HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 12-18-2012, 06:42 PM   #1
Sandra in GA
Senior Member
 
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
Prayers requested

Just returned from Mayo today following my regular 6 month check-up. The CAT scan showed two new 4 mm spots on my right lung. One was in the plural cavity, one in the middle lobe. A PET scan is scheduled for this Friday. They drew blood for CA 15-33 today, so I do not have those results. My onc seemed very concerned.

I need input on treatments others have had. Have you gone back on Herceptin or had radiation treatments?

Thank you in advance for any helpful advice you may have for me. I have always drawn strength from this board.
Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
Sandra in GA is offline   Reply With Quote
Old 12-18-2012, 07:02 PM   #2
'lizbeth
Senior Member
 
'lizbeth's Avatar
 
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: Prayers requested

Oh Sandra,

I hate that you are dealt a recurrence. I like the idea that one had about finding out the genetics of your tumors.

Can you join a TDM1 or Perjeta clinical trial?

I hope one of the board members with experience with lung mets can chime in.

I love you girl!
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
'lizbeth is offline   Reply With Quote
Old 12-18-2012, 07:21 PM   #3
Sandra in GA
Senior Member
 
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
Re: Prayers requested

Thanks 'lizbeth,
Dr. Tan did mention both of them. We won't know for sure until the PET is run if it is in fact a recurrance. I am trying to tell myself that it is just from reflux, but how did one get outside the lung?

It is very scary. I feel terrific. I just cannot believe it. Maybe it isn't. I should know by Friday afternoon late.

You know you have been very special to me. Thanks again for your support.
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
Sandra in GA is offline   Reply With Quote
Old 12-18-2012, 07:44 PM   #4
JillaryJill
Senior Member
 
JillaryJill's Avatar
 
Join Date: Aug 2011
Posts: 271
Re: Prayers requested

Hi, Hoping it is not a recurrence. You are one of my Stage IIIc warriors going 5 years NED with 21 positive lymph nodes. I have always thought the chance of a recurrence after 5 years is slim to none. Let's hold that thought and pray for good news.
__________________
DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
JillaryJill is offline   Reply With Quote
Old 12-18-2012, 08:52 PM   #5
'lizbeth
Senior Member
 
'lizbeth's Avatar
 
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: Prayers requested

Sandra,

Gosh I don't have scans or blood tests since I was stage II. Did you have any symptoms. If not that is very scary. I worry about not feeling the cancer growing, not having anyway to detect it, and ending up stage IV.

We are pretty close in history, but different in treatments. I had skin involvement with the Pagets. I had 3/15 nodes. I only did Taxotere, Herceptin and the GP2 vaccine.

Ugh, this is the tough part and I feel so close to you - its almost like having a recurrence myself.

It looks like we are praying for a lot of Christmas miracles.

I am so glad the Mayo Clinic is looking after you. Are the scans in follow up for a clinical trial, or is it the standard of care?

Look kiddo, I'm counting on you to be around for a long, long time!

I looked for the genetics post, but haven't found it yet. I hope our fellow board member will repost. The more ideas, the better.

Sending even more love (and freaking out a little)

Your buddy, 'lizbeth
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
'lizbeth is offline   Reply With Quote
Old 12-18-2012, 09:18 PM   #6
europa
Senior Member
 
europa's Avatar
 
Join Date: Jan 2012
Posts: 362
Re: Prayers requested

I am so sorry to hear about this. I have been in contact with Ilan from Precipio. They do the tumor profiling everyone has been buzzing about. He sent me the form as I am getting a sample sent up to him for profiling. If you pm me and give me your email address, I can send it to you and email Ilan letting him know you may be calling. He's a great guy. Also, I believe it's covered by insurance. Ilan told me that they have yet to get denied by an insurance co. He also mentioned that once the forms are signed off by your Oncologist, Precipio gets the sample within 3 days tops. So it's quite fast.
Let me know how I can help. Here is Ilan's info:
Ilan Danieli (CEO at Precipio)
Tel: 203.787.7888 ext. 536
Email: idanieli@precipiodx.com

