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Old 06-24-2014, 11:21 PM   #21
Adriana Mangus
Senior Member
 
Join Date: May 2006
Location: California
Posts: 668
Re: Water retention on Herceptin

I was on herceptin for almost ten years, never experienced gain weight due to herceptin just from eating


Hope you get better.

Adriana
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 08-19-2015, 07:41 PM   #22
Heyday
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Join Date: Aug 2015
Posts: 18
Re: Water retention on Herceptin

I had my first TCH + P infusion on Monday and instead of the expected side effects, I'm terribly bloated and am experiencing mild heartburn/reflux? I've been drinking a lot of water to flush my system, but eating even a small meal makes me feel uncomfortably bloated. Does anyone have some ideas for relief of these side effects?
Thanks.
Mona
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Old 08-20-2015, 07:46 AM   #23
Carol Ann
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Join Date: Dec 2013
Posts: 991
Re: Water retention on Herceptin

Hi Mona, I had godawful indigestion/heartburn from the taxotere and lived on peppermint candies, OTC Pepcid and stevia sweetened gingerale to help ... as far as bloating, do you mean as in constipated? (I didn't have the Perjeta, so my treatment was not exactly like yours). I was always severely constipated the first week or so and my husband made barley soup for me (you can put this in the search feature here because I posted the recipe) and it really helped. But I know alot of people get diarrhea from the Perjeta, so that may not be something you want to try!

Don't suffer in silence ... call your oncology team and let them know, they should be able to prescribe something or recommend an OTC remedy to help.

ANOTHER ... DAY ... DOWN!!!

Carol Ann
__________________
July 24, 2013: "Infected" Right Nipple and benign cyst removed, pathology report revealed Paget's, DCIS, and ILC 1.25 cm, ER+/Pro+/HER2 equivocal, Grade 2 under benign cyst, previous diagnostic mammo/ultrasound said I was perfectly healthy in both breasts.

Aug 18, 2013: MRI report says Left breast is perfectly healthy "consistent with previous studies".

Sept 2013: I insist on a bilateral mastectomy anyway. Too nervewracking to let left breast remain with higher risk after 3 cancers in right, nipple in right is already gone anyhow.

Sept 18, 2013: Bilateral mastectomy, 11 right nodes removed, ALL negative BUT -- ER+/PRO+/HER2+ tumor, 1.0 cm, Grade 2 found in a piece of "grossly unremarkable" breast tissue from prophylactic mastectomy of left breast, no nodes removed.

Oct 25, 2013: 13 left side nodes removed, ALL negative, Stage 1 across the board, NO RADS needed, YAAAAY! Port also installed.

Nov 25, 2013 Begin 6 rounds TCH.

March 10, 2014 Just finished 6th and LAST Chemo today, YAAAAAY!

March 24, 2014 Echocardiogram to make sure I'm still good for Herceptin every 3 weeks.

March 31, 2014 Echo results NORMAL, first Herceptin all by itself. Now if only my eyes would stop streaming from the Taxotere ... :)

April 21, 2014 Started Arimidex and therapy for "mild" lymphedema in left hand and arm

May 2014 Therapy completed, I have sleeves and gloves for both arms, a Flexi touch lymph pump to hook up to for an hour every day, and I've become an arm bandaging expert. :)

June 2014 Begin Fosamax to prevent osteoporosis; bone scan revealed osteopenia

Nov 17, 2014 FINAL Herceptin!

Dec 4, 2014 My right thigh muscle has been extra achy for days ... I discover a blister rash cluster on the side of my right thigh while taking a shower. Port appointment cancelled until Dec 17, my doc is working me in tomorrow afternoon to see me and the rash. My muscle at least feels less achy.

Dec 5, 2014 Yep, I have shingles. Boo! I start acyclovir and also have a prescription for a painkiller just in case for over the weekend.

Dec 17, 2014 Port is OUT!

January 2016 Shingles again and this time it started where my left breast (where the hidden HER2+++ tumor was!) used to be. My onc nurse got me a same day appointment to see my doc when I called and told her I had a rash on the site. The antiviral meds are working once again, though, so that is good news. :)
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Old 08-20-2015, 08:41 AM   #24
Heyday
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Join Date: Aug 2015
Posts: 18
Re: Water retention on Herceptin

Thanks Carol Ann!
The belatedness seems to get worse as the day goes by, and I end up feeling like Jabba the Hutt! Maybe it's my imagination, but I feel worse after taking the anti-nausea meds and jittery after the Claritin. I'm like that little kid that wants to shut her eyes and have it all go away like a bad dream.
Thanks for your advice. I'm going to tweak my diet a bit and call the nurse today.
Mona
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