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Old 09-18-2006, 12:16 PM   #21
AlaskaAngel
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Solace

We all have to find ways to deal with the possibility of death in our own way, and keeping this thread current is one way. I too wish deeply that Sherry will respond.

I recognize that the moderators of this board do want to maintain a positive focus and feel there is a lot of truth in that effort. Yet I also know that some will not survive, and in my opinion they need our help as they progress and face all of the unknowns in dealing with their situation.

It is obvious that Sherry spoke to us about wanting to survive, and there were many suggestions made to help her try to find a way to do that. Given the time lapse without further response from Sherry, I want to offer those who may find themselves in her situation the respectful alternative and acceptance by peers for dealing with preparing for death as well. Therefore I recommend that anyone take a look at the website bcmets.org as a place where such issues are openly dealt with and there is no focus of pretense or denial.

Respectfully,

AlaskaAngel
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Old 09-27-2006, 08:04 AM   #22
CPA
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Regrets

All,

I had followed some of Sherry's last posts and had been keeping an eye out for this thread. This a.m. I searched for any info. I regret to inform the group that Sherry passed away last week. Her obituary is below:

POARCH, Sherry Lynn Stevenson, 53, of Genteel Ridge, Wellsburg, W.Va., died September 20, 2006 at home, after a battle with breast cancer.

She was born November 21, 1952 in Steubenville, Ohio, the daughter of the late Alexander Stevenson, who passed away in 2003 and the late Margaret Dawson Stevenson, who passed away in 1980.

She was a member of First Presbyterian Church, Wellsburg. She was a Registered Nurse and worked many specialty Units including the ER, recovery, ICU, CCU, Trauma ICU and Liver Transplant ICU. She was on medical leave from Intracorp, where she was a transplant Case Manager for Cigna. She was also a member of Wellsburg Women of Moose; and Wellsburg Eastern Star No. 23.

She is survived by her husband and best friend, Alfred “Don” Poarch; one son, Alexander D. Poarch and his wife, Lori, of Brentwood, Pa.; one daughter, Misty D. Naples and her husband, Robert, of Normal, Ill.; one sweet and wonderful granddaughter, Ashley Lynn Poarch, who resides in Wellsburg; one grandson, Alexander Stevenson Poarch; three brothers, William “Sonny” Dawson of Follansbee, W.Va., Thomas A Gaudio of Wellsburg and Charles “Chuck” Dawson of Wellsburg; three sisters, Margie Polling Emmanuel of Ft Wayne, Ind., Alice Dawson of Follansbee and Alexis Jabloncki of Wellsburg. She also leaves behind a very special friend, Alan Klein and his wife, Beth, of McAdoo Ridge; and her two best friends her Yorkies, Chewi and Pipen.

Visitation Friday, September 22, 2006 from 2-4 and 6-8 p.m. at Reasner Funeral Home, 1515 Charles Street, Wellsburg, where Eastern Star service will be held on Friday 7 p.m. and funeral service will be held on Saturday, September 23, 2006 at 11 a.m. with the Rev. Steve Seng, First Presbyterian Church, Wellsburg, officiating.

Sherry will he cremated and her ashes will be sent to Georgia to be mixed to form a geometric dome that will be placed in the ocean to help form an artificial reef.

Sherry and her family requested that in lieu of flowers, that Donations be made to the Brooke County Animal Welfare League, P.O. Box 537, Wellsburg, WV 26070 or the Brooke County Library, 945 Main Street, Wellsburg, WV 26070.

Last edited by CPA; 09-27-2006 at 08:06 AM.. Reason: bad cut/paste
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Old 09-27-2006, 09:08 AM   #23
pattyz
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Thank you for this.

pattyz
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Old 09-27-2006, 11:19 AM   #24
StephN
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Unhappy Thanks for keeping track

So many of us have been looking for a post from Sherry or her family. CPA - You went a bit further.
We know she was not wanting to give up, but it seems she had no choice. Being a nurse (and in a transplant unit!), she knew well what she needed to do and how to do it.
With so many family members near by, I feel she had a good last few weeks.
Shall miss you angel.
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Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-27-2006, 12:18 PM   #25
3sweeties
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Thank you for the updated information. May God lift her soul up in his arms. My prayers are with her family.


A.
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Old 09-27-2006, 01:39 PM   #26
cosmicdust
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CPA thank you for the posting about Sherry...
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Old 09-27-2006, 03:56 PM   #27
Joy
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Yes, CPA, thanks are in order

Now we know and now we can grieve. And may we be even more motivated to treat this disease in better and faster ways.
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 09-27-2006, 04:14 PM   #28
tousled1
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CPA,

Thank you so much for going the extra yard. I've been worried about Sherri since her last post. I'm so sorry to hear that she died but hopefully she's in a better place now.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 09-27-2006, 04:41 PM   #29
Sherryg683
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Crap, sorry that's about all I can say..I hate this disease..sherryg683
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Old 09-27-2006, 05:25 PM   #30
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My sympathy to Sherry's family.she will be missed by all....we can find comfort that she is in a better place and at peace with no more suffering.
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 09-27-2006, 07:22 PM   #31
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My thoughts and prayers are with Sherry's family.