You're in my prayers.
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


www.mychemobag.org
www.facebook.com/mychemobag

8 YEARS NED
europa is offline   Reply With Quote
Old 12-18-2012, 09:30 PM   #7
JennyB
Senior Member
 
JennyB's Avatar
 
Join Date: Apr 2011
Location: Port Hedland, Australia
Posts: 382
Re: Prayers requested

Sandra I sincerely hope this isn't a recurrance - prayers going up
Jenny x
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy

Praying the Herceptin is as good as its hype!!
JennyB is offline   Reply With Quote
Old 12-18-2012, 10:49 PM   #8
Pray
Senior Member
 
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
Re: Prayers requested

Sandra, Gods blessings to you. I also am hoping and praying for the best for you. I am praying very hard. Peace my friend, Nancy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
Pray is offline   Reply With Quote
Old 12-18-2012, 11:49 PM   #9
NEDenise
Senior Member
 
NEDenise's Avatar
 
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: Prayers requested

Sandra,
Sending prayers and calming love your way. Try not to worry till you KNOW what's true, and what could be a mistake. Remember a few months back...they were sure I had liver and bone spots to keep my brain mets company. After a few days, a review of the scans, and a followup prodedure, showed they were both false alarms. Maybe yours will be too, and even if it's not...we have great meds out there just in case you need them.
And, my friend...I think the fact that you FEEL good is a GOOD sign that things are better than they seem.

Try to relax...breathe easy...focus on that Christmas miracle.
With love,
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
NEDenise is offline   Reply With Quote
Old 12-19-2012, 04:35 AM   #10
karen z
Senior Member
 
Join Date: Apr 2008
Posts: 1,477
Re: Prayers requested

My best wishes and thoughts and prayers are with you.
K
karen z is offline   Reply With Quote
Old 12-19-2012, 08:39 AM   #11
Sandra in GA
Senior Member
 
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
Re: Prayers requested

Many, many thanks to all of you. You are the best!

Jill, I know what you mean. I am 4 and 1/2 years out and this just blindsided me. I coulndn't wait until my appointment next summer so I could begin to be free to do some traveling not related to health care. That five year mark was just around the corner. Well, it's not for sure ~ I just have to wait until Friday before I give up all my dreams.

Denise, you are right. They have to confirm it first. Thanks for reminding me that sometimes they can be wrong!

Karen, Nancy, and Jenny, thanks for all those prayers. I can feel them.

Europa, my onc said they are too small to biopsy right now but I really thank you for that info. I will store it in my brain for future reference.

'lizbeth, I cannot find the words to tell you how much you have inspired me. Thank you so much. The PET scan is for positive diagnosis. At first he wanted me to come back in Feb., but you know me. I wanted to know as soon as possible so treatment could begin. So, he ordered a tumor marker blood test and the PET scan. He ordered it for yesterday but that department was swamped and Friday during their lunch was the first appointment they could come up with. I should know something by late Friday. He is to call me that afternoon when they post the results on the computer.

Thank all of you again. I am trying to stay busy with all my Christmas chores that have not been done. I am praying for a Christmas miracle.

Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
Sandra in GA is offline   Reply With Quote
Old 12-19-2012, 08:44 AM   #12
Kellennea
Senior Member
 
