling better. It comes through in your post.
Unfortunately there are other young women with advanced cancer like you. But, you do a lot to give them hope that it is worth it to keep up the fight!
Also, good that you can get back on track with the vaccine trial here. Should be able to see you then!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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