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01-07-2009, 09:43 PM
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#1
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Senior Member
Join Date: May 2006
Posts: 3,142
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10 year anniversary
I just wanted to share that I am celebrating 10 years of survival this month after my diagnosis in January, 1999.
The last 10 years have not been easy, but I have learned alot and I am still learning something new about health almost everyday. I have enjoyed reading all your posts and interacting with many wonderful people on this site. A big thank you for your friendship. I am going to keep going, and keep learning. I am going tocontinue doing my best to take good care of myself. I am also going to keep putting one foot in front of the other for a long time. Let's keep going together everyone !!
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01-07-2009, 09:58 PM
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#2
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Congrats Elaine on your 10 year cancerversary.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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01-07-2009, 09:59 PM
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#3
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Elaine,
You are surely an inspiration to all of us. We send our very well deserved:
Christine and Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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01-08-2009, 12:33 AM
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#4
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Senior Member
Join Date: Jul 2008
Posts: 96
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Dear Elaine,
Congratulations, its really encouraging for all of us, I was just wondering how many years do i get with all this, looking at you i feel encouraged. God bless you with a long and healthy life
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01-08-2009, 04:29 AM
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#5
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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 Elaine, what a super celebration! Here's to the next 10......and the next.......
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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01-08-2009, 04:44 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Elaine - you are always inspiration and encouragement in all your posts. SO happy this post is in celebration of YOU - & also inspiring the rest of us!
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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01-08-2009, 05:19 AM
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#7
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Elaine,
Congratulations on ten years. You are an inspiration to us all. Thank you for the knowledge you provide for this board.
Amelia
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01-08-2009, 07:42 AM
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#8
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Ten years is a big milestone. Congratulations and many, many more!
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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01-08-2009, 08:43 AM
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#9
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Elaine, congratulations from the bottom of my heart. It is such a pleasure to have you in my life and also that I can share such a monumental accomplishment in yours. You have taught Ed & I so much about how to keep that foot in f ront of the other.
Wow....10 years My Warrior, My Inspiration, My Hero and Friend. A toast to you and hopes for many more!! You have always tried your
best and look at you now, my have you grown. Lots of love>>Believe51
Happy 10th Cancerversary ElaineM
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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01-08-2009, 09:38 AM
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#10
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Congratulation Elaine! Your news gives me so much hope!
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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01-08-2009, 09:58 AM
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#11
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Happy 10 year anniversary! You are an inspiration to all of us here, thank you. You give us all hope for tomorrow...one step at a time, one prayer at a time. congratulations, elaine! Love and hugs, vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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01-08-2009, 10:17 AM
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#12
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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That's incredible
Elaine, and very encouraging for all of us. Thanks for all your input.
__________________
Diagnosed 4/03/03, age 50
3.5 cm, 0/19 positive nodes
Stage IIA
Her2++, ER & PR++
RB Mastectomy, 4 AC,
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01-08-2009, 02:12 PM
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#13
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Elaine,
Wow...10 years!! That is absolutely awesome.
Congratulations to you. May you be blessed with continued good health.
Love to you,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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01-08-2009, 07:28 PM
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#14
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Elaine
What a wonderful milestone you have reached. I had no idea you were a 10 year survivor. How wonderful for you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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01-08-2009, 07:36 PM
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#15
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Senior Member
Join Date: May 2006
Posts: 3,142
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10 year anniversary
Thank you all so much for your wonderful, wonderful comments. I appreciate them very much. Let's all all hang there and keep putting one foot in front of the other together, so we can keep celebrating our anniversaries for many, many years. It doesn't matter how fast we take each step just as long as we keep taking them towards better health in the future.
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01-08-2009, 07:41 PM
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#16
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Congratulations and blessings to you! I look forward to celebrating my 10th and your 20th with you.
Celeste
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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01-08-2009, 07:43 PM
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#17
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Elaine,
Congratulations and thank you for a beautiful post.
Best,
karen
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01-09-2009, 07:07 AM
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#18
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Senior Member
Join Date: Apr 2007
Location: Asheville, North Carolina
Posts: 31
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Inspiration
You are an inspiration to us all. We all will continue to put one foot in front of the other. Just like the "footprints" poem, if you get weaek and you only see one set of footprints, it will be us carrying each other.
__________________
Koolmom
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01-09-2009, 09:01 AM
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#19
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Wow Elaine, that is so wonderful!! Ten years is quite the milestone!
Wishing you many, many more years of good health.
All my best,
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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01-09-2009, 10:39 AM
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#20
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Elaine, my heartfelt congratulations ! This IS a major milestone and I hope you do something special to commemorate it,
Hugs,marcia
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