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03-30-2007, 11:18 PM
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#1
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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Joe (Surveys & Polls)
Joe
I am new to the site. Have you done any surveys or polls? I would love to know things like:
1.) How many women exerience decreased libido on AI's?
2.) How many women think their oncol avoids discussion concerning libido?
3.) How many women have stopped having intercourse after AI's or chemo due to lack of interest or extreem discomfort?
4.) How many women had to stop Herceptin before 1 year?
5.) How many women had microcalcifications before CA diagnosis?
6.) How many women had bloody discharge before CA diagnosis?
Is there anyway we could submit questions to you for a site survey? I believe there are many in the ranks who do not want to write narratives, but would participate in a survey. If this has already been done in the past, or is just to difficult or time consuming please forgive me.
Thank you for this excellent site!!!!!!!!!!!!! Peace Karen
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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04-01-2007, 04:14 AM
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#2
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Senior Member
Join Date: Oct 2005
Location: Sydney Australia
Posts: 105
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Hi, I can tell you that i had not only decreased libido on AI's I had no libido at all. Since coming off Arimidex due to new treatment regime i have noticed a return of some libido.
I too had microcalcifications altho years before diagnosis.
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04-01-2007, 09:46 AM
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#3
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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Stopped Arimadex, ZERO libido
Roz
Due to my Oncol and Rad Oncol urgent requests to start Arimadex. I tried for 2 mos. I had ZERO libido. No even a heavy duty vibrator had any effect. Heeeheeee It was that bad! I decided my quality of life at this time was more important. My oncol said he wished he could talk me out of discontinuing, but understood. I asked him "Don't your other patients complain?" He said "I don't think anyone in Milwaukee over the age of 50 is having intercourse" I said "Gee that really is to bad, don't ya think" He just laughed. I have been on Tamoxafin for the past year, but I know it is not very effective. What are you doing now? Thanks for being so frank. I really thing this is a topic of great importance. Peace, Karen
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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04-01-2007, 09:50 AM
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#4
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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Joe & AlaskaAngle-Any objects to.......
Joe & AA
Do you have any objections to my asking a good friend and computer guru (especially Access Programs) to see if he could help me construct a survey report that could be imported to this site? I don't want to step on any toes. Peace, Karen
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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04-01-2007, 09:51 AM
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#5
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Karen,
We welcome all help.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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