Karen
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Old 09-27-2006, 08:06 PM   #32
Tom
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Question Contact preparations?

I am in a somewhat different position than most of you, but I will throw out this idea just the same. Perhaps we should all see to it that family members or friends have instructions in place to contact this site in the event the member is hospitalized or otherwise unable to post and let us all know what's going on. I know that I was personally affected by the lack of contact with Sherry after she e-mailed me privately some time ago. It was very painful wondering what was going on with her, and not being able to offer any support in what I feared were her most desperate days.

This is just a thought, and I don't want anyone to feel pressured to do so on my account. I simply feel that we might better be able to offer comfort to the member or her family if we have some way of getting in touch.

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Old 09-27-2006, 08:50 PM   #33
Bev
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In the same vein, can we do a group condolence? I'm sorry that things did not work out for Sherry. I guess we don't even know what they treated her with. Angry and sad, but not surprised as we haven't heard from her. Thanks CPA for your time. BB
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Old 09-27-2006, 08:59 PM   #34
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Thumbs up

On other websites suggestions similar to Tom's have been made, and do help to provide a continuing link with anyone who becomes unable to come to the website on their own.

A really important aspect about his suggestion is that it carefully and thoughtfully allows each of us to be the one to make the choice about whether or not further contact is clearly wanted and invited. If no arrangements for contact are provided in advance, I think we should honor that choice as well.

Respectfully,

AlaskaAngel
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Old 09-28-2006, 04:37 AM   #35
IRENE FROM TAMPA
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You are right Tom

Tom I agree with you about notifying the board in the event something happens.
I have already given those instructions to my family since the board has been my "second family" for so long. We all worry about each other and it is comforting to know we all have so many friendships all over the world because of this board. Thank you Joe and Christine.

I am so sorry to hear about Sherry. My prayers to her family.
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1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 09-28-2006, 08:10 AM   #36
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My husband has agreed to keep the group posted if I'm ever unable to do so myself; he knows how important the group has been to my survival.

I send prayers to Sherry's family and friends during this difficult time.
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Old 09-28-2006, 08:50 AM   #37
Vanessa
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I did not join the board until Sept., so I did not know Sherry, but I am still sad about her untimely death and my condolences and prayers go out to her family.
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Old 09-28-2006, 11:11 AM   #38
Sandy H
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I am saddened to hear of her death. We e-mailed each other off the board. She e-mailed me in June regarding the Tykerb and whether she should fight for it. I told her it was her choice but if she felt she should then go for it. She had mentioned it to her doctor but said, he had told her she only had 3 months left, and she felt he didn't think she would live long enough to get it!! I think she wanted to try it but didn't have the energy to wait for the paperwork to be done. So sad it caused me some anger while I was waiting the 10 weeks to get it thinking that could have been me! I even told the nurse how I felt about this waiting and people are dying because they don't have time to get this drug. She said, "well, maybe that is true" I told her I knew it was and mentioned Sherry. God rest her soul. hugs Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 09-28-2006, 05:12 PM   #39
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She was all on our minds. I too am sad to see that she couldn't continue fighting as she expressed the will to do so. Thoughts and prayers to her loved ones.

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Old 10-02-2006, 08:42 PM   #40
Rendi69CA
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Thank you, CPA. My heart goes out to her family.
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04/97- breast bx. diagnosis breast cancer.
05/97- radical mastectomy; 5cm tumor & 11 lymph nodes.
10/97- City of Hope, high dose chemotherapy.
11/97- 36 radiation therapy.
01/98- NED; tamoxifen.
02/02- breast reconstruction.
08/04- recurrence; mets to rt lung; thoracentesis; femara.
09/04- thoracentesis; ER/PR +, Her2+++.
10/04- total abdominal hysterectomy.
02/06- mets to 9th rib; monthly zometa; arimidex.
06/06- medi port insert; weekly herceptin.
10/06- 3 weeks herceptin treatment.
02/07- mets to liver; arimidex
11/07-liver clear
02/08-chemo taxol/herceptin weekly treatment
12/08-taxol not working
01/09-navelbine/herceptin weelky
03/09-navelbine not working
04/09-xeloda/tykerb
09/09-30 radation to neck; xeloda/tykerb not working
11/09-Gemzar/herceptin weekly
04/10-tykerb/herceptin weekly
06/10-cancer spread to left lung;stop treatment; tap
07/10-right lung collasps; TDM1
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