HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 11-04-2007, 03:26 PM   #1
Faith in Him
Senior Member
 
Faith in Him's Avatar
 
Join Date: Jul 2007
Location: Northern California
Posts: 764
Very Tired....should I be concerned?

Last week, I think I over did it. I am almost five months out from chemo and two from radiation. This week between carting my 6 and 9 year olds to Harvest Parties, carving pumpkins, having company and working at a preschool two half days, I am completely wiped out. But other women on this site are stage 4 and are still able to work full time. Should I be concerned that something isn't right. I know up until the time that I received my dx, I was extremely tired. It makes me wonder?

Thanks
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Faith in Him is offline   Reply With Quote
Old 11-04-2007, 03:33 PM   #2
Chrissy B.
Junior Member
 
Join Date: Jul 2007
Location: Ohio
Posts: 1
Tiredness

I also just finished chemo five months ago, and radiation 2-1/2 months ago. I experienced extreme tiredness about two weeks out of radiation and up until about a week and half ago. I am finally feeling somewhat normal again. I know I was overdoing it. When you start to feel good you think you can be back to normal, but it isn't so. I needed to slow down on the week-ends and not plan so much. Also need to take a couple short naps each day and that keeps me going much better.
Chrissy B. is offline   Reply With Quote
Old 11-04-2007, 03:36 PM   #3
Brenda_D
Senior Member
 
Join Date: Jan 2007
Posts: 368
I am now 3 months out from rads and 7 months from chemo, and I am just now starting to get some energy back.

Don't be too hard on yourself. There's now way I could keep up with 2 young un's even if I weren't coming out of BC treatment.
Give yourself time for your body to heal and adjust to the "new normal" for you.
Not everyone is a "superwoman".
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
Brenda_D is offline   Reply With Quote
Old 11-04-2007, 04:43 PM   #4
Mary Jo
Senior Member
 
Mary Jo's Avatar
 
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
Hi "Faith"

Looking back............................I realize that it took almost 1 year from the end of herceptin.........right breast mastectomy July, 05, chemo ended Nov. 05, radiation ended Feb. 05, prophylactic mastectomy was 3/06 and herceptin ended Oct. 06. I can honestly say, looking back, that it took almost 1 year from the end of my herceptin treatment to finally feel "normal" (whatever the heck normal is) again. I think we WANT to be back to normal so bad and try to get there BUT in all reality it takes these "bods" of ours time to get back all of what we've lost.

Sending hugs across the miles,

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
Mary Jo is offline   Reply With Quote
Old 11-04-2007, 06:28 PM   #5
cafe1084
Senior Member
 
Join Date: Nov 2006
Location: West Virginia
Posts: 105
Unfortunately for us, the world doesn't stand still so we can rest when we need to. Kids football games, fall festivals, work, fundraisers... the list goes on and on. I'm feeling ya! Life, somedays, is almost more than I can bear and I cannot wait to collapse into bed. I'm 7 months out from chemo, heceptin continues thru February. I have seen, with myself anyway, that every 6 weeks or so, I get so tired all I can manage to do is the 8 hour work day and sleep thru til it starts again the next day. Kids are tired of leftovers from grandma's house and soup and sandwiches after a week of this.
I think we do try to act normal, so everyone expects we are back to our former self. I say that sometimes, you just need to shut it down, stay in your jammies one day and lie in bed drinking tea and watching Little House on the Prairie re-runs.
I don't think it is anything abnormal for us, but if it still worries you, ask your doc just to be safe.

Sweet Dreams
Steph C.
cafe1084 is offline   Reply With Quote
Old 11-05-2007, 02:43 PM   #6
MJo
Senior Member
 
MJo's Avatar
 
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
It took me a year to recover from Chemo and Herceptin, and I don't have any kids. May I say how much I admire the women on this site who are raising kids and keeping family life as normal as possible while going through treatment. I bet you don't realize how amazing you are.
__________________
MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
MJo is offline   Reply With Quote
Old 11-10-2007, 10:23 AM   #7
Smiley
Member
 
Join Date: Nov 2006
Posts: 17
Tired

The nurse precticioner at my onc office told me it can take a full year to completely recover from treatment. I would speak to my doc and make sure you're not anemic. Otherwise, just hang in there.
Smiley
Smiley is offline   Reply With Quote
Old 11-10-2007, 11:19 AM   #8
BonnieR
Senior Member
 
BonnieR's Avatar
 
Join Date: Jun 2007
Posts: 2,210
I'm tired just READING what you have been doing! I agree with what others have said, we start feeling better and then push ourselves. And our bodies push back. It seems to be a "trial and error" sort of process.....
I was just on a little trip. Had a great time running on adrenalin but now am fatigued.
Keep the faith.
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
BonnieR is offline   Reply With Quote
Old 11-10-2007, 11:49 AM   #9
hutchibk
Senior Member
 
hutchibk's Avatar
 
Join Date: Oct 2005
Posts: 3,519
Hi Faith, I don't have kids, so you should be tired even without going thru chemo! But I have to tell you that after my initial rounds of chemo 3.5 years ago, I felt (perhaps deceivingly) energetic for about 5-6 months. Right at the 6 month mark, I cratered big time. I went into a fatigue spiral. It lasted about 4 months for me and came along with a sense of feeling a bit overwhelmed by the whole last year I had been through (which I am sure contributed hugely to the exhaustion). Many other b/c women I know also experienced the same thing... and my nurses said it wasn't at all unusual.

Let yourself have some room around this. Do tell your doctor, and listen to your body... but I believe it is not unusual for your body to go through a "correction" and regeneration and rejuvenation period several months after you get done with a chemo regimine.

For me, being metastatic (stage4), I haven't experienced it since, like I did the first time, but that may be because I have wrestled the emotional aspect into a certain degree of acceptance so therefore it's not as intense as when I was first DXed ... and I think our bodies might just get more used to the challenge over time...
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
hutchibk is offline   Reply With Quote
Old 11-10-2007, 08:47 PM   #10
dhealey
Senior Member
 
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
I have worked through chemo, which I finished in March, just on herceptin now every three weeks. Yes I get very tired at the end of the day. Don't have any small children at home, just husband and 20 year old son who goes to college. I am plannig a wedding for my daughter and sometimes just the thoughts of planning it tire me out. I feel like the fatigue is coming from the herceptin. I just except it that when I get home at night I won't be doing much. I would mention it to your onc though as your counts may be down or heart maybe affected from the chemo and herceptin. Remember you must rest more than before, be kind to your body.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
dhealey is offline   Reply With Quote
Old 11-10-2007, 09:22 PM   #11
Bev
Senior Member
 
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
Sounds to me you are working full time, just not giving yourself credit. I still need more sleep than I did before BC. I mentioned this to ONC, and she was completely unconcerned. "So you are getting plenty of rest". 1 year past Herceptin, everyday is an improvement over the one before. Do monitor your CBC's but the rads will tire you even if you feel fine. Best wishes, BB
Bev is offline   Reply With Quote
Old 11-10-2007, 11:02 PM   #12
Faith in Him
Senior Member
 
Faith in Him's Avatar
 
Join Date: Jul 2007
Location: Northern California
Posts: 764
Ladies, you are all so wonderful. Thank you for your encouragement. Being kind to myself is a new concept after being a mom for nine years but I'll adjust.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Faith in Him is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:02 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter