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01-24-2007, 04:15 AM
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#21
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Senior Member
Join Date: Jan 2007
Posts: 368
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I made a list of questions to ask the oncologist.
He will love me.
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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01-24-2007, 09:23 AM
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#22
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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good for you
Brenda it is the feisty patients that make the best patients. I agree with some of the others as it sounds like you will begin a chemo protocol first given the schedule you shared. Also I was surprised to see tamoxifen as you are er/pr-. Chemo can be challenging, but look at all the beautiful women on this site who have done it, are doing it. It is very doable. You will be amazed at how strong you really are.
Herceptin is quite easy and, as mentioned, is not technically a chemotherapy drug. It is a biologic therapy.
I hope your pain gets better fast. And I encourage you to ask your onc questions, keep active on this site (welcome by the way). Good luck and let us know what your medical plan will be so we can lend some support.
Where in Illinois are you? I grew up outside of Chicago and went to NIU and lived in DeKalb before moving to Colorado.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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01-24-2007, 10:56 AM
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#23
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Senior Member
Join Date: Jan 2007
Posts: 368
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I just got back from my first chemo, and it went well.
I asked my list of questions and found out I'm not getting Tamoxifen at all. He was thinking I was ER+ and I am not.
I got the anti nausea meds, Zolfran and something else, and then Adriamycin and Cytoxan, then I got the Herceptin. Then a saline flush followed by a Heperin flush.
I'm to get blood work in 10 days, then again before my next chemo.
So, first chemo down and 3 to go.
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01-24-2007, 11:22 AM
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#24
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Yeah Brenda,
That's the way to think 1 down, 3 to go. Congratulations. Just one other thought. Did they do a Muga test before the Herceptin. My doctor wants the Muga test before the Herceptin. This is a heart test to see how well your heart pumps. You might ask about this.
Remember, lots of water. Warm water can be easier to drink than cold. Rinse mouth 3-4 times a day with baking soda.
You go girl, Catherine in Oregon
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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01-24-2007, 11:31 AM
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#25
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Senior Member
Join Date: Jan 2007
Posts: 368
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No muga test. He just asked how my heart health was.
I ordered some Biotene rinse and it should be here today, so that should help with mouth sores. (I hope)
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01-24-2007, 02:22 PM
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#26
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Brenda
Get plenty of rest, drink plenty of fluids and think positive...you are already 1/4 the way through this....if you have questions, post...there is always someone who has been there done that on this board...
Sending a big warm hug
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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01-25-2007, 09:03 AM
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#27
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Senior Member
Join Date: Nov 2006
Location: The Hudson Valley, New York
Posts: 124
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Hi Brenda,
I hope you are feeling well today. As everyone else here has said you can get through this (even when you think you can't) I will have my third A/C treatment on Tues. and I'm already getting nervous.
From what I understand chemo side- effects are different for everyone. I have most side- effects for 3 days starting on the 3rd day after treatment. The 3rd day these are pretty bad, but you get through it. By day 6 I feel myself again. Like many others here have said, one good week and one bad. It is very important to take your anti-nausea meds. They will help. The nausea will make you feel like you have a sleeping sickness. Drink lots of water and try to eat, that helps as well.
Ask lots of questions. The onc at times doesn't offer all the info. I think they repeat it so many times they forget who they tell what. So, you need to be the best in following up on your treatment and ask. Write everything down. There is so much info at times we forget or get it mixed up, the notes will let you go back and look at it later. Is your husband good at researching, if so have him do the research. My partner is the "best" at this. He is also the "best" at hugs and kisses and comforting, you need that as well. Also, when you feel really bad take as much help as you can from whoever offers. You will need this.
Cancer is hard, it's the hardest thing I've ever been through. Hang in and take one day at a time.
Sue
__________________
---Kevin and Sue---
Dx'd 10/06 IDC grade III/III
Er- pr- HER2 3+
MRM right breast 12/5/06
nodes negative
same day reconstruction started
(implants)
Stage II (2.2 cm tumor)
fairly extensive DCIS
Ct and Bone scans clean
Port placement 12/26/06
AC (4 cycles DD)to begin 1/2/07
Taxol/Taxotere (4 cycles DD)
Herceptin for one year
"There is no distinction between the one who gives, the one who receives, and the gift itself."- Hahn
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01-25-2007, 10:26 AM
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#28
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Hope all went well today and that you will do okay. Some handle chemo better than others. I was fortunate not to have much in the way of nausea but I did have a rough go of it in other ways. But I am fine now and it is way behind me and that is what will happen to you to when it is all over. Good luck and let us know how it is going.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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01-25-2007, 11:02 AM
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#29
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Senior Member
Join Date: Jan 2007
Posts: 368
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After chemo, I had small sinus type headache. I laid down and felt better. I started taking Phenergan at 4pm yesterday and am not feeling too bad. I woke up a few times with stomach pain, but it went away when I turned over.
So far, so good.
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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