Skin Mets Progression, Starting Rads Next Week - HER2 Support Group Forums

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Skin Mets Progression, Starting Rads Next Week

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03-15-2008, 07:25 PM	#1
Belinda Senior Member Join Date: Jan 2007 Location: Adelaide, South Australia, Australia Posts: 144	Lolly - my thoughts and best wishes are with you. Lets hope those big guns do the job for you. Belindaxxx __________________ Belinda Diagnosed 3 Jan 2007, Stage IIb, Mastectomy and axillary clearance 10 Jan 07, 6 of 19 nodes affected, multi-focal cancer, HER2 positive. Second mastectomy (prophylactic). Chemo - AC 3 months, Taxol 3 months - then radiation 5 weeks. Aug 2011 - Diagnosed with Stage IV mets to lung, sternum and 12 or so thoracic nodes - Rads to Sternum, then weekly abraxane and herceptin for 12 weeks. May 2012- good scans - all nodes still about normal size, hole in sternum repairing, lung tumour 'obliterated'. Ongoing herceptin every 3 weeks. Bloods still all good! Life good! March 2013 - recurrence - tumours in lungs and mediastinum (coughing up blood) - immediate radiation treatment to right lung and mediastinum, still on Herceptin, and 3 months of Vinoralbine - stable for a little while! Coughing and breathlessness started again September 2013, treated as radiation-induced fibrosis (which can be seen on scans - albeit stable). ie puffers, steroids January 2014 - cough becomes bloody again, scans show big mediastinal tumour wrapped around and choking the life out of my right main bronchus, radiation deemed off limits as my lungs are hypersensitive to radiation (measured by existing damage from 2013) .....................- ie I am in the 5% of people likely to suffer severe radiation damage to the lungs that they warn you about before starting treatment! (so special! :) ) Started chemo Feb 2014 - continuing Herceptin (continuous since Aug 2011), with Carboplatin and Gemcitabine. Discontinued Gemcitabine because of se's. Starting cycle 5 Herc/Carbo 5 May 2014. Meantime.....coughing and breathlessness increased to SCARY levels with racing heartbeat that won't slow down, breath that won't come back, even just walking to the bathroom or up 3 or 4 steps. ICU from May 5 2014, collapsed right lung due to tumour, small pulmonary embolism (left), tumours growing in mediastinum left and right, dvt lower right leg Plan seems to be bronchoscope next week to see if tumour can be lasered and stent inserted in right bronchus to reopen air access to lower parts of right lung. If that is successful might be able to have brachytherapy to worst tumour, otherwise no more options for external radiotherapy.

03-19-2008, 07:25 PM	#2
tousled1 Senior Member Join Date: Feb 2006 Location: Acworth, GA Posts: 2,104	Lolly, Thinking about you and wondering how treatment is going. Hope all is going as planned. __________________ Kate Stage IIIC Diagnosed Oct 25, 2005 (age 58) ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2% Neoadjunct chemo: 4 A/C; 4 Taxatore Bilateral mastectomy June 8, 2006 14 of 26 nodes positive Herceptin June 22, 2006 - April 20, 2007 Radiation (X35) July 24-September 11, 2006 BRCA1/BRCA2 negative Stage IV lung mets July 13, 2007 - TCH Single brain met - August 6, 2007 -CyberKnife Oct 2007 - clear brain MRI and lung mets shrinking. March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra

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