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Old 06-11-2017, 01:10 PM   #1
Diane6513
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Join Date: May 2017
Posts: 4
Herceptin and Joint Stiffness

Hi, I was just wondering if anyone has really bad stiff joints from Herceptin. I am on it every three weeks, but is it from that or could it be from the Taxol which I finished in March?

My Oncologist said it was from the Taxol and it will eventually go away. I'd like to know when? First thing in the morning when I get up, my lower legs and feet are like wooden pegs. No bending. And when I work out the next day in the am, my lower back is really stiff, as well as the legs. My finger joints are stiff too.

I was told because of the low dose of the Taxol I had, I would have no long lasting side effects, as I went into it with really good health. Does anyone know of anything to alleviate this?
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Old 06-15-2017, 05:12 PM   #2
Nurse4u2day
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Join Date: Feb 2014
Location: California
Posts: 410
Re: Herceptin and Joint Stiffness

I had severe stiffness, joint and muscle pain once I started on herceptin alone. When I say severe I mean in tears severe. I was seen by a rheumatologist and based on labs they stayed I had inflammation in my body and both the rheumatologist and my oncologist said that this most likely was because of herceptin along with lingering effects of chemo. I even developed 7 trigger fingers. Was placed on routine pain meds and lots of warm showers.
The pain started to subside about two months prior to my last herceptin treatment .
__________________
11/13 Dx IDC left breast
11/13 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
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