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Old 12-22-2009, 07:16 AM   #1
lisajones4
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Question about Liver Mets

Hi everyone. I haven't posted in awhile as I have been busy with my daughter's schedule Who would have thought that a 6-year old is that busy! I have a question about liver mets. I have been having some "aching" almost like burning on my right side below my rib cage. It is more uncomfortable then pain. My most recent scans were mid-October and I was clean. Could liver mets come on that fast? I have a regular six-month appointment with my oncologist in two weeks. I am four years and a month out from Stage IIIA and I was just getting comfortable with my life. Now I am so scared.

Lisa
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Old 12-22-2009, 11:27 AM   #2
StephN
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Re: Question about Liver Mets

Hi Lisa -
Glad you are so busy being a Mom these days. The area of discomfort you describe is also where our bowel turns and can have gas or "backup" pain. It used to happen to me.

My liver mets came on very fast and there was a difference in that discomfort. The mets pain was more UNDER the lower right rib bones from swelling within the liver capsule, rather than below my ribs and above my hip. It was actually more of an aching feeling than sharp pain.

Hope this helps and that your appointment goes really well in 2 weeks.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 12-22-2009, 12:40 PM   #3
Lori R
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Re: Question about Liver Mets

Hi Lisa,
I will share my experience with you but I am holding out much hope that being 4 years NED is a GREAT sign. Remember, I was stage IV at diagnosis AND when my met returned, it did so within a year of wrapping up Chemo.

My liver met returned as a single met that was located in the upper left quadrant of the liver. I felt an ache in my left breast scar that I had not felt before and it was getting progressively worse. Although I had passed a PET/CT 6 months earlier, when I had my scan it showed a 3 cm met.

So...my met grew quickly (at least it felt that way to me) and I later did find out that an issue with your liver can trigger pain up into the shoulder.

But!!!!! I had cryosurgery and a round of insurance chemo and have been NED again since May 2009.

You are partaking in the best possible medicine, enjoying your daughter and sounds like enjoying each and every day.

Please keep us posted!!! Till then....warm thoughts coming your way.
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2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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Old 12-23-2009, 05:36 AM   #4
jhandley
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Smile Re: Question about Liver Mets

H
It could be your gall bladder. I have twinges which I thought might be liver mets but I am reasonbly sure are from my gall bladder. (My scans are clear..I had one liver met 4.25 years ago 15 mm which disappeared rapidly on exposure to herceptin and taxol. )
Cheers
Jackie(down under)
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Old 12-23-2009, 06:30 AM   #5
Henny
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Re: Question about Liver Mets

Hi Lisa,
As Jackie said it could be gallbladder. An ultrasound maybe followed by a nuc med gallbladder scan would give you all the info to see if it is a pesky gallbladder giving you the pain.

Henny
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Henny
Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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Old 12-23-2009, 03:57 PM   #6
ElaineM
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Wink Re: Question about Liver Mets

I would get an ultra sound of the abdomen which shows all the organs in that area and see if that can tell what is going on. Ultra sounds are painless and do not require drug injections. If an ultra sound doesn't reveal anything you can always try other tests.
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