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Reload this Page ~Ned Is Over~Aggressive Brain Met Activity~PLEASE READ MY BRAIN SPECIALIST FRIENDS
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Old 08-31-2008, 09:41 AM   #41
goops
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I am so sorry - you guys will be in my prayers.
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May 2007 - Stage 3A, 12 positive nodes, her2 positive
July 2008 - Stage 4 - Liver Mets

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Old 08-31-2008, 07:05 PM   #42
jones7676
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Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
I am so sorry you have to go through this.

What a wonderful group to support you through this (the people at this site are).

I can't add any info - but they certainly have given you many options to consider.

May whatever choices you make be the best!
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Barb

10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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Old 08-31-2008, 10:06 PM   #43
Kavy
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Marie,
I am so sorry to hear the news about Ed. Both of you are in my prayers.
Have you asked the doctor about trying Gamma/Cyberknife first before doing WBR?
I also have "imaginary headaches and back pains" so that I can get my brain and bone scans. Good job.
Hugs,
KarlaV.
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Old 08-31-2008, 10:36 PM   #44
Jackie07
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Location: "Love never fails."
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Marie and Ed,

Sorry to hear about the brain mets. Did Ed have any symptoms? Please be sure for him to have plenty of rest. I am glad those 'mets' were caught early. Most likely either Gamma-knife or other treatment options can 'zap' them to non-existence or simply control them for a very, very long time.

I had Gamma knife in 2001 to treat 3 tumors that were over 1.2 cm each. And they are all well under control.

Will keep you all in our prayers.
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NICU 4.4 LB
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3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
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Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
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Old 09-01-2008, 07:29 PM   #45
sassy
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Marie and Ed,

I am keeping both of you in my thoughts and prayers.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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