 |
10-11-2012, 06:20 AM
|
#1
|
|
Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
|
Only 2 days left!!!
Hi all-
On Saturday morning I will be sending the VoiceMail quilt to Sheila.
Now that Sheila is entering hospice, more than ever, I want to provide her with our voices of love and support. I just felt like our voices would mean so much to her.
I can't...or rather...will not listen to the messages. My only role in this is as an "administrator" - I set up the mailbox and will get the final quilt delivered. But I can see that there are 10 messages for a total of 7 minutes - from a variety of area codes. Thank you all that have sent a message.
This is so hard. I know we are all rocked by the pain and suffering that so many in our HER2 family are facing. I wish I could wrap every single one of you in a quilt of love and encouragement.
Here are just a few of things that would go into my magical quilt: - Andi's her positive light and energy, the queen of the World of Yes!
- Chrisy's CLEVER wit and humor and kindness
- PinkGirl's funniness too
- DeniseNED's unsinkableness and caring
- The Faith of Paula, Tricia, Pray, MaryJo, Penny, Marcia, Ceesun, Mary Ann, Paty, Sassy, Ceya and SO many more.
- The knowledge of our bright, knowledgeable Lani and Steph and Jacky and Rich.
- The wonderfulness of all of you...Pam, Karen, Harrie, Bonnie, Joan, Suzan, Alice, Amanda, Paul, Bill, Mike, Sarah, Leslie, Linda, Emelie, Jessica, Donna, Kim and so so SO many others.
Love,
Maureen
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
|
|
|
|
10-11-2012, 11:18 AM
|
#2
|
|
Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
|
Re: Only 2 days left!!!
You are Simply Wonderful!
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
|
|
|
|
|
10-11-2012, 02:49 PM
|
#3
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Re: Only 2 days left!!!
Thanks Maureen - I just left a message for Sheila.
You are amazing - so sweet of you to do this.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
10-11-2012, 03:06 PM
|
#4
|
|
Senior Member
Join Date: Jul 2011
Location: Melbourne, Australia
Posts: 432
|
Re: Only 2 days left!!!
I am going to try to do this from Australia when I am home today. I am so sad but wow what a quilt you describe! I feel I get wrapped in one here when I visit. :-)
__________________
Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
|
|
|
|
|
10-14-2012, 06:08 PM
|
#5
|
|
Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
|
Re: Only 2 days left!!!
Hey, Maureen, do we know how Sheila received all our lilting voices? This was such a wonderful idea! Thanks a million again! LONG LIVE SHEILA OUR TOUGH AS NAILS WARRIOR GAL!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
|
|
|
|
|
10-15-2012, 05:23 AM
|
#6
|
|
Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
|
Re: Only 2 days left!!!
Hi Laurel and all-
I delivered - via e-mail - the quilt to Jen on Saturday morning. I expect we will hear from back that it was delivered with love to lift our beautiful Sheila up.
Hugs,
Maureen
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:30 PM.
|
Linear Mode
