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Self Diagnosis
I am on tyverb/xeloda daily plus 3 weekly herceptin for mets to skin, chest and lung. Last scan showed lung mets shrinking and I can see the skin mets disappearing with each herceptin dose.
I am trying to keep my EF up so started to exercise, walking and skipping. Am not great at skipping, can only do 20 skips at a time. I do not get breathless but afterwards I feel a tightening in my chest, as if theres something wrong inside my ribs. Had a check up in radiotherapy dept last week and Doc does not think its mets to rib. He sent me for chest x-ray, will get results next week.
I think maybe the xeloda has stopped working and maybe my lungs are getting worse. Would not mind being taken off xeloda as my hands and feet are in a terrible state. I am using Udderly Smooth and Compeed blister packs but I am glad the cold weather is coming because I really need to wear gloves constantly or I leave blood marks everywhere. I think I will request Navelbine. I have another check up on Friday next.
I did a search here but people who have had lung mets all seem to have very different symptons.
I would like to stay on Tyverb and Herceptin with the Navelbine. Has anyone had this combination and did it work? Anyone think my self diagnosis is totally wrong?
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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