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04-26-2011, 06:59 PM
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#21
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: my beautiful wife update
William, I send you my heartfelt sympathies as well. I recall what one of my first chemo nurses said...BC is a very unpredictable disease...I know that doesn't make it any easier at this most difficult time. Ceesun
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04-28-2011, 08:03 PM
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#22
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: my beautiful wife update
William,
Reading your post serves to remind all of us that it is not only the patient who has cancer. Our loved ones are also hit with the disease. I am so deeply sorry to hear of your beautiful wife Carol losing her battle with this very difficult disease.
This is such sad news - but please realize that you did all you could. Treatment choices are difficult and there are no right or wrong answers...no one knows at this time what is the perfect choice. We are all making decisons on our beliefs at the time of current information.
These are dark days for you William and I pray that you are strengthen with the knowledge that you were a loving and supportive husband who did everything possible.
Sincerely,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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04-28-2011, 10:36 PM
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#23
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: my beautiful wife update
My husband is a William too. What a pillar of strength and comfort he has been. As I know you were. What a blessing to have a caring husband at our side. Any decisions were made with love and the best intentions, based on the information available. Can't do more than that. Don't harbor regret. Keep the faith.God bless you and your family
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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04-30-2011, 05:34 PM
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#24
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: my beautiful wife update
William,
I am in complete shock! Cancer just doesn't make sense. I am so sorry for your loss and I am praying for you all. You did everything you could do. Never doubt yourself.
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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05-04-2011, 08:39 PM
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#25
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Re: my beautiful wife update
William,
And what about her beautiful husband....you....yes YOU! You were her rock of support and clearly you have a heart of gold. Why in your time of despair, you had the presence of mind to log on and thank US!
William, you are selfless. And we are fortunate to be touched by you and your beautiful wife. Another angel has earned her wings. God speed to you as you try and pull the pieces of your life together when all around you feels like it has fallen apart. We would be honored if staying with us helps you at all. You are always a member of our community.
love Kim from CT
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
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05-05-2011, 06:24 AM
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#26
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: my beautiful wife update
William
So sorry to read your post about your wife. Please know that this is never a given path with certainty, we do what seems the best at the time and always hope for the best. Unfortunately, for all the drugs, treatments etc, the outcome for each of us is really not in our hands. Many say GOD ONLY TAKES THE BEST...guessing thats why he called your wife home. Please know we are here for you in anyway to help you again adjust to another new normal....cherish the memories and love, they will sustain you!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-05-2011, 05:03 PM
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#27
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: my beautiful wife update
William, I'm sorry to hear of your loss. Please don't beat yourself up for what you feel that you may, or may not have done, in Carol's final hours. I'm sure you did your best, with what you had to work with. Please don't be a stranger. Take care of yourself, brother.
__________________
For Nicola
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