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Old 09-28-2006, 07:16 PM   #1
MCS
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Question orthopeadic oncologist

I had a spot discovered on my sternum during a breast mri. the pet ct and bone scan does not show cancer.

Is this how bone metastasis starts?

I have to go see this orthpeadic oncolgist at UCLS in California. I'm very scared. What additional tests is he going to run and what other information will he provide?

Anyone of you familiatr with this orthopeadic stuff? Or does your regular onc treats the spots and make decisions.

Help

Thank you

MCS ( maria)
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Old 09-29-2006, 03:29 PM   #2
Patty H
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Funny you should mention that. My Dr. just recommended that I go see a orthopeadic Dr. I have mets in my hip and he said they can do like a micro or ultra sound type of wave to help stop it. The only thing is after I left his office, I'm not sure whether he was going to make the appointment or am I suppose to. Patty H
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Old 09-29-2006, 03:43 PM   #3
StephN
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Wink Sternum spot

Hi -
If the spot is in a certain place then it is likely due to the rubbing that occurs when we bend our head down and cause the bones to change position. The place I mean is just in the middle between your breasts, or top of the cleavage. Try it and you will know what I mean. Sort of hunch your shoulders forward and bend and you should feel it.

It was brought to my attention as I had a slight uptake there on a PET scan and the specialist said that was what he thought caused it. It has never been a problem. Hope the same for you.

Always good to check, but often there is a normal explanation - it is just something new to us.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-29-2006, 04:22 PM   #4
karenann
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I agree with Steph... get it checked out just to make sure.

I am also curious as to why it only shows up on the MRI and the three other types of imaging, ct, bone scan and pet scan show nothing. Three to one; I'd say the odd are in your favor!

Hugs,
Karen
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Old 09-30-2006, 04:06 AM   #5
MCS
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Thank you Steph for that information. I'm bending down as you indicated and not feeling anything.

I will make the appointment to the ortho onc. It's always so scary to see another doc for something else.

Karenann, my onc explained that mri picks up any little things, false positives included. The pet ct and bone scan picks up cells with cancer activity.

Patty, my onc's office called the ortho onc to let im know I be calling in. but i need to make the appointment


This is very tiring. As you well know.

Will keep you informed. thank you for you answers.

XOXO

MCS ( maria)
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