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Old 11-16-2018, 04:15 PM   #21
tricia keegan
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Location: Ireland
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Re: Aphasia?? First symptom brain mets???

Great news!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 11-18-2018, 11:28 AM   #22
caya
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Re: Aphasia?? First symptom brain mets???

Wonderful news!
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
12 Years NED!!
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Old 11-19-2018, 04:30 PM   #23
tricia keegan
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Re: Aphasia?? First symptom brain mets???

Glad to read this good news!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 11-20-2018, 08:14 AM   #24
jra40
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Re: Aphasia?? First symptom brain mets???

So happy to read your good news! Have a blessed Thanksgiving!
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11/17/10 - Diagnosed with 4.5cm tumor in right breast, IDC, Stage 2, Nuclear grade 2, ER+ PR+ HER2+
12/13/10 - Lymph node biopsy - negative
12/28/10 - Started neo-adjuvant treatment along with clinical trial with 4 rounds of AC chemo every 3 weeks
3/15/11 - Began weekly Taxol/Herceptin infusions along with 750mg of Tykerb taken by mouth daily
6/28/11 - Finished last cycle of Taxol
7/27/11 - Breast MRI shows tumor has dissolved, remarkable reaction to chemo
8/31/11 - Lumpectomy, Sentinel Node biopsy. Node negative, clear margins, 7mm of cancer left over from chemo.
10/05/11 - Started radiation, 5 days a week for 7 weeks.
11/8/11 - Finished radiation
3/21/12 - Last Herceptin!
3/26/12 - Port removed!
Tamoxifen for 5 years
8/4/15 - Hysterectomy & bilateral salpingo-oophorectomy. Due to large fibroids. No cancer!
8/8/15 - Started Arimidex
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Old 03-06-2019, 09:49 AM   #25
Lien
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Re: Aphasia?? First symptom brain mets???

I only saw this today, or I would have replied straight away. Sounds like a migraine attack to me. Have had them since I was 13, and over the years symptoms changed and changed back. They depend on the location of the attack. So sometimes half my face goes numb, sometimes I get aphasia, and sometimes I can't move my hand for a while, depending on which part of the brain is affected. Stress and anxiety, lack of sleep or changing food patterns can trigger attacks in some people. Also hormonal changes can have an effect.I find that in Spring I always get an attack 24 hrs after visiting a Nature Reserve near our hometown. Apparently there's something that pollinates there that triggers my attacks. I'm fine during the rest of the year. My neurologist explained that an attack starts "building up" 24 hours before the first major symptoms start.
I hope you don't have other attacks like these, and if you do, that you can just let the attack run its course.
Oh, and if your GP prescribes one of the new migraine meds, please know that some of them cut the first attack, but then the attack returns the next day. This was the case for my son and me. Doctors say it isn't possible, but on a Dutch migraine site, several patients reported this effect.
My son, who has terrible attacks, finds major relief from indomethacin, a strong NSAID. According to the neurologist, this shouldn't be working, but it does. He had attacks that lasted up to 20 hours, with continuous vomiting (every 10 minutes) for up to 12 hours. With these meds he falls asleep after half an hour, and has no vomiting, or just once, before he falls asleep. He then sleeps through the whole attack.
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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