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Old 04-14-2007, 12:52 AM   #1
jhandley
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Smile 6 year anniversary

Hi everyone
This week marks 6 years since I was first dx. I am currently NED (dx with a liver spot 19 months ago)..still on herceptin every 3 weeks.

Regards
jackie
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Old 04-14-2007, 02:29 AM   #2
Roz
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Congratulations Jackie. Hope you have a lot more 6 yearers!!
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Old 04-14-2007, 02:48 AM   #3
R.B.
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Congratulations!.

From my recollection you are one of the posters to this board with a strong interest in nutrition along with other treatments.

RB
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Old 04-14-2007, 04:58 AM   #4
bobbiw
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Congratulations Jackie. Have a wonderful day.

Bobbi
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Diagnosed 10-18-05 found during annual mamogram
Left mastectomy 10-27-05.
Sentinal node biopsy-node negative
IDC Grade 3 of 3
Tumor 2 cm margins clear
HER-2/neu 3+++
Er Pr +
Began chemo/AC every 3 weeks 12-6-05 followed by Taxol and weekly Hercpetin (Herceptin through June 2007)
Right prophlyactic mastectomy June 2006 with expanders. Due to have exchange surgery sometime end of May 2007.
Exchange surgery completed June 2007 with saline implants and nipples. Darned left implant is lopsided to the left due to the wrongly formed pocket and my wrongly formed chest wall!
Switched from Tamoxifen to Armidex in May due to menopause.
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Old 04-14-2007, 06:27 AM   #5
Jean
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Dear Jackie,

Wishing you continued success....
Blessings

Fran
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 04-14-2007, 08:12 AM   #6
sassy
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Congrats Jackie! Many more to come!
________
Live Sex

Last edited by sassy; 08-22-2011 at 09:13 AM..
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Old 04-14-2007, 10:31 AM   #7
Mary Jo
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That's awesome!!!!!!!!!! Simply, fantastic!!!!!!!!!! Something we all like to hear about. Thanks for sharing.

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 04-14-2007, 11:56 AM   #8
Andi
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Jackie - Great news! Here's to an infinite number of years continuing NED!
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Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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Old 04-14-2007, 02:16 PM   #9
TriciaK
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Congratulations, Jackie! It is so inspiring to everyone to hear news like yours. It gives us all hope. I remember when a diagnosis of her2positive was a death sentence, with 3 months all anyone could expect. I had a close friend who had it and lived only 3 months. There was also a famous athlete in Arizona, only in her 20's, who got this kind of BC and even though every possible treatment was given her she also succumbed in 3 months. I can't remember her name now, but it was so sad because she was so young and beautiful, and had a great career in front of her, but nothing could be done then. We are so blessed now to have hercepten and now tykerb, plus many new chemos. And the future looks even brighter as they are finding new treatments and information every day. Here's to MANY more years for you! Hugs, Tricia
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Old 04-14-2007, 04:24 PM   #10
tousled1
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Great news Jackie!
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 04-14-2007, 05:16 PM   #11
Marlys
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Jackie, I just love these celebrations we can all share. Congratulations on 6 years.
Love & hugs, Marlys
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Old 04-14-2007, 05:34 PM   #12
Karen O.
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Question I'm new to this....what does NED stand for?

It is obviously good!
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Old 04-14-2007, 06:10 PM   #13
juanita
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ned is no evidence of disease, and Congratulations! It gives hope to all of us!
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Old 04-15-2007, 12:39 AM   #14
Chelee
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Jackie, That is just fantastic to hear. Thanks for sharing that with us. Big congratulations to you. Here's to you staying on that road of NED for the rest of your life. That's the kind of news I just love to hear.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 04-15-2007, 06:36 AM   #15
Malena
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Congratulation Jackie!!!!! I'm very happy for you!!!!
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September 2005: Diagnosed of breast cancer at age of 35
October 2006: port a cath
4 chemos (epirubicin + taxotere) before surgery
February 2006: mastectomy + 10 nodes

4 cm tumor
, 1 node micromets , ER-PR-, Her2 3+
June 2006: started Herceptin
July 2006: stopped Herceptin for high heart toxicity
January 2007: reconstruction


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