Kellennea's Avatar
 
Join Date: Sep 2011
Location: Mt. Prospect, IL
Posts: 177
Re: Prayers requested

Sending prayers up!
__________________
10/01/10 - Dx at age 44. Found lump after miscarrying & was told it was "probably a clogged milk duct" not so much:
stage II - invasive ductal carcinoma ER/PR+ HER2+
10/01/10 - BRCA test - Negative
11/3/10 -2.5cm tumor removed via lumpectomy, clear margins. sentinal node biopsy - nodes clear!
12/2/10 - port placement
12/2/10 to 3/17/11 - 6 rounds of taxotere, carboplatin & herceptin every 3rd week.
04/20/11 - 6/6/11 - 33 rounds of radiation
4/6/11 to 11/2/11 - 11 additional rounds of herceptin every 3rd week
7/15/11 - port removal
7/5/11 started my 5 year journey on Tamoxifen
9/4/11 -1 yr Chest MRI - CLEAN!!!!
9/5/12 -2 yr Chest MRI - CLEAN!!!!
8/29/12 - Started spotting after being in chemopause 1.5 years. Ultra sound detected 6cm ovary mass & very thick lining. YIKES! Taken off Tamoxifen
9/6/12 - Full abdominal hysterectomy. Pathology report came back clean... thank you baby Jesus!!
9/28/12 - Started Anastrozole
Kellennea is offline   Reply With Quote
Old 12-19-2012, 10:20 AM   #13
Paula O
Senior Member
 
Paula O's Avatar
 
Join Date: Jul 2011
Posts: 954
Re: Prayers requested

Lifting you in prayer right now, Sandra.

Paula
Paula O is offline   Reply With Quote
Old 12-19-2012, 12:15 PM   #14
'lizbeth
Senior Member
 
'lizbeth's Avatar
 
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: Prayers requested

Sandra,

Is there a term for premature panic? I think I have that.

Oh - wouldn't that be a great Christmas gift, to have the PET rule out cancer. That is so awesome of them to give up their lunch hour so that you can have the scan.

Tumor profiling - that is the phrase I couldn't remember.

Wow, that is the awesome thing about this board. So nice to see the enthusiastic support.

Sending up prayers on your behalf,

'lizbeth
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
'lizbeth is offline   Reply With Quote
Old 12-19-2012, 12:36 PM   #15
Lien
Senior Member
 
Lien's Avatar
 
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
Re: Prayers requested

Please be my No. 4! I already have 3 friends whose docs were certain they had lung cancer/lungmets. One of them even had part of a lobe removed. They all turned out to have benign lumps/bumps/scars. So I am holding on to that thought for you. Please keep us posted, so we can exhale...

Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
Lien is offline   Reply With Quote
Old 12-19-2012, 02:25 PM   #16
Sandra in GA
Senior Member
 
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
Re: Prayers requested

Thanks again. I cannot believe all this support! You guys are the greatest. I had a group of friends come over for prayer for me this afternoon. It is such a comfort.

Jacqueline, I sure hope I will lbe #4! That would be the greatest gift ever.

I have also had a couple of pms from Joan who had radiofrequency ablation in '08 for a couple of small lung mets and has no more. She has given me great hope for treatment other than chemo.

I also contacted my vaccine study nurse at Wake Forest, 'lizbeth. After talking with her, I feel much better. She is a doll. She said they do biops on that size nodes and encouraged me to ask for one. She also told me several of her patients are having strange scans that are truning out to be OK. She also told me they do the radio thingy up there. All this has helped calm me down considerably.

Thanks Paula and Kellennea. Prayer warriors make wonderful friends!

Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
Sandra in GA is offline   Reply With Quote
Old 12-19-2012, 02:31 PM   #17
NanaJoni
Senior Member
 
NanaJoni's Avatar
 
Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
Re: Prayers requested

Add my prayers to many others.
__________________
Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
NanaJoni is offline   Reply With Quote
Old 12-19-2012, 02:33 PM   #18
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: Prayers requested

Don't take it personally but may you NEVER JOIN us the stage 4 sisters here, we do not want you, so you have to stay stage 1 or 2.. no choice.

My prayers are with you, stay as calm as you can, I know difficult.
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
fullofbeans is offline   Reply With Quote
Old 12-19-2012, 02:33 PM   #19
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: Prayers requested

Dear Sandra

I am thinking about you and praying too. Have faith - it could very well be nothing at all.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 12-19-2012, 03:19 PM   #20
ammebarb
Senior Member
 
Join Date: Mar 2009
Posts: 508
Re: Prayers requested

Sending my prayers too, Sandra.

Barb A.
ammebarb is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 01:09 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter