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07-01-2009, 11:39 AM
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#21
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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What can I add? You are a real example of grace under pressure. Keep the faith. (I know you do!)
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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07-01-2009, 11:49 AM
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#22
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Senior Member
Join Date: May 2006
Posts: 3,142
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Hi from madubois63
It is great to hear from you, but I have to admit I am tired from just reading your post.
You certainly have had a lot on your plate, but I am glad you got to be there for your daughter's graduation and prom.
You are a very strong person, so I know you will try your best to keep going and put one foot in front of the other even if it is slowly after hip replacements.
Hugs to you.
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07-01-2009, 01:33 PM
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#23
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Maryann,
I know there will be a miracle, you are such an strong lady and a herculian fighter. I am sorry to hear that you have not been feeling so well, I want to send you my best wishes and want to let you know that I am praying for you. Yes, I am one in this board that misses you, so when you have a chance and feel up to it, please write us a note.
Love,
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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07-01-2009, 01:48 PM
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#24
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Senior Member
Join Date: Sep 2005
Posts: 208
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You've had a rough time and am glad to hear it is easing somewhat. Congratulations on your daughter's graduation, that's a big one!
Hugs and hope,
Diane
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07-01-2009, 03:32 PM
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#25
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Maryann I am sorry to hear you are once again having issues. I hope everything gets resolved soon and you have a speedy recovery. In the meantime, congrats to your daughter. You must be so proud.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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07-01-2009, 04:23 PM
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#26
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Maryann,
Steroids are no fun. I have to go to physical therapy this summer for what they have done to my knees. I was on them for lung inflamation from December to April. I'm hoping that the PT works.
I have a friend who is in his mid sixties and quite a good skier. He had both of his hips replaced and still skies all over the country. I am hoping that all goes well for you and that you recover well.
I have a great admiration for you. You inspire me and I always look forward to your posts. You will continue to be in my thoughts.
Best wishes,
Barbara H.
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07-02-2009, 12:48 AM
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#27
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Thank you all once again for the love and support that shines through your posts so much. I am home from the hospital - just 3 days this time. 3 weeks ago, it was 5 days. They didn't do a liver biopsy as planned because I am responding so well to the steroids - yeah. Numbers are almost back to normal. They did drain my lung and took out just over a liter of fluid. The fluid is clear and like last time, no cancer. I still do have 2 or 3 little spots on the outside of my right lung, but am still getting Herceptin for that. I am confident that that will go away soon. While they were draining my lung, they nicked my lung - turned out it was just a small scratch and is healing well. I probably won't be able to get the hip replacements until the fall when I get my strength fully back, but I have to say I do feel pretty good. My girlfriend got a new 4 wheel drive truck an has never been 4-wheeling on the beach. Plans for the next week are to teach her driving on the beach...I look very forward to this!!! I also have been teaching my daughter to drive and have to get her passed the road test mid month. I hope everyone has plans to do something that doesn't involve cancer for the holiday. Last 4th of July I sat in my window on the 19th floor of the hospital and watched the fire works along the south shore of Long Island. This year it may just be hamburgers on the bbq and a game of scrabble with my kids. I am so truly blessed...the little things mean everything!! Love to all...
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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07-02-2009, 05:35 AM
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#28
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Oh Maryann...Yes, you are right you really are blessed. It always amazes me when I read your posts and all you have gone and continue to go through you just continue to smile and encourage and look ahead. You know Maryann.....not only are you blessed but we are blessed to know you.
You encourage us.......Love to you sweet sister....May your 4th be a real "bang!" 
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-02-2009, 11:06 AM
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#29
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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It was great to get back from a mini-vacation to read your post. Good to hear from you. It does indeed sound like you have a 'full plate' even though you are not eating much...bad pun! Each new days bring joys that we had not counted on!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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07-02-2009, 04:44 PM
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#30
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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boy did I miss you girl
Well Hello Lovey!! Always nice to hear from you and seeing your beautiful face. Whenever you are away for a short while I eagerly await your return; I just know your days are more than full and your updates always prove it...whew! It is so wonderful that you are enjoying those precious things in life. I am also so happy to hear of you and your daughters adventures and milestones together.
You take care of yourself as you work on getting healthier. Keeping you in heart as always and sending you a smile. You MadameD, are such an inspiration to me and I am looking forward to watching you recover. Enjoy those burgies on the 4th and may you see your own personal fireworks as you breathe in life with freedom! Lots of love today and always.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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