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Old 06-06-2007, 05:38 PM   #1
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Location: Home of the "Flying Tomato" Carlsbad, CA
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Southern California Gettogether

There was a post last week which may have been inadvertently erased about a get together here in Southern California.

Who is interested?

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Old 06-06-2007, 08:48 PM   #2
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Posts: 1,014
I'd like to go anywhere...sherryg

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 06-06-2007, 09:02 PM   #3
Karen Weixel
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Join Date: Jan 2007
Posts: 138
I would love to meet but I live in Northern California.

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Old 06-06-2007, 10:15 PM   #4
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Join Date: Mar 2007
Location: Norco, Southern California
Posts: 53
I'm in Southern California and I would be interested in getting together sometime.


Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today

I know Who holds the future, and I know He holds my hand.
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Old 06-06-2007, 11:43 PM   #5
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Join Date: Oct 2005
Location: southern california
Posts: 287

I would love to get together and put faces to the names.
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Old 06-07-2007, 09:44 AM   #6
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Posts: 492
Would Santa Barbara work for you all sometime in July? The El Encanto hotel is a neat old place with a great view. Nice restaraunt for lunch. Hope it's still there, I haven't been in a few years.
Are we there yet?

Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
Univ. of WA, Seattle vaccine trial '07
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Old 06-07-2007, 03:33 PM   #7
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Join Date: Feb 2007
Posts: 108
I am in So Cal and would love to see others from HER2 Support. I did not see the original post. Do you know who it was from?
Age 50, premenopausal
Dx 1/2/07 DCIS/IDC
Lumpectomy 1/4/07 1.1cm tumor
SNB 3 nodes clear
Stage 1, Grade 2, HER2+++ (FISH 6.8)
ER + / PR +
TCH, 6 rounds, finished 6/1/07!!!
Herceptin to continue for 1 year
36 rads finished 8/22/07
Port out 8/27/07
Switched to Herceptin weekly for joint pain
Ooph 11/13/07
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Old 06-07-2007, 04:12 PM   #8
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Join Date: Jan 2007
Location: Southern California
Posts: 33
I would also be interested in a get together. I live in the greater Los Angeles area (Chino Hills).
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Old 06-07-2007, 04:57 PM   #9
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Join Date: Jul 2006
Location: Southern California
Posts: 30
I'm in the Santa Clarita Valley and would like to meet if possible. : )
Stage IIb, dx 12-26-05, age 37
Lumpectomy 1-4-06, 1.1 cm idc
3/19 pos. nodes (sentinel node was neg.)
ER +, PR +, Her2 +
TCH, radiation, Lupron/Aromasin
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Old 06-07-2007, 08:39 PM   #10
vickie h
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Location: san luis obispo, ca
Posts: 1,150
I'm in Central Ca. but Santa Barbara is only an hour and a half away and I go to Santa Monica to see my Onc. So anywhere would be great....Love, Vickie
Love and Hugs, Vickie

Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.

Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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Old 06-07-2007, 09:39 PM   #11
Karen Weixel
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Posts: 138
Santa Barbara would be great and I love the El Encanto.

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Old 03-04-2011, 06:58 AM   #12
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Join Date: Feb 2011
Location: Syria
Posts: 3
Southern California Gettogether

Weather on ABC 7 has us somewhere between 85 and 90 degrees Sunday. Much of Southern California is still under a red flag warning till Sunday night. Thankfully theres no Santa Anas blowing. Ill try to get the same spot as last time, down by lake 4.
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