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Old 07-02-2007, 06:24 PM   #1
Jen
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Exclamation Mammograms

Are mammograms painful? I am almost 32 and my Dr wrote the order for me to get one last May but I have been putting it off. The thought of having my boobs squished between 2 plates just doesn't sound very pleasant. Is there anything I can do to minimize discomfort?
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Old 07-02-2007, 06:44 PM   #2
Becky
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Taking some Advil about one hour before seems to help. If you need to get one, go - and go now. Don't put it off just because you think the big squeeze will be painful. It's not that bad - some discomfort. But a mammogram can save you life.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 07-02-2007, 07:16 PM   #3
Mary Jo
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I couldn't agree more. The mammogram is an important tool and needs to be utilized. Honestly, I never found a mammogram painful at all. A bit squishy but "pain" is not a word I'd ever use to describe it. It's "tight" and no, you wouldn't want to stand their like that for a long time but 1, 2, 3 it's over with.

Go get it done. You'll be happy you did.

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 07-02-2007, 07:22 PM   #4
Jen
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Both my Mother and her Mother have had breast cancer. I guess part of me is afraid that if I have the test done that I could have it also. I know that might sound silly but I do worry about it.
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Old 07-02-2007, 07:41 PM   #5
Mary Jo
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Jen, It doesn't sound silly at all. It sounds VERY understandable. However, not knowing is wayyyyyyyyyyy worse. You're always wondering, I am sure. You need to do this for your peace of mind AND if ever a problem does crop up you catch it early. You can do it Jen. Please go.

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 07-02-2007, 07:53 PM   #6
DonnaD
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Hi Jen,
Please, please, please, get the mamogram. I am a bit older than you, 55 now, but went every year. Last year I was diagnosed with stage II BC that would never have been found without a mamogram. The tumor was near the chest wall, and even when the surgeon knew where it was he was unable to feel it. The pain is not that bad, and Advil does help. Early diganoses is soo important. You'll be fine. Keep in touch and let us know how you did and the results.
Donna
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Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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Old 07-02-2007, 08:12 PM   #7
Jen
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Thanks Mary Jo and Donna. I know this is something I need to do but I am scared. I know my Mother (Sheila) is disappointed with me because I haven't gone yet.
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Old 07-02-2007, 08:22 PM   #8
Jeanette
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Talking mammo

Time to get your big girl panties on Jen. Nobody was more afraid that I was to get it done, but if I had gone sooner maybe, just maybe I would not have had to get an MRM. You may feel a little uncomfortable, but believe me it's worht it. Please go and have it done, Hugs to you,Jeanette
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Old 07-02-2007, 08:41 PM   #9
Jen
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Thanks everyone. You're right I do need to go "get er done" I just wish I wasn't so scared.
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Old 07-02-2007, 09:05 PM   #10
Bev
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It really is only a 20 second squish times 6 views. I'm a scaredy cat and I don't need to take ativan for mammos.

The techs are usually great. The center I go to now is almost spa-like. It really makes a difference as the center that didn't pick up my tumor was 3rd world like. (Long waits, indifferent staff, etc)And don't be afraid to complain if they're making you too uncomfortable, ie squishing your collarbone.

It really is OK. Obviously a woman didn't invent this machine. Advil is a good suggestion as I sometimes have a little soreness, but less soreness than you might feel from working out.

You can do it. I have heard of no cases of anyone expiring or having damage from a mammogram. I hope by the time you're 40, they have less squashing testing in place.

Good luck, Bev
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Old 07-02-2007, 09:32 PM   #11
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Last edited by Jen; 07-02-2007 at 10:36 PM.. Reason: wanted to
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Old 07-02-2007, 09:41 PM   #12
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Nothing to it

Jen:
I am a BIG baby. Really big baby. I major stress over going to the doctor's office for a Pap. Getting my teeth cleaned is an ordeal. I don't even think twice about getting a mammogram. They really don't hurt at all.
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Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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Old 07-02-2007, 09:58 PM   #13
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Thanks Leslie's sister. I don't like getting Pap tests either but unfortunately my Dr won't prescribe my Yasmine w/out having it done although I did try to skate by last time by quoting a pamphlet I read from the American Cancer Society stating that women who have had normal Paps in the past didn't need one EVERY year but that was a no-go.
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Old 07-02-2007, 10:08 PM   #14
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Arrow Are You Serious?!

"Jen"
I am having a hard time believing that you are for real. I cannot believe that you are brave enough to post on a site with woman fighting for their lives to survive cancer yet you are too scared to have a mammogram

I invite you to spend a week at my house. I will teach you to take care of yourself and to be a grown up.

You need more than a mammogram - you need a reality check.
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1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.

3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.
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Old 07-02-2007, 10:33 PM   #15
Jen
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"Flori"
I do visit this website and post on here occasionally. BOTH my Mother and Maternal Grandmother have had breast cancer. I started this thread because I am scared about having a mammogram maybe not as much about the procedure (although I am not looking forward to it) as I am about being at an increased risk. Everyone else on this thread has been very encouraging and supportive EXCEPT for you. Before you tell me about how you would teach me to be "grown up" maybe you should walk a mile in my shoes. I have taken care of my handicapped daughter (who at times has been near death) who went through open heart surgery at 2 and a 1/2 months of age and has countless other surgeries including back surgery every 6 months for the last 2 years.


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Old 07-02-2007, 10:45 PM   #16
Jean
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Jen,
Consider this...you mention your baby daughter...you know that you
have to remain well and take care of her...so do please go and have your mammo, it is really important for women to catch this disease in the early stagers and this is possible with regular mammo's. I had my yrly mammo
in Sept. 2004...only five months later I felt an ache deep in my arm and
called my dr. and insisted on another mammo. went in and well the story is below...caught it early...look what happened in my case in just 5months.

The ladies that have responded to you have given you very wise advice...please do take it.
Good Luck.
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
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Old 07-03-2007, 01:01 AM   #17
Jen
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Jean,
Thank you for your reply and you are right I have 2 daughters ages 9 and 10 and they deserve to have a Mother who takes good care of herself. I never meant to offend anyone on here that has/or have had breast cancer with my thread. I thank you all for your support and encouragement. I will call the hospital tomorrow for an appointment.


Jennifer
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Old 07-03-2007, 01:25 AM   #18
Ruth
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Jen:

It's OK to be scared. I think that you may be more afraid that they will find something rather than the pain of it and I understand that fear. That is one good strong reason to go ahead and have it done and put that fear behind you. The earlier you catch anything, the easier and best chance you have and most likely everything is OK anyway. Your Dr is wise to have it done early. I wish looking back that I did have a reason to have one earlier...even with the minor discomfort (and I was nursing at the time!) that I experienced.
Take care and please post again and let us know how it goes.
Peace ~ Ruth
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Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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Old 07-03-2007, 05:38 AM   #19
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Hey Jen-

Like you said- its not really the mammo you are worried about- but the results. I can see you nibbling your nails down to the knuckles in anticipation of the results. Just get it over with... it will also set a good example to your 9 and 10 yr old daughters. this is your baseline mammo, so make it count !

Maria
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Old 07-03-2007, 07:20 AM   #20
Hopeful
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Jen,

I may be biased about the value of testing, because that is how my bc was found - on my annual mammo. It was not palpable at the time and in a place that was hard to check (behind the nipple). I do believe the test saved my life. Sounds like bc runs in your family, which means you not only need to get this test to be there for your daughters, but to set a good example for them. They will no doubt have to have early mammos, too. How you approach this can color their opinions about having the test themselves. The most important thing is to make sure you all stay healty.

Best of luck to you,

Hopeful
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