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Old 10-16-2010, 04:00 PM   #1
KymAustralia
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Headed to year 9

Hi everyone,

Popping in to say hi and to update you all. I just had my umpteenth mamo and yearly oncologist check and am still 'dancing with ned' so I wanted to post and say hello to everyone at the same time.

Life has been very busy - I am completing a Masters in Adult Learning and my unit this time is about social organisations - born out of need and driven by those who need them that serve to educate their members about something that afflicts or oppresses them. My thoughts turned to this forum and the hope and nurturing it gave to me in a time of intense need and to the thousands of others before and after me who have also benefitted.

I was dx'd in November 02 with Her2+++ and Er+ breast cancer at the age of 44 and was fortunate enough to be selected for the BCIRG006 trial and was randomised into the AC-TAX- Herceptin arm.

I underwent a lumpectomy in Dec '02 and began chemo and herceptin treatment in Jan '03. I also underwent rads. Unfortunately I was one of the few who comes out of chemopause and because of my er+ status I underwent a radical oophorectomy in '04.

I am still NED and doing very well

Hugs to all my brave sisters

Kym
__________________
Dx Nov 2002 Her2 +++ Er+ 44 years of age (Pre menopausal)
Lumpectomy 1st Dec '02
Stage II 2cm tumor.. Clean margins
Her2 +++ Er pos
1 x Pos Node of 14
Entered BCIRG 006 Trial Jan '03
4 x AC 4 x Taxotere 30 Rads
1 year Herceptin
5 years Arimadex
Total hysterectomy (came out of chemopause) March '04
2012 - Still NED
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Old 10-16-2010, 04:49 PM   #2
KitCat
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Re: Headed to year 9

Congratulations to you Kim!! What a great inspirational story you have! All the best to you and heres to many, many years NED!!!

Cathy xo
__________________
DX April 2010, Age 45
MRM April 2010 right breast
Stage 2b, Her 2 positive, ER-, PR-
Grade 2
1/16 lymph nodes positive
Started TCH June 2010 every 3 wks. x 6
Port installed end of June
Rads x 35
Continue Hercepton for one year.
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Old 10-18-2010, 01:08 AM   #3
chrislmelb
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Re: Headed to year 9

Well done Kym, you were very lucky to get the Herceptin. I was randomised to the observation arm of the HERA trial in 2004. My arm was lucky enough to be offered Heceptin in 2005 when the brilliant results came out. I then had it for 2 years.
Great to hear your success story.
Christine
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Christine

DX Sept 03 age 40 Stage 2B Grade 3 mastectomy (after 2 prior breast conserving surgeries)
"at least" 2.3 cm 3/12 nodes ER+/PR+ Her2+++
8 FEC. Tamoxifen then Arimidex. Ovaries out.
"late" Herceptin for 2 years (18months after chemo) on HERA trial. finished Herceptin Nov 2007.
Multiple bone mets May 2012 and now liver August 2012.
Abraxne, Herceptin and Zometa.
June 2013 Tykerb, Xeloda and Xgeva
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Old 10-28-2010, 05:50 PM   #4
DanaRT
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Re: Headed to year 9

Kym, Thanks for sharing your inspiring story.
__________________
-Dana-

]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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Old 10-28-2010, 06:59 PM   #5
karen z
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Re: Headed to year 9

Congratulations and thanks for posting.
Best,
Karen
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Old 10-28-2010, 07:15 PM   #6
Laurel
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Re: Headed to year 9

Excellent! Thanks, Kym for the inspiring post! Wishing you another 9!
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
9 Years NED
I think I just might hang around awhile....

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Old 11-10-2010, 01:41 PM   #7
Mary L
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Re: Headed to year 9

Hi Kim. You are are my hero. I just celebrated my 8h year of survival of IBC. Don't you just love Herceptin! It sure saved my life. I just wanted to say job well done and best wishes for a healthy and happy future. Mary L
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Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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Old 11-11-2010, 12:13 AM   #8
KymAustralia
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Re: Headed to year 9

Well done - you are awesome Mary! Keep up the fight - I am so thrilled for you!!!! The hero's though are some like Christine and others who were so inspirational and pioneered herceptin for us - and despite all that they were dealing with were here to guide us and cheer us along on our journey. Some lost the war - but they will never be forgotten - nor will Joe for all his hard work to help us at such a terrible point in our lives!
__________________
Dx Nov 2002 Her2 +++ Er+ 44 years of age (Pre menopausal)
Lumpectomy 1st Dec '02
Stage II 2cm tumor.. Clean margins
Her2 +++ Er pos
1 x Pos Node of 14
Entered BCIRG 006 Trial Jan '03
4 x AC 4 x Taxotere 30 Rads
1 year Herceptin
5 years Arimadex
Total hysterectomy (came out of chemopause) March '04
2012 - Still NED
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Old 11-11-2010, 12:15 AM   #9
KymAustralia
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Re: Headed to year 9

Congratulations Chris!!! Where in Melbourne are you? I am in Beaumaris.
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Dx Nov 2002 Her2 +++ Er+ 44 years of age (Pre menopausal)
Lumpectomy 1st Dec '02
Stage II 2cm tumor.. Clean margins
Her2 +++ Er pos
1 x Pos Node of 14
Entered BCIRG 006 Trial Jan '03
4 x AC 4 x Taxotere 30 Rads
1 year Herceptin
5 years Arimadex
Total hysterectomy (came out of chemopause) March '04
2012 - Still NED
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Old 11-16-2010, 01:16 AM   #10
chrislmelb
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Re: Headed to year 9

I'm over just near Essendon. My sister is over there in Brighton.
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Christine

DX Sept 03 age 40 Stage 2B Grade 3 mastectomy (after 2 prior breast conserving surgeries)
"at least" 2.3 cm 3/12 nodes ER+/PR+ Her2+++
8 FEC. Tamoxifen then Arimidex. Ovaries out.
"late" Herceptin for 2 years (18months after chemo) on HERA trial. finished Herceptin Nov 2007.
Multiple bone mets May 2012 and now liver August 2012.
Abraxne, Herceptin and Zometa.
June 2013 Tykerb, Xeloda and Xgeva
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Old 11-29-2010, 08:43 PM   #11
Gabrielle
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Smile Re: Headed to year 9

Congratulations! I'm finishing up my 11th year. Still NED.

-Gabrielle
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Old 09-25-2011, 05:26 PM   #12
emorg
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Smile Re: Headed to year 9

Hi there, This is my first visit to this site. I live in Caulfield Melbourne and will be having treatment at the Alfred Hospital. I had a mastectomy two weeks ago and path. results showed HER2 positive (I don't know which grade positive as I was too stunned to ask too many questions.) Just wanted to say that I'm greedy to see someone as young and beautiful as you with such a great story to share. At this stage I haven't seen an onc. yet and have no idea of what is going to happen next. Just to let you know, thank you for taking the time in your busy life to share your joy.
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Old 09-26-2011, 04:03 AM   #13
Trish
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Re: Headed to year 9

Great news Kim. Look forward to next years NED post.
Trish
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5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004
6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006
oopherectomy, Arimedex
12/2006
liver mets largest 9cm
1/2007
Herceptin,
3/2007
Taxol + Herc
1/2008
Herc alone
4/2008
Multiple bone mets,Zometa
7/2008
Herc + Gemcitabine
8/2008
Herc+Navelbine/vinoralbine
10/2008
Herc+Carboplatin+Taxol
12/2008
Tykerb+Xeloda
2/2010
Herceptin + trial drug
5/2010
Herceptin+Tykerb
8/2010
Tykerb+Abraxane
9/2010
Abraxane
12/2010
Abraxane+Tyk+Herc
4/2011
Tyk+Herc+Femara
6/2011
Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011
Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011
Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 09-26-2011, 07:04 AM   #14
Joanna J
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Re: Headed to year 9

SO SO HAPPY FOR YOU,THIS IS WONDERFUL....ENJOY...CELEBRATE
EAT SOME CHOCOLATE,THIS GIVES
SO MUCH HOPE TO OTHERS ON HERE
(YOU GO GIRL) Joanna J
__________________
found susp.lump Feb 2009
DX Feb 2009 ...Her2+ stage IIa ER/PR- grade 3
partial mast. Right breast,clear margins
chemo (2) carboplatin & Taxotere
could not finish chemo (hospitalized because of infection)
37 rounds radiation
Herceptin (1 yr.)
No clinical trials
Jan.2011 BRAC 1/BRAC 2 Neg
Aug.2011 clear bone/catscan NED
Apr.2012 clear digital mammo
& ultra sound of breasts
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Old 10-04-2011, 08:36 PM   #15
KymAustralia
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Re: Headed to year 9

Hi Joanna,

Thank you so much and all the very best to you as you progress on your journey as well.

I see you have a similar diagnosis - and you are doing well.

Stay well and keep smiling

Hugs

Kym
__________________
Dx Nov 2002 Her2 +++ Er+ 44 years of age (Pre menopausal)
Lumpectomy 1st Dec '02
Stage II 2cm tumor.. Clean margins
Her2 +++ Er pos
1 x Pos Node of 14
Entered BCIRG 006 Trial Jan '03
4 x AC 4 x Taxotere 30 Rads
1 year Herceptin
5 years Arimadex
Total hysterectomy (came out of chemopause) March '04
2012 - Still NED
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Old 10-06-2011, 05:17 AM   #16
Pray
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Posts: 1,158
Re: Headed to year 9

Hi Kim,

I want to be just like You!!!!

Gods blessings to you and your family. God is good all of the time!

Your Friend,

Nancy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 12-06-2011, 08:07 AM   #17
sandra digilio
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Re: Headed to year 9

Hi I'm new to this site as well and have been through treatments the last couple of years. I'm a survivor and will fight for my life but I wanted to offer some chat if you needed someone to talk to. My advise is make sure you LOVE your oncologist and if you do not love her/him change and get one you do love. It makes all the difference in the world. Are you in Maine?
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Old 12-06-2011, 09:19 AM   #18
ElaineM
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Wink Re: Headed to year 9

I am so glad you are doing well. Good luck on your
Masters in Adult Learning. I taught adults for many years. It can be very rewarding to see adults become successful in their studies and improve their lives through education.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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