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Old 01-22-2012, 12:05 PM   #1
Delaney
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Join Date: May 2010
Location: Ireland
Posts: 271
Anyone who has had Radiosurgery please read

I had radiostatic brain surgery in mid December. My only sympton was occasional blurry vision in my left eye. Today that sympton came back. Did this happen to anyone else? Does it mean the treatment didnt work, I was told there was a 80/90% chance of it working. Could this be a new lesion? I've emailed my doctor and am waiting for a reply but decided to ask here in the meantime.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 01-22-2012, 01:25 PM   #2
tricia keegan
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Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: Anyone who has had Radiosurgery please read

I'm sorry I cant help with this question Helen but do hope someone else can reassure you! (((((hugs))))
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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