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10-26-2006, 04:00 AM
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#1
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Senior Member
Join Date: Nov 2004
Location: Indiana
Posts: 123
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brain met update
I just had 4 hours to do some research before I seen the radiation Dr. So I spent it on this site. When I got there they handed me the written report that said I had to many mets to even count. So I caved in for the wbr. I really wanted to save it for father down the line. I had a brain MRI just 3 months ago and it was clean. I also had a 2.2cm. leision in the hip and it grew to take over the whole hip area 3 months ago. During this 3 month period, 2 of the months I was on abraxane and her. I think my cancer must have fed off the abraxane. So they are doing my hip too. I had the MRI on Tue. morning and saw the Dr. 4 hours later and they made the face mask and marked my hip and I had my first treatments the next day. Yesterday I also had a MRI of my spine since I am having some pain there. My radiation Dr. is contacting the oncoligst to see if I can get the tykerb after I finsh this. The oncoligist took blood work to see if I can take the xeloda since it put me in the hospital both times. I tried it. I usally hate steriods but with in one day they took away the headache and vomiting. Patty H
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10-26-2006, 06:01 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Patty-
You are facing so much right now - I am so glad at least the vomiting and headaches are gone - it gives you a chance to focus on all of the care you seem to be getting. Keep up your strength and we're thinking of you.
Regards,
Shell
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10-26-2006, 12:51 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Hi Patty-
Patty
I'm really sorry you are facing all this but will be thinking of
you and wishing the very best outcome.
Hang in there,you're stonger than you think and will get
through this.
Tricia
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10-26-2006, 03:15 PM
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#4
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Patty, I'm sending you hugs and prayers, and want to say thanks for taking time and energy to post an update. I was worried about how things were going. Take care and rest rest rest while you get through this.
<3 Lolly
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10-26-2006, 03:18 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Patty, I wish you the best of luck with your treatment. I'm sorry that you have to go through all of this.
Barbara H.
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10-26-2006, 04:37 PM
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#6
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Patty
We are all with you in spirit and sending a big hug and many prayers that you will feel great soon...and this will be behind you.....please keep us posted....we are all thinking of you!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-26-2006, 04:53 PM
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#7
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Patty I am wishing you well and will pray you can have the Tykerb after WBR! Hang in there and thanks for keeping us updated. Sending you a big hug, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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10-26-2006, 06:39 PM
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#8
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Senior Member
Join Date: Oct 2005
Posts: 823
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Patty prayers going out to you.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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10-27-2006, 07:37 AM
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#9
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Senior Member
Join Date: Mar 2006
Posts: 306
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Patty,
Yes indeed, thank you for taking the energy and time to report what is happening, as we are all thinking of you - praying hard for good results and no complications.
Be gentle with yourself, rest as you need to...
I hope you will report to doc ANY symptom or side effect that you are troubled about or that causes you pain/discomfort. And then EXPECT the issue to be addressed promptly with solid help/relief.
That decadron truely does it's appointed job... yet comes with it's own set of other 'issues'. Hope you can reduce to zero pretty quickly, but so glad for you to have it working now.
with love,
pattyz xoxox
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10-27-2006, 07:41 AM
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#10
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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You are in my thoughts. May your mets shrink down to nothing quickly. MJO
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10-27-2006, 11:39 AM
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#11
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Senior Member
Join Date: Mar 2006
Posts: 87
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Wishing you all the bestSusan
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