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09-23-2007, 06:49 AM
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#1
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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loss of taste
Well maybe I never really had any taste anyway. But about 3 days ago, I suddenly couldn't taste anything. It is very weird to eat something and have it only be a texture. It is really bugging me. I don't know if it is from xeloda, tykerb, minocycline, effexor, trazedone, coumadin or what (man that is a lot of medication for someone still, barely but still, in their 30's).
Does anyone have any thoughts? I have defineitely had temporary changes in my tasters through the years and treatments, all of which were expected. But this is a little different and very annoying.
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with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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09-23-2007, 08:08 AM
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#2
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Joy,
I don't think you're alone in loosing your taste. I know food just doesn't seem to taste very good to me. It seems like one day I'll love the taste of something and the next day just can't stand it. I attribute it to all the toxic chemicals that are being pumped into my body. If these drugs are strong enough to kill off cancer cells they certainly can affect our taste buds. I've adopted the attitude that I will eat what I want when I want and hopefully it will taste somewhat good. Not only does food taste differently or have no taste at all - I also find that what I drink changes constantly. One day iced tea will taste good but the next day I can't stand it and I'll be drinking water or orange soda -- I just keep changing until I find something that tastes good and will quench my thirst.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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09-23-2007, 12:54 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Joy I had this on a/c and it was driving me nuts! I recall one day eating a pineapple which tasted to me like an onion..ugh.... I bought a spray called Mouthkote which helped right before a meal, my friend use to freeze cranberry juice in cubes and suck on that before eating.
I don't know if anything like this may work for you but I know it's horrible, I lost a lot of weight just because i could'nt be bothered eating if there was no taste!! Hope it gets better soon 
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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09-24-2007, 05:35 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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What about your sense of smell ?
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09-24-2007, 05:55 AM
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#5
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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taste
Hi Joy
I have never heard of a complete loss of taste, just the regular strange tastes that seem to go along with chemo. I was going to recommend something very tart, like lemon, but that won't help if you can't taste anything ! Wish this had happened to me Everything tastes too good to me !
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PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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09-24-2007, 06:57 AM
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#6
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Member
Join Date: Sep 2006
Posts: 10
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Joy,
I had this happen when I was on Herceptin & Navelbine and my onc diagnosed it as a sinus infection. I needed a course of antibiotics to clear it up.
HTH
Ann in Boston
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09-24-2007, 07:23 AM
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#7
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Hello Joy
Since Ed has Tykerb/Xeloda he has mentioned the lack of taste. His previous chemotherapy did effect his tastebuds, but differently. Right now he is having trouble 'tasting' anything. This makes it harder now than before with his eating difficulties. Right now he cannot afford to lose anymore weight, so he does have to choke down things that do not taste and texture seems like it has changed to which is making it even more 'gagable'. Sorry I can not help more.
I hope that anyone with an answer can help, but in the mean time I will be exploring this post for us. Hopefully with good results. In the mean time I am sucking down a caramel latte in your honor my sweet friend. Keep the faith. And how did the date go??
Thankful that you are keeping us posted>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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09-24-2007, 07:48 AM
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#8
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Senior Member
Join Date: Jan 2007
Posts: 138
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Taxol did it to me.
Karen
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