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Old 05-07-2009, 01:00 PM   #1
Ellie F
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Join Date: Feb 2009
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Tykerb and herceptin combo effectiveness for IBC

Have just read the article on the board about the effectiveness of tykerb for IBC when other treatments have not worked.
This has made me wonder if there have been any trials looking at this combo as first or second line treatment for metastatic ibc?
I also noticed that a number of our sisters on the her2 group seem to be using it to good effect.
Any info?
Ellie
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Old 05-07-2009, 04:59 PM   #2
Midwest Alice
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Location: Southern Indiana
Posts: 455
The only thing I know about tykerb is two weeks ago when I was at MD Anderson I ask about taking it to prevent Her2 from metastasizing to the brain(I have clear brain MRI). I was told that it is not used for this purpose at this time.
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04